yes i use o2, it took 40 years to get diagnosed, it was a blood test and came back positive and to confirm had to be done a second time 12 weeks later.
yes i use o2, it took 40 years to get diagnosed, it was a blood test and came back positive and to confirm had to be done a second time 12 weeks later.
blood mutations could be the cause, iv had pe and dvt several times and in 2019 found out i have apl (anit phospholipid) disease which is also caused by lupis but the pe's has caused damage to my lungs
I had sudden onset in July 2020 - fainted so went to ER and the clots were in lungs and the saddle area between. I’m lucky to be alive. ICU w heparin 3 days, another 4 in hospital- on elloquis for life. They told me the clots had to have been in my groin or hips or legs then traveled to lungs. I never felt any symptoms of clots before they hit my lungs. I do have 2 blood mutations - factor 5 Leiden and Prothrombin.
blood mutations could be the cause, iv had pe and dvt several times and in 2019 found out i have apl (anit phospholipid) disease which is also caused by lupis but the pe's has caused damage to my lungs
I had a DVT November 2021, the doctor believed it was a fluke that I got it so I took Eliquis for 7 months then was taken off. November 2022 I ended up in the ER couldn’t breathe and stabbing pain lower right back. Was sent home after CT scan (no dye or further radiology scans)and was told I had pneumonia. Thankfully I went to a different ER in the area where they did more scans and found out I had PE’s in both my lungs along with pneumonia. I was sent home on Eliquis again, however, I started coughing up blood the next day and I went back to the ER and was admitted to the hospital for 2 days on a heparin drip. I was sent to hematologist and rheumatologist where I had bloodwork done which showed I have Antiphospholipid Syndrome. Had no clue that was gonna happen at all! I am now on Warafin for the rest of my life. Real scary. I’m only 48.
Have they found the cause of your clots. Usually it is something like Atrial Fibrillation. I know a couple of people who have had Ablation which knocks out the electrical system in the heart that is causing the clots. Many times the clots form in the legs if people have varicose veins. Compression socks seem to help a great deal. And there is a new procedure where they put a filter in the Carotid Artery and this prevents clots from getting to the brain.
You might want to ask your doctor about any of these possibilities.
I had the clot following Hip replacement. I asked for the Artery filter, but apparently the Artery that normally receives the filter had a problem, and thus the filter was not installed. At 92, I am sure some of the "plumbing no longer is in the best condition" I do also have edema in my legs, but it is from the amount of surgery I have had. Knee replacement, hip replacement, removal of DERMATOFIBRSARCOMA, AND shoulder replacement, and simple breast removal, all on the right side, and then, knee replacement and hip replacement and radical mastectory on left side. It is very difficult for me to reach down far enough to put the sock on and I have tried the "Sock Helpers" but can't seem to manage it. I wish to thank you for your suggestions, and concern. It is wonderful we have this place to express our help and I feel very lucky to be a participant.
Gina5009
Just got out of hospital. I had a gastric bleed, lost a lot of blood then fell and broke my collarbone. They found a PE at the hospital. I am short of breath and wobbly. Will I be short of breath the rest of my life??
I am new here, but in 2017 I suffered a major pulmonary embolism. I had a massive blood clot land on saddle-valve by lungs and heart, and several dozen small clots in lungs. I was in the ICU for 11 days. They removed the massive clot (over 4") and blood thinners cleared the clots in my lungs. Months back I was diagnosed as having post phlebotic syndrome, amongst many other things (see bio). The surgeon after surgery to remove large clot told me afterwards..., "I didn't want to say before surgery until you were out and it was successful, but the clot you had was what is called the widow-maker, and the one I had was largest he had seen to that date, and I was extremely lucky to have survived it." Where did the clot come from? my left leg, two weeks prior to embolism I injured leg when car door slammed on it.
I am 86 yo.. I had a bad case of Covid on 12/2022 and two weeks later I was admitted to the hospital with a PE in my right lung. I have been on Eliquis 10 mgs daily for the last 5 months and was told that will continue taking them for a long-term or maybe for the rest of my life. Have any of you taken thinners for a long term or advised by your doctor to take them for a lifetime? Also, I started showing red spots in my stomach area, have you experienced this side effect?
I will be on Eliquis lifelong. I've beeb on them multiple times but did not have doctors that would continue to fill my prescriptions so I continued to get another bilateral pulmonary embolisms. I no longer see that Doctor and got a new one. I have not noticed any side effects which I'm very thankful for.
I am 86 yo.. I had a bad case of Covid on 12/2022 and two weeks later I was admitted to the hospital with a PE in my right lung. I have been on Eliquis 10 mgs daily for the last 5 months and was told that will continue taking them for a long-term or maybe for the rest of my life. Have any of you taken thinners for a long term or advised by your doctor to take them for a lifetime? Also, I started showing red spots in my stomach area, have you experienced this side effect?
Connect
Connect
Like
Helpful
Hug
Oh wow ok. Thanks for responding.
yes i use o2, it took 40 years to get diagnosed, it was a blood test and came back positive and to confirm had to be done a second time 12 weeks later.
Wow ok. I've been tested for blood disorders. Is that the same things? There were four tests. All negative. Is your breathing difficult now?
blood mutations could be the cause, iv had pe and dvt several times and in 2019 found out i have apl (anit phospholipid) disease which is also caused by lupis but the pe's has caused damage to my lungs
I had a DVT November 2021, the doctor believed it was a fluke that I got it so I took Eliquis for 7 months then was taken off. November 2022 I ended up in the ER couldn’t breathe and stabbing pain lower right back. Was sent home after CT scan (no dye or further radiology scans)and was told I had pneumonia. Thankfully I went to a different ER in the area where they did more scans and found out I had PE’s in both my lungs along with pneumonia. I was sent home on Eliquis again, however, I started coughing up blood the next day and I went back to the ER and was admitted to the hospital for 2 days on a heparin drip. I was sent to hematologist and rheumatologist where I had bloodwork done which showed I have Antiphospholipid Syndrome. Had no clue that was gonna happen at all! I am now on Warafin for the rest of my life. Real scary. I’m only 48.
-
Like -
Helpful -
Hug
4 ReactionsI had the clot following Hip replacement. I asked for the Artery filter, but apparently the Artery that normally receives the filter had a problem, and thus the filter was not installed. At 92, I am sure some of the "plumbing no longer is in the best condition" I do also have edema in my legs, but it is from the amount of surgery I have had. Knee replacement, hip replacement, removal of DERMATOFIBRSARCOMA, AND shoulder replacement, and simple breast removal, all on the right side, and then, knee replacement and hip replacement and radical mastectory on left side. It is very difficult for me to reach down far enough to put the sock on and I have tried the "Sock Helpers" but can't seem to manage it. I wish to thank you for your suggestions, and concern. It is wonderful we have this place to express our help and I feel very lucky to be a participant.
Gina5009
-
Like -
Helpful -
Hug
3 ReactionsJust got out of hospital. I had a gastric bleed, lost a lot of blood then fell and broke my collarbone. They found a PE at the hospital. I am short of breath and wobbly. Will I be short of breath the rest of my life??
-
Like -
Helpful -
Hug
1 ReactionI am new here, but in 2017 I suffered a major pulmonary embolism. I had a massive blood clot land on saddle-valve by lungs and heart, and several dozen small clots in lungs. I was in the ICU for 11 days. They removed the massive clot (over 4") and blood thinners cleared the clots in my lungs. Months back I was diagnosed as having post phlebotic syndrome, amongst many other things (see bio). The surgeon after surgery to remove large clot told me afterwards..., "I didn't want to say before surgery until you were out and it was successful, but the clot you had was what is called the widow-maker, and the one I had was largest he had seen to that date, and I was extremely lucky to have survived it." Where did the clot come from? my left leg, two weeks prior to embolism I injured leg when car door slammed on it.
-
Like -
Helpful -
Hug
1 ReactionI will be on Eliquis lifelong. I've beeb on them multiple times but did not have doctors that would continue to fill my prescriptions so I continued to get another bilateral pulmonary embolisms. I no longer see that Doctor and got a new one. I have not noticed any side effects which I'm very thankful for.
I am 86 yo.. I had a bad case of Covid on 12/2022 and two weeks later I was admitted to the hospital with a PE in my right lung. I have been on Eliquis 10 mgs daily for the last 5 months and was told that will continue taking them for a long-term or maybe for the rest of my life. Have any of you taken thinners for a long term or advised by your doctor to take them for a lifetime? Also, I started showing red spots in my stomach area, have you experienced this side effect?
-
Like -
Helpful -
Hug
1 Reaction