1. < Post-COVID Recovery & COVID-19

Any tips to help recovery for a COVID Long-Hauler?

Posted by Cilla21 @cilla21, May 13, 2021

I was diagnosed with COVID-19 at the end of Feb 2021. Nearly three months later, neither my taste nor smell has been fully restored. My husband also tested positive and was completely out of it for one full week. He could not even get out of bed. My case seemed to be mild. Though I felt ill, I was not bed-ridden nor did I feel debilitated. Most of my activities (household and work) were not halted. My husband has zero lingering effects from his infection, meanwhile I am still experiencing chills, headaches, fatigue, and body aches on and off weekly. Additionally, I'm undergoing testing for heart valve issues. It's becoming increasingly difficult to tolerate these lasting symptoms with no end in sight. Any suggestions/tips to aid in a faster recovery would be welcomed and very much appreciated.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Merry, Alumni Mentor | @merpreb | May 25, 2021
In reply to @sueinmn "Osteopaths (one of my past PCPs was also one) focus on the interconnectedness of the body..." + (show)
@sueinmn

Osteopaths (one of my past PCPs was also one) focus on the interconnectedness of the body systems. In a very simple example, you get less of the "let's fix this limp" and more of the "let's figure out why you limp" - or in my case - "let's figure out where this pain is radiating from" - which was miraculous. The previous PT kept telling me I just needed stronger muscles, this guy got my neck to move so we could strengthen the muscles.
Sue

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Sounds wonderful. I know that a lot of handouts that I have received have been given to everyone. It's nice to know that there are PT's who can think on their feet.

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mjay8 | @mjay8 | May 25, 2021
In reply to @merpreb "@mjay8- Welcome to Mayo Clinic Connect. It looks as if you've had a very, very rough..." + (show)
@merpreb

@mjay8- Welcome to Mayo Clinic Connect. It looks as if you've had a very, very rough time for over a year. You said that you weren't tested early on. Have you since been tested for COVID-19? Did the blood work that you had show any signs of COVID-19? Or for any other illness? Before COVID had you ever had any symptoms like the ones that you have recently suffered?

POTS can be diagnosed using the title-table-test. I strongly suggest that you have this test.
https://my.clevelandclinic.org/health/diagnostics/17043-tilt-table-test

This is a very thorough discussion about COPS and how you can get help. There are also medications that can help:
https://my.clevelandclinic.org/health/diseases/16560-postural-orthostatic-tachycardia-syndrome-pots

Some people who have had COVID-19 have reported that their symptoms lessen after having the vaccine. So this is a good thing.

I also recommend that you contacting VAERS with your symptoms and seek out any help that they can give you.

How to report to VAERSYou can report to VAERS online at https://vaers.hhs.gov/index. For further assistance reporting to VAERS, visit https://vaers.hhs.gov/index or contact VAERS directly at info@VAERS.org or 1-800-822-7967.

Also, you can access Survivor Corps
https://www.survivorcorps.com

Survivor Corps is one of the largest and fastest-growing grassroots movements connecting, supporting, educating, motivating, and mobilizing COVID-19 Survivors. They will help with post covid-care

Merry

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Thank you very much, I have no idea why none of my doctors ever requested any blood work specifically for COVID, even though I have been telling three different doctors since September of all of my symptoms. They seem to be baffled and think it was "flu" like symptoms as far as my chart said or listed merely "headaches" without listing any other symptoms that I wrote down and discussed. I am exhausted and feel as if the doctors where I am simply say this is all new to them and research is only beginning. I know it is new to us all, so true, I am just exhausted and feel a lack of support I suppose? Thank you so very, very much! I appreciate you.

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1 reply
Merry, Alumni Mentor | @merpreb | May 26, 2021
In reply to @mjay8 "Thank you very much, I have no idea why none of my doctors ever requested any..." + (show)
@mjay8

Thank you very much, I have no idea why none of my doctors ever requested any blood work specifically for COVID, even though I have been telling three different doctors since September of all of my symptoms. They seem to be baffled and think it was "flu" like symptoms as far as my chart said or listed merely "headaches" without listing any other symptoms that I wrote down and discussed. I am exhausted and feel as if the doctors where I am simply say this is all new to them and research is only beginning. I know it is new to us all, so true, I am just exhausted and feel a lack of support I suppose? Thank you so very, very much! I appreciate you.

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Is it possible for you to get tested by yourself? I always went to CVS.

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kcartier | @kcartier | May 26, 2021
In reply to @amandajro "Hello @kcartier and welcome to Mayo Clinic Connect. I am sorry to hear of your lingering..." + (show)
@amandajro

Hello @kcartier and welcome to Mayo Clinic Connect. I am sorry to hear of your lingering COVID-19 symptoms after your hospitalization. I think it would be reasonable to consult with your doctor and/or pharmacist to see if they feel that any medications may need review. Have you reached out to see if that is possible?

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Thank you for your reply, yes I have and they don’t know. Seems nobody really knows. I am going to the Mayo recovery Clinic in June! Praying they can figure this all out.

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1 reply
Moderator
Amanda Roe | @amandajro | May 27, 2021
In reply to @kcartier "Thank you for your reply, yes I have and they don’t know. Seems nobody really knows...." + (show)
@kcartier

Thank you for your reply, yes I have and they don’t know. Seems nobody really knows. I am going to the Mayo recovery Clinic in June! Praying they can figure this all out.

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That is fantastic news! Will you please share updates once you get started in June?

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leerizz | @leerizz | May 28, 2021

Well, diet is so important I feel confident you already are well aware of this. My suggestion with the hope that this will help, is to limit meat products and dairy. Purchase a bottle of Pedialyte because of the electrolytes preferably the organic. Amino acids in pill form from Blue Bonnet or another brand may help with energy levels. Also environmentally clean air is important purchase a quality air filtration unit such as Air Doctor. I
May you continue to improve. Blessings.

L.R.

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rebalancemassage | @rebalancemassage | Jun 5, 2021

So I had to get an antibody test in order to be part of the clinic at Albany Med. I tested positive so that's good! But my first appointment isn't until September 7th! Apparently the doctor in charge did an interview on our local news and they got bombarded with applicants!

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judyh147 | @judyh147 | Jun 15, 2021
In reply to @merpreb "@rebalancemassage- I would also like to welcome you to Mayo Clinic Connect. Long Haulers have a..." + (show)
@merpreb

@rebalancemassage- I would also like to welcome you to Mayo Clinic Connect. Long Haulers have a very tough time. But there are clinics popping up all over the country to help. This is yours:

https://www.survivorcorps.com/pccc-ny

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i am looking for help near petersburg va

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2 replies
Mentor
Sue, Volunteer Mentor | @sueinmn | Jun 15, 2021
In reply to @judyh147 "i am looking for help near petersburg va" + (show)
@judyh147

i am looking for help near petersburg va

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Not at my pc today so I can't look it up for you, but you can try this link:
https://www.survivorcorps.com/
Sue

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Moderator
Amanda Roe | @amandajro | Jun 16, 2021
In reply to @judyh147 "i am looking for help near petersburg va" + (show)
@judyh147

i am looking for help near petersburg va

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Hello @judyh147 and welcome to Mayo Clinic Connect. I see that @sueinmn has replied to you with a link to Survivor Corps.

Are you willing to share a little more about your experience so others may be able to offer you support and connection? How long have you had long-haul symptoms and when did you get COVID?

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