Dopler showed legs weren't cause of lung clot. I've taken 81 mg asprin for years.
Cardiologist says no cardio system involved. Waiting to see pulmonologist to see if he has any info.
I was diagnosed 2+ weeks ago on 3/18/24 with an atypical Pulmonary Embolism with no distal thrombi, it's in an unusual location and appearance. I do not have any of the usual indications except my age. I am looking for information. The 1st CT scan report says there is a soft tissue mass that could be sarcoma. the 2nd CT scan says it is an intraluminal filling defect. We have a shortage of doctors in Santa Cruz, CA. I cannot see a Pulmonologist until 5/8/24. Stanford denied an appointment because they want a referral from my Pulmonologist. I do not have Factor V. I appreciate any suggestions!
Dawn, in addition to the unnerving news that you experienced a pulmonary embolism, it sounds like the diagnosis isn't a clear one. Are you on any medications until your appointment in May?
Just got out of hospital where I was diagnosed with a PE in one lung. Dopler didn't show it came from legs. Was on oxygen before this & have had to go up to 4. Also on xarelto for 6 months, Dr says.
My very fit husband had 3 embolisms that developed two days after a colonoscopy. Go figure. Six months on Xarelto (blood thinner) and he was good to go. Be patient…and be grateful they caught it!
I was diagnosed 2+ weeks ago on 3/18/24 with an atypical Pulmonary Embolism with no distal thrombi, it's in an unusual location and appearance. I do not have any of the usual indications except my age. I am looking for information. The 1st CT scan report says there is a soft tissue mass that could be sarcoma. the 2nd CT scan says it is an intraluminal filling defect. We have a shortage of doctors in Santa Cruz, CA. I cannot see a Pulmonologist until 5/8/24. Stanford denied an appointment because they want a referral from my Pulmonologist. I do not have Factor V. I appreciate any suggestions!
Have 2 blood clots one in each lung.The clot on left has blocked pulmonary artery.any exterior I get short of breath.Cant do anything stay at home because of this.
Sorry to hear you have had multiple PEs; I had one back in 2008; I had pain in my left leg and knew something was wrong, went to urgent care and they had an ultrasound performed and found clots, so they gave me a injection of blood thinners and sent me home, told me to come back next day for another injection. I arrived and when they checked my oxygen with the finger test it was low at 60% so I was rushed to the hospital for many tests and was in ER for 7 days. I had no symptoms which was scary, no breathing issues, I felt fine. I am lucky to be alive and to have survived the night I went home after being told I had clots in my leg. Here to support you, I pray every day I never have clots again, but they did diagnose me with a change in my blood chemistry, my Factor VIII changed, and my blood now over coagulates so I am on blood thinner for life.
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Dopler showed legs weren't cause of lung clot. I've taken 81 mg asprin for years.
Cardiologist says no cardio system involved. Waiting to see pulmonologist to see if he has any info.
Welcome, @dawn46. I moved your post about your recent pulmonary embolism to this active discussion:
- Looking for others with Pulmonary embolisms
https://connect.mayoclinic.org/discussion/looking-for-other-with-pulmonary-embolisms/
I did this so you can easily connect with members like @lcwilkie @bateman @sadiecat @ladyaceintx1 @kjcarlson @sallygirl and many others.
Dawn, in addition to the unnerving news that you experienced a pulmonary embolism, it sounds like the diagnosis isn't a clear one. Are you on any medications until your appointment in May?
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1 ReactionJust got out of hospital where I was diagnosed with a PE in one lung. Dopler didn't show it came from legs. Was on oxygen before this & have had to go up to 4. Also on xarelto for 6 months, Dr says.
My very fit husband had 3 embolisms that developed two days after a colonoscopy. Go figure. Six months on Xarelto (blood thinner) and he was good to go. Be patient…and be grateful they caught it!
I was diagnosed 2+ weeks ago on 3/18/24 with an atypical Pulmonary Embolism with no distal thrombi, it's in an unusual location and appearance. I do not have any of the usual indications except my age. I am looking for information. The 1st CT scan report says there is a soft tissue mass that could be sarcoma. the 2nd CT scan says it is an intraluminal filling defect. We have a shortage of doctors in Santa Cruz, CA. I cannot see a Pulmonologist until 5/8/24. Stanford denied an appointment because they want a referral from my Pulmonologist. I do not have Factor V. I appreciate any suggestions!
I’m so sorry. Recovery from a PE takes time. Be patient with yourself and the process.
I have pulmonary embolism in both lungs and short of breath on elequis but feel like it’s not helping
Have 2 blood clots one in each lung.The clot on left has blocked pulmonary artery.any exterior I get short of breath.Cant do anything stay at home because of this.
Sorry to hear you have had multiple PEs; I had one back in 2008; I had pain in my left leg and knew something was wrong, went to urgent care and they had an ultrasound performed and found clots, so they gave me a injection of blood thinners and sent me home, told me to come back next day for another injection. I arrived and when they checked my oxygen with the finger test it was low at 60% so I was rushed to the hospital for many tests and was in ER for 7 days. I had no symptoms which was scary, no breathing issues, I felt fine. I am lucky to be alive and to have survived the night I went home after being told I had clots in my leg. Here to support you, I pray every day I never have clots again, but they did diagnose me with a change in my blood chemistry, my Factor VIII changed, and my blood now over coagulates so I am on blood thinner for life.
There is an excellent Facebook group for people who are experiencing PEs