Long COVID providers/specialists?

I understand, but my weirdness is very different and usually arises from my sense of humor. 🤓

Furthermore I wouldn't be too sure that "whole body inflammation" is the "main driver" of LC.
That may be true for some sufferers, but other potential causes are viral persistence,
latent viral reactivation, and autoimmunity, amongst many other proposed causes.
See, for example, https://www.yalemedicine.org/news/the-long-covid-puzzle-autoimmunity-inflammation-and-other-possible-causes

Again, the most striking single feature of this syndrome is its variability, both in terms of symptoms, as well as, likely, its causes.
One has to avoid jumping to firm, yet at this point, unfounded conclusions.

My pet theory, of course, involves space aliens.

My son started seeing Dr. Araki at M Health Fairview (endocrinology). She is knowledgeable about pituitary dysfunction in long-covid and has been leading a study on this topic since 2022. I would highly recommend her if you have any sort of hormonal or fatigue symptoms.

And here is yet ANOTHER theory about the cause of LC: pituitary dysfunction!
I really think that the various experts in their fields of medical expertise tend to view the disease through their respective lenses, and come up with theories that arise from them.
This disease is so multifarious, and throws so many systems out of whack with many of us, that it's difficult to distinguish cause from effect.
I don't mean any disrespect to that quite distinguished and well-published doctor, but I am skeptical that this will lead to broad applicability to many patients, even though hormonal changes are sometimes a symptom.
Well, at least she's paying attention to the illness, so she certainly deserves credit for that.

We all need a little levity now and then with this thing. 😁🙏🏼

I went to Mayo in Jacksonville at the end of 2024. Have had LC for 1.5 yrs. At that time they believed LC is a neurological problem and basically gave you several things to try for symptoms but they really had no answers. Everyone there was nice but zero progress.

Hello. I've had LC for over 2 years now and have tried several dietary and lifestyle changes with very little effect. The biggest positive change I've experienced in regards to daily debilitating pounding headaches is twice daily use of a Antihistamine nasal spray as well as Flonase, which is a steroid.

I'm right there with you on this matter! Hard to find a specialist for Long Covid and its effect on our lives. Everything changed 3 years ago after a nasty near death Covid experience. My local docs have no interest.
So frustrating.

I’d like to try to help you, but what are your symptoms from Long Covid?

@bermuda8 that’s pretty much my experience from Mayo Rochester September 2023. I had hoped they had evolved but looks like maybe not.