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Long COVID providers/specialists?
Hello! I’ve been trying to find a provider that specializes (or has a good understanding of the research) in Long COVID or post viral symptoms. So far all I can find are long covid clinics that seem to be geared more towards rehab after the acute phase of the illness. I’m open to nationwide telehealth options or local options in the state of MN. Any ideas would be greatly appreciated. I’ve been struggling since 2021 and none of my providers seem to know how to help. Thanks and prayers to everyone managing this odd and debilitating chronic illness. You aren’t alone!
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@caldiana13 I’m a 91 yr old lady. And now with LC, I’m glad I
Can get up to do natures calling, much less flying around USaa trying to find help
@alicia04101940 join the Club
“ scratching head questioning” Club
@kyrazpollet I discovered this website today and it has a lot of helpful information. The biggest shock I got from it was that there are 23 million documented cases of LC in the US. Twenty three million.......documented! How many more of us are there that are NOT documented?
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1 Reaction@alicia04101940 I have had LC for two years and have read comments from others who have had it for 5+ years. There is just no way to tell you what to expect because the situation seems to change almost daily. The best I can figure is that LC attacks different parts or systems or glands within the body. The symptoms can show up right away....or they may not show up for months or even years. It's almost like a time-released attack on the body.
I'm 2 years in and started losing my hair about 6 months ago. Determined research turned up a shampoo that has stopped that. Three weeks ago, I noticed that my toes ache and then go numb when I lay down at night. No answers to that yet. God only knows what will show up next for me to deal with.
The thing to keep in mind is not to tackle ALL of the symptoms at once, but to tackle one at a time. Otherwise, you will become overwhelmed and discouraged. Find forums like this one where you can talk to others who are suffering as you are. Share symptoms, solutions or just shed a tear when you need to. You are not alone and we must work together to get through this physically and emotionally. You can find helpful sites through Youtube and Rumble as well. Just don't give up! ❤ 🙏
@kyrazpollet
It seems to me that there are an astounding number of long COVID cases, but doctors don't know what to do because there are, at this point, no definitive treatments for Long-COVID. W/o a treatment to offer, there isn't much the medical community can do. As research on Long-COVID continues, hope continues that there will someday be a treatment for it. I've had it since spring of 2023.
There does seem to be a genetic component involved, or at least a genetic component involved in who gets it. Both my daughter and I have had what was termed Chronic Fatigue long before the pandemic and then we both got COVID. She did not get Long-COVID, but I did. I am slowly recovering. I continue to have two main symptoms; I require 10 to 12 hours of sleep at night, and I can't smell or taste much of anything. Both symptoms are ones I can manage with.
Do take good care of yourself, get whatever help you and your family can afford. You have my very best wishes. No it isn't fair, I agree!
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3 ReactionsWow! You can sleep? I take a sleep pill plus now have discovered CBD. So I’m happy if I have 4 hrs
Of straight sleep. My Covid infection turned out now to be Long Covid.
I’ve found the book, “Invisible No More: Embracing Your Road to Recovery from Long Covid and Other Complex Chronic Illnesses” by Ilene Sue Ruhoy, MD, PhD to be a helpful resource. It covers many potential aspects of healing (meds, sleep, nutrition, advocacy, autonomic dysfunction, therapy, trauma, mindfulness, limiting environmental exposures) to consider. She is careful to avoid recommending a 1-size-fits-all plan, and she encourages folks to find an engaged and knowledgeable clinican (which is not easy) who will partner with you to develop an individualized plan with traditional and integrative approaches. She is clear that healing takes time and isn’t quick or easy. It may be worth a look while you’re searching — I got it from my local library.
I had to finally pay for a concierge/direct pay doctor to get any help. She had enough time to collect my symptoms and call a Long COVID specialist (practice is full) for me. We worked through the list of recommendations until we hit Low Dose Naltrexone which has given me some of my life back.
Concierge docs are doctors that you pay a monthly fee to. Ours does not charge us for office visits or phone calls or the blood draws she does in the office. She is on call so I can get feedback on strange LC symptoms when they arise. I can easily get same day or next day appointments...and long appointments up to one hour if needed. She does run $200 a month but is well worth it for me.
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3 Reactions@ksblonde The reality is most Drs are not educated enough to understand the reality. Long COVID is there with symptoms that are not seeming realted . Well reality is Your immune system is actually overactive which is causing all the symptoms to get worse come on out of nowhere etc what the body is doing is Looking for what it know is left particles of COVID 19 the original and or variants. I know this as I suffer Long covid myself. So I was diagnosed with Myalgic Enchephlimitis and Chronic Fatigue Syndrome then Long Covid on top of it all in 2020 late that year. Unfortunately you will have no choice but to do your own medical research or pay more than most of us not able to finish our lives out working like we have been / I am 49 yrs old start my first job at 11 yrs old. It has lowered my husband and mines ability to pay for treatment.
1. All Covid 19 and variants have mold symptoms for most which is how it hides inside other cells for so long which is why the human Body ends up overactive immune trying to kill the remnants left of it .
If you get the flu, a fever blister, any other ailments your body will get weaker and weaker many of use suffer Cytokine storms in our bodies lungs
Go to Academia. Edu and type in Long covid etc and you will find help NAc and NAD shots or Iv help Alot and HBOT Hyperberic chamber 02 Alot along with anti inflammatory natural medicine. Etc
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4 Reactions@bgpage Thank you so much. Great information!
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