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Long term medication Hydroxyurea

Posted by lindy25 @lindy25, Aug 12 12:26pm

Hello
I was recently diagnosed with the JAK 2 mutation. My hematologist prescribed 500 mg of Hydroxyurea 2 times a day.
I just started taking it 6 days ago. So far I haven’t had any side effects, maybe stomach upset but I also have diverticulitis so it’s hard to tell.
I’m really grateful for this support group. So many of my questions have been answered by reading through the posts.
Most of all it’s nice to find others who know what’s going on, none of my family & friends understand this.
Thank you

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eileen11108 | @eileen11108 | 2 hours ago
In reply to @hun8ln2026 "@eileen11108 I contacted my Dr. She said stop taking HU for 3 days and then start..." + (show)
Profile picture for hun8ln2026 @hun8ln2026

@eileen11108 I contacted my Dr. She said stop taking HU for 3 days and then start taking again 5 days a week. Which I have, see her on Oct 7th.

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@hun8ln2026
Glad your doctor took you off HU for a few days, Were you taking a heavy dose of HU? In my opinion if sharp pains in your head happen again I would immediately contact my doctor again.
When I started taking HU in 2022 I had headaches and was very lightheaded. I have been taking 500 mg at different time schedules…daily, every other day, and now four days a week.. I have been off HU for three weeks, My headaches still happen but not quite as intense. I am about to start again at four days a week.
Best wishes, Eileen

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