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Looking for others with Pulmonary embolisms

Lung Health | Last Active: Apr 8 9:47pm | Replies (78)
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@dawn46

I was diagnosed 2+ weeks ago on 3/18/24 with an atypical Pulmonary Embolism with no distal thrombi, it's in an unusual location and appearance. I do not have any of the usual indications except my age. I am looking for information. The 1st CT scan report says there is a soft tissue mass that could be sarcoma. the 2nd CT scan says it is an intraluminal filling defect. We have a shortage of doctors in Santa Cruz, CA. I cannot see a Pulmonologist until 5/8/24. Stanford denied an appointment because they want a referral from my Pulmonologist. I do not have Factor V. I appreciate any suggestions!

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Replies to "I was diagnosed 2+ weeks ago on 3/18/24 with an atypical Pulmonary Embolism with no distal..."
Colleen Young, Connect Director | @colleenyoung | Apr 8 9:06pm

Welcome, @dawn46. I moved your post about your recent pulmonary embolism to this active discussion:
- Looking for others with Pulmonary embolisms
https://connect.mayoclinic.org/discussion/looking-for-other-with-pulmonary-embolisms/

I did this so you can easily connect with members like @lcwilkie @bateman @sadiecat @ladyaceintx1 @kjcarlson @sallygirl and many others.

Dawn, in addition to the unnerving news that you experienced a pulmonary embolism, it sounds like the diagnosis isn't a clear one. Are you on any medications until your appointment in May?

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