What treatments did you have for angiosarcoma?

Posted by lessjudd1976 @lessjudd1976, Jul 3 9:56pm

I was diagnosed in March with a soft tissue Angio Sarcoma. After a PET scan, they found it had already moved to my bones. It is in both femurs and they just found it in my lower vertebrae.
I am currently wrapping my first radiation treatments for the soft tissue and waiting to start radiation on the bones. I have done 1 round of Red Devil chemo waiting to finish radiation to complete 5 more rounds. In the meantime, I am doing Taxal (sorry for the miss spelling). They have talked about immunotherapy after I wrap everything up as a trial.
This has been a roller coaster in a short period of time. So far no surgeries have been mentioned.
Just trying to keep up with all i can and what is the best course of action.

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Colleen Young, Connect Director | @colleenyoung | 12 hours ago

@lessjudd1976, welcome. Here is what Mayo Clinic says about treatment for angiosarcoma: https://www.mayoclinic.org/diseases-conditions/angiosarcoma/diagnosis-treatment/drc-20350248

It sounds like your team is looking at all the options. I'm tagging fellow members like @mermaid7272 @milo1 @wiola @bigkevh20 and others who have had treatment for angiosarcoma and can share their experiences.

@lessjudd1976, how are you doing with radiation and chemo? And how about the rollercoaster? I can only imagine its been tough.