Long Covid + getting more boosters- any reputable info out there?

Posted by ericy210 @ericy210, Sep 21, 2022

I had the two Moderna shots and one booster. Got Covid in May and have been suffering with neurological long Covid issues. Lots of neurological studies and appointments for me.
Now I wonder if I should get a new booster. Would it help? Is it safe? Will it help or worsen my condition?
Anybody seen any reputable studies or articles addressing this? I’ll be asking my own doctor too. Just don’t know what to do!

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@94andhealthy

When I was ready for my second Phizer booster shot I came down with covid for the first time. I have long covid symptons and asked the pharmacist what he thought about taking the second booster. . He said he would not take the second booster. My son, an MD researched the question and said I was 10% likely to have a side effect. Now I am looking for a third opinion from my internest. Will let you know what I decide.

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I received my third opinion from my internest which was take the flue shot and the 2nd covid booster but be sure to allow two weeks between them. That's what I am doing. HMS

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@94andhealthy

I received my third opinion from my internest which was take the flue shot and the 2nd covid booster but be sure to allow two weeks between them. That's what I am doing. HMS

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I just received my 2nd booster and flu vaccine on Friday night. So far, so good. Just had mild issues as I did with my three previous Moderna Covid shots.

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I was at UIC this week, which works with Mayo and Harvard in long Covid studies. It was my six month check in as a member of their clinical program.
I asked if they have a recommendation on long Covid people getting a booster. They said no, since no research has been done anywhere. The said most study participants plan not to get boosted.
My brain and my blood work from the visit is still messed up. I guess the choice is mine, with science to support it, I think I’ll pass because I don’t want to further screw me up.

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FYI-I had my first booster 2 weeks ago plus the flu shot. My dizziness has remained the same. So the booster did not make anything worse. (Was hoping by some small miracle it would help my dizziness.)

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@ericy210

I was at UIC this week, which works with Mayo and Harvard in long Covid studies. It was my six month check in as a member of their clinical program.
I asked if they have a recommendation on long Covid people getting a booster. They said no, since no research has been done anywhere. The said most study participants plan not to get boosted.
My brain and my blood work from the visit is still messed up. I guess the choice is mine, with science to support it, I think I’ll pass because I don’t want to further screw me up.

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Because of the issues I have with Long Covid the last three doctors I have seen don't think its a good idea, but it is up to me. I will refrain from getting any booster at this time.

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@frking

Because of the issues I have with Long Covid the last three doctors I have seen don't think its a good idea, but it is up to me. I will refrain from getting any booster at this time.

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I agree. It’s up to me. I know I have symptoms and my blood work came back screwy.
Based on my experience with long Covid and seeing where my brain is at, my decision as of today is to take the risk of getting Covid again and hope it doesn’t make my long Covid worse.

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It’s such a dilemma trying to figure out what is best for us since we all have different experiences, different symptoms, not to mention conflicting information, bad information or no information. Yikes! I’ve had long covid since 3/20, mostly now with my lungs and fatigue. The second vaccine and first booster brought a lot of the old symptoms back and lasted for 3 months, especially the neuro ones, headaches and fatigue. I just today decided to get the third bivalent booster this weekend after swearing up and down I’d never get another one. It was a gut wrenching decision but I got sick with a lung infection all this past summer until recently and I’m concerned if I catch covid again, it’ll do me in good! It’s definitely a difficult decision and I admit I’m scared but I got pneumonia 6 months into covid and it took over a year to even feel a little better. I got a flu vaccine last week but I personally wouldn’t get a covid booster and a flu vaccine together unless I had a good immune system and wasn’t inclined to get sick. I also think it’s good to space them out as not to induce too much more chaos in my already confused body. Tough tough decision folks. I hope we have some good living left to do because this isn’t easy, is it?

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I'd be interested in finding out what your doctor says . I suffer from small nerve neuropathy because of long covid along with other side effects let us know what you find out.

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@auntb65

FYI-I had my first booster 2 weeks ago plus the flu shot. My dizziness has remained the same. So the booster did not make anything worse. (Was hoping by some small miracle it would help my dizziness.)

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Have you tried Physical Therapy for your dizziness? It has helped mine alot.
Good Luck!

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@smd0109

Have you tried Physical Therapy for your dizziness? It has helped mine alot.
Good Luck!

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Yes I have. Didn’t help at all. But thank you for the comment.

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