Looking for advice: Could this be MGUS, because of low m-spike?

Posted by oliviahutson @oliviahutson, Aug 1, 2023

Hello,
I am hoping someone can help better understand my labs and symptoms.
IgA Kappa with .88 m-spike
IgA 1000
Blood in urine
Low RBC
High number in the Betta region
Lower lumber MRI shows heterogeneous bone marrow noted within the pelvis?? Don’t know if that means anything.
Extreme pain in pelvis, lower back and right ribs
Chronic sinus infections
Dizzy all the time
Extreme fatigue
Night sweats
Shortness of breath
Heart pains (sometimes)
Numbness/tingling in both lower legs and feet
Ringing in ears
Vision issues
Weakness in legs and arms
Weight loss 22 lbs in 6 months

Could this just be MGUS, because of low m-spike??

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Colleen Young, Connect Director | @colleenyoung | Aug 11, 2023

@oliviahutson, just thought I would check in. Have you had further investigations? Any update?

oliviahutson | @oliviahutson | Aug 11, 2023

In reply to @colleenyoung "@oliviahutson, just thought I would check in. Have you had further investigations? Any update?" + (show)

Wow, thank you for your concern! Means a lot to me.
I am going to hematologist/oncologist Monday morning.
New symptoms are my tongue is swollen with ridges on sides. That’s been now for a week.
Just don’t know if it’s MM related now. Any thoughts?

wendy517 | @wendy517 | Aug 12, 2023

In reply to @oliviahutson "Wow, thank you for your concern! Means a lot to me. I am going to hematologist/oncologist..." + (show)

I wanted to jump in and send gentle hugs your way. Wow you are going through A LOT!! I was diagnosed with PV in April and have had some moments but nothing like your list of troubles and pain. Sending healing vibes your way and hope you get help finding answers 🙏
This is an amazing forum for help & support, it takes a village. Stay strong 💪 ✨️ 💓

oliviahutson | @oliviahutson | Aug 12, 2023

In reply to @wendy517 "I wanted to jump in and send gentle hugs your way. Wow you are going through..." + (show)

Thank you Wendy for your response! I am very grateful for all the support here.
I am trying to stay positive and have faith that whatever is going on, I will soon have some answers and move into a solution.

Thank you!
🙏💜

View More View Less

Please sign in or register to post a reply.