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What treatments did you have for angiosarcoma?

Sarcoma | Last Active: 3 days ago | Replies (5)

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Profile picture for bigkevh20 @bigkevh20

@lessjudd1976 , I’ve been through chemo: Docetaxel & Gemcitabine 9 rounds then a break and put on immunotherapy: Keytruda for 9 cycles and back on the above chemo regimen for 7 cycles and now on my 3rd cycle of Keytruda along with BCG to try to initiate a higher immune response. The chemo sucks the life outta me as time goes on but after a few weeks break I feel mostly normal again. I was diagnosed with stage 4 bladder angiosarcoma on Oct, 4 2024 with multiple bone, lung and other soft tissue mets. I was told initially that radiation wasn’t a treatment option unless there was a spot that was causing extreme pain. I feel fortunate to be here with a decent quality of life but at the same time, I feel like a guinea pig with this rare cancer type and them trying to find new treatments for our disease. Best of luck to you!

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Replies to "@lessjudd1976 , I’ve been through chemo: Docetaxel & Gemcitabine 9 rounds then a break and put..."

@bigkevh20

Today I met with my radiation oncologist...it was the first time they seemed less than optimistic. Went from cure to palliative.
The areas in my spine are the most concerning and from what they are saying harder to cure. The areas in my femurs are still curable as well as the soft tissue area I had.
They are monitoring for additional spread. They mentioned lungs being a high likely potential location.
I will mention Keytruda to see if that is a possibility. I am not sure how much more chemo I have at the moment.
Just trying to stay positive.