← Return to What treatments did you have for angiosarcoma?

Discussion
lessjudd1976 avatar

What treatments did you have for angiosarcoma?

Sarcoma | Last Active: 3 days ago | Replies (5)

Comment receiving replies
Profile picture for lessjudd1976 @lessjudd1976

I finished my first round of radiation on July 8th. I ended up with a pretty significant radiation burn. I am trying to get heal up still.
I am waiting for the next rounds of radiation to be approved.
The chemo does make me tired for a few days afterwards. So far I am doing ok otherwise.

Jump to this post


Replies to "I finished my first round of radiation on July 8th. I ended up with a pretty..."

@lessjudd1976 , I’ve been through chemo: Docetaxel & Gemcitabine 9 rounds then a break and put on immunotherapy: Keytruda for 9 cycles and back on the above chemo regimen for 7 cycles and now on my 3rd cycle of Keytruda along with BCG to try to initiate a higher immune response. The chemo sucks the life outta me as time goes on but after a few weeks break I feel mostly normal again. I was diagnosed with stage 4 bladder angiosarcoma on Oct, 4 2024 with multiple bone, lung and other soft tissue mets. I was told initially that radiation wasn’t a treatment option unless there was a spot that was causing extreme pain. I feel fortunate to be here with a decent quality of life but at the same time, I feel like a guinea pig with this rare cancer type and them trying to find new treatments for our disease. Best of luck to you!