Looking for Hope in a time of trauma.

Posted by billie6977 @billie6977, Jan 2 7:33pm

I Just came from the ER. When I tell you it was the worst experience I have ever had. Nobody listens to me when I try to explain what was going on. They didn't do full exams and gave me no answers but I have 3 mass. One in my breast, one in my rectum and one in my colon. Gave meds I already told them I can't take because I just throw it up. I guess tomorrow is another day can only hope for the best. I am down now 44 lbs in 35 days. I have been suffering for over 6 months since I had Covid and there doesn't to seem be any relief for me any time soon. We do not have Doctors where I live so I have to go an hour away just to here nothing. I will have to pay $10k for nothing.

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Hello @billie6977. I am very sorry to hear you didn't feel heard when you sought care at the ER in your area. Can I ask if you went in for symptoms related to the three masses or for COVID symptoms?

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@amandajro

Hello @billie6977. I am very sorry to hear you didn't feel heard when you sought care at the ER in your area. Can I ask if you went in for symptoms related to the three masses or for COVID symptoms?

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I had went in for the overall Covid I did not even know about cancer until I was leaving there.

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I am writing this by voice so hopefully this comes out right since this last entry I have been to see a specialist for Gastrology and they couldn't find anything except I now have a hiatus hernia from vomiting so much still have not gotten any answers we are about to lose everything we have I have reached far and long trying to find out answers and truly even more loss now than I was when I wrote this post originally I wrote an article posted on LinkedIn posted on Facebook Twitter everywhere I could possibly post it I have done a GoFundMe fundraiser I have posted on PayPal I've gotten a little bit of help but not enough I'm at my wit's end I have it here a couple other times saying that I'm about to lose everything my car that I've worked so hard for that I need to be able to get back and forth to doctors my home is keeping me warm and dry my family members who think they I'm just being a hermit doing God only knows what we feel so alone sometimes my husband is going off his rocker what do we do where do we go you know who is going to help me before tomorrow like I said still no answers I'm down 46 lb since December 5th just now starting to be able to get some things down my stomach but when I spoke to the specialist when he did my test yesterday he did a colonoscopy upper GI lower GI a HIDA scan and some biopsies on tissue and masses that were found in my digestive system but none of it seems to be related to The covid sickness so I don't know where to go from here I have every symptom of post covid but cannot seem to get a diagnosis or recognition of what is really going on takes my breath away the article that I wrote talks about people of my age my demographics that there's no help for I heard crickets for the most part I really want to take a stand and have a voice for people to understand long covid is real and people are dying and losing everything it's no wonder that suicide rates and drug use rates are so high is it part of their plan what is it somebody please talk to me

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@billie6977

I am writing this by voice so hopefully this comes out right since this last entry I have been to see a specialist for Gastrology and they couldn't find anything except I now have a hiatus hernia from vomiting so much still have not gotten any answers we are about to lose everything we have I have reached far and long trying to find out answers and truly even more loss now than I was when I wrote this post originally I wrote an article posted on LinkedIn posted on Facebook Twitter everywhere I could possibly post it I have done a GoFundMe fundraiser I have posted on PayPal I've gotten a little bit of help but not enough I'm at my wit's end I have it here a couple other times saying that I'm about to lose everything my car that I've worked so hard for that I need to be able to get back and forth to doctors my home is keeping me warm and dry my family members who think they I'm just being a hermit doing God only knows what we feel so alone sometimes my husband is going off his rocker what do we do where do we go you know who is going to help me before tomorrow like I said still no answers I'm down 46 lb since December 5th just now starting to be able to get some things down my stomach but when I spoke to the specialist when he did my test yesterday he did a colonoscopy upper GI lower GI a HIDA scan and some biopsies on tissue and masses that were found in my digestive system but none of it seems to be related to The covid sickness so I don't know where to go from here I have every symptom of post covid but cannot seem to get a diagnosis or recognition of what is really going on takes my breath away the article that I wrote talks about people of my age my demographics that there's no help for I heard crickets for the most part I really want to take a stand and have a voice for people to understand long covid is real and people are dying and losing everything it's no wonder that suicide rates and drug use rates are so high is it part of their plan what is it somebody please talk to me

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PS when I went to see the gastrologist yesterday and we are talking about my weight loss of why is this happening he says so you're not eating why are you not eating? He was talking to me as if I was purposely creating anorexia myself and I'm thinking to myself who in God's name would ever do that to themselves and I understand there are people who do don't get me wrong but folks I want to understand something I was 265 lb in November I am now 202 lb so excuse me that is if my math is correct I have lost a total of 63 lb in 2 months. I really don't think I would have done that to myself sorry and I definitely wouldn't be holding my feces to cause sepsis that's just insane I just wish people would understand not everybody is a liar there are some of us out here who are truly sick and need help and can't get any. Lord bless these Physicians and everything that they have to deal with on a daily basis may God open their eyes to see the true trouble that these helpless patients are dealing with thank you for listening I'll shut up now!!!

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Check with the hospital and see what assistance they can provide when you can't afford to pay the hospital bills. Often, they would rather take payments than have a bill go to collection. Also, they may be able to settle the bill for less, or pay the bill with grants.

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Very sorry to read about what you are going through. I have felt similarly as you when I had a problem prior to Covid. For about 1 1/2 years doctors and ER thought I was a drug seeker. I never once asked for pain meds or had them prescribed. I just wanted to feel better. I was told “you shouldn’t be having pain” or “don’t worry about the blood in your urine because all other tests are normal”. I did get worse and had a diagnostic test that led me to surgery. However, since that ordeal, I deal with PTSD of some variety (a therapist did diagnose it) from medical trauma. Therapy has/is helping but it is not free either. I hope you can reach out to assistance programs to help financially. Western Dairyland, I believe, is a resource in western Wisconsin. They can direct you through what might be available. Heating assistance, maybe help with a car payment or rent, food assistance, and other. Maybe if you can use some of the above assistance (even if temporary) it can help take some of the burden off your shoulders.

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Thank you for the info. I will look into it.

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@birdiemomma

Check with the hospital and see what assistance they can provide when you can't afford to pay the hospital bills. Often, they would rather take payments than have a bill go to collection. Also, they may be able to settle the bill for less, or pay the bill with grants.

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This has been done. I still can't get the help we needed. I have to. Many bills from the past 3 years. They have helped me with some. I was advised to to file Bankruptcy if I can't cover it. I am telling you that's what my rant has been about. I have always worked since I was young. I have not ever asked to help not even when. I caught Covid or lost my jobs because of Covid. No unemployment no nothing. Now ironically I can't get around it this time I need the help and cannot get the help. It's what's mahe me throw in the towel. So da speak.

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@billie6977

This has been done. I still can't get the help we needed. I have to. Many bills from the past 3 years. They have helped me with some. I was advised to to file Bankruptcy if I can't cover it. I am telling you that's what my rant has been about. I have always worked since I was young. I have not ever asked to help not even when. I caught Covid or lost my jobs because of Covid. No unemployment no nothing. Now ironically I can't get around it this time I need the help and cannot get the help. It's what's mahe me throw in the towel. So da speak.

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Understood. Sounds like you've been through the wringer!

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@birdiemomma

Understood. Sounds like you've been through the wringer!

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Very much so. I flipped yesterday. Just out of being frustrated. Kinda feel like I'm in a wood chipper. Lol this whatever it is has taken over my whole being. Physically mentally and emotionally. My poor husband will not leave my side and I think I may have to do a crowdfunding event just for bail money ( joke) he is getting so mad at the Dr. The Bill collectors and just In general. So that is something else I want to speak about, the effects this has on those who are the closest to us. They see all that we are experiencing and they themselves feel just as hopeless as we do. Plus, when they aren't in our shoes they and they can't do to make us better. So, all of us need to remember they feel our pain take it easier on them.

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