Looking for long-term Transplant success stories

Posted by glm777 @glm777, Dec 9, 2025

My SIL is 37
Transplant at age 20
Recently had biopsy showing inflammation
12 plasma exchange treatments
Now protein in urine
Waiting for antibody blood work to come back.
He and my DD are in their mid 30’s and just found each other less than 2yrs ago. Please give me some hope that my SIL can live many more years!

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@glm777, I feel certain that members will be able to share their post transplant stories here with you, but in the meantime I want to share the following 2 links where stories have been shared since 2020! As for myself, I am living a good life at 16 years after my simultaneous liver and kidney transplant at Mayo Rochester MN.

- Snapshots of hope: Life on the other side of transplant.
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/
- Organ Donation and Transplant: What is Your story?
https://connect.mayoclinic.org/discussion/organ-donation-and-transplant-what-is-your-story/

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I had a kidney transplant 28 years old and I am doing well - 63 years old. I know its not the same but Drink lots of water, exercise and do your best.

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How wonderful! Thank you for your reply-I pray for continued good health for you. This makes me feel so much better!

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I was 56 years old in 2003 when I got my heart transplant at UMC Tucson. I was contacted several years later by the mother of the donor who finally read my letters I sent through the transplant center. We met in person a few weeks later. I have since met my donor's sister and her 4 boys.
After 22 years with no cardiac events, I experienced bracicardia this year (2025) and was taken off metoprol which was keeping my heart rate controlled, but now too low. I have been on various doses of cellcept, tacrolimus and prednisone. My current cellcept dose is 400 mg x bid, tacrolimus 0.5 mg bid. The prednisone was recently added back for a different condition. I get all my treatment and meds at the VA, which has been very good for me.
I feel I have been abundantly blessed, and pray that the blessing will continue for several more years.

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@glm777, how is your son-in-law doing? Any update?

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Hi, Im not sure what type of transplant He had but I had a Heart in 2018 at Mayo Phoenix. Now coming up on my anniversary in January it will be 8 years and doing great. I have known others who were in the 20–25-year range so as time goes on the treatments for issues get better and better. I even know of one person who got a second heart after 25 years if I recall. So plenty of options. Have you gotten any updates as they look into the inflammation?

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