← Return to Long Covid brain fog fatigue and balance

Discussion
Comment receiving replies
Profile picture for onpainsufferer @onpainsufferer

Thanks for so many responses. I wasn’t expecting :). It’s not all in my head, you should see the lab diagnostics of my gut, liver, blood, pancreas….its scary!

I’m was already on some pre and probiotics and eliminating previous medications that helped for a time, then lost efficacy. I’m now on a slow build up of low dose naltrexone (LDN) given the neuro-inflammation component is probably the most serious in my case. I believe this is the first step to getting better and not being disabled. I miss being able to drive a car, or even going for a walk in the park without fear of falling. Or read a book or watch television and not forgot part way through what I was doing! The brain fog and short-term memory deficits are the worst part. Sometime i feel like the leaky gut that my labs showed is also a leaky brain!

Not sure I’d continued fighting for answers and finding better medical care if I thought I couldn’t find a cure long-term. I’m also trying to stay on top of all the clinical trials and other PACS related medical research for my specific issues. For instance, I always thought my dizziness was related to the migraines. But my new doctors have explained the impact of high variations in blood pressure and heart rate. I now realize those sudden changes are at least partially responsible for the constant dizziness and falls. Plus the neuro-inflammation makes it hard to recovered from injuries related to the falls!

Right now I have two objectives. The first is to get reasonably well. The second is to use my technology (think AI) and healthcare background to build a large non-profit to help others with Long-COVID and Post Covid Vaccine injuries. The latter keeps me going. I lost a year because doctors missed biomarkers in my tests and could have diagnose me much earlier. The medical community needs to be better informed and armed to help us. That is what gets me out of bed in the morning.

Jump to this post


Replies to "Thanks for so many responses. I wasn’t expecting :). It’s not all in my head, you..."

@onpainsufferer sounds like you are on the right track by recognizing you have at least 2 underlying issues that can cause dizziness & memory problems: the autoimmune inflammation & blood pressure/palpitations. Add to that, leaky gut results in malnutrition, another possible source of your symptoms. Maybe focus on the more manageable blood pressure/palpitations & see if that helps with any symptoms. Meanwhile, there are lifestyle changes that may help calm down your COVID-triggered immune system. Hang in there!