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Long COVID providers/specialists?
Hello! I’ve been trying to find a provider that specializes (or has a good understanding of the research) in Long COVID or post viral symptoms. So far all I can find are long covid clinics that seem to be geared more towards rehab after the acute phase of the illness. I’m open to nationwide telehealth options or local options in the state of MN. Any ideas would be greatly appreciated. I’ve been struggling since 2021 and none of my providers seem to know how to help. Thanks and prayers to everyone managing this odd and debilitating chronic illness. You aren’t alone!
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Do you have taste and smell? I’m going on 4 years of not tasting food and it is very discouraging and depressing. I have not found any doctors or specialists offering any assistance at all.
I had none for at least two years and gradually it came back. Just last month my appetite started coming back which was huge for me. One thing I did for smell was sniffing essential oils. Not sure if that helped or if it was a matter of time but thought I’d mention it. Praying yours comes back- it’s hard to imagine how important taste and smell are until they’re done. I have hope that overtime yours will come back too.
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2 ReactionsWith God all things are possible. 🙏
Vanderbilt University has a Long Covid clinic. My first contact with them was through telehealth. Since then I’ve been through PT, and consults with cardiology, gastroenterology, speech-language therapy, neurology and rheumatology.
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2 ReactionsI tried multiple times to get an appointment at Mayo in Minnesota and also Florida, but was turned down each time. I went to numerous others in my general area with no improvement. Finally I went to Cleveland Clinic and have had appointments with 4 different doctors. I really like Cleveland Clinic because the take the time to listen and refer to me to other doctors if necessary. I have been referred to one doctor that specializes in natural medicine (which I have often not believed in), but he has prescribed me on different medications and now some more natural products to reduce inflammation. I am starting to feel a bit better and am so happy about it since I have suffered with dizziness for over 5 years. His name is Dr. Umeda.
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3 ReactionsI really think that "terminal" is overstating things and, arguably, alarmist!
The term of this disease, along with its symptoms, is highly variable amongst individuals.
Let's not jump to depressing conclusions, please.
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2 ReactionsI have consoled a friend going through this for 4 years and his condition has improved to where it is much more manageable. I would be interested in how many here or anyone they know have experienced relief and to what extent and if they'd attribute it to anything the've done or "Long Covid" just running its course and one's own system overcoming it.
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3 ReactionsFair enough. That was not my intention of course. The comment was made based on the whole body inflamation that is now know to be the main driver of this disease. It will affect individuals differently over their lifetime. Hopefully a cure at some point or a major advance in treatment. Good luck to us all.
I’m just happy to see that Long Covid is becoming recognized as an illness/condition, rather than as a mental illness of “weird” people.
suef
Well said, but at the same time, I reserve my right to both have Long Covid AND be weird!
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