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Living with Parkinson's Disease - Meet others & come say hi
Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.
Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
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My husband takes 2carvidopa-levadopa 4 time a day and and carb/leva extended release at night. 2ammantadine with carb/leva 1st thing in am.
We’re going to try rasagiline. He had good results before but had to stop because of an operation.
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1 ReactionMy husband has Parkinson’s. He is currently taking Trihexyphen 2mg. He takes 1 pill twice a day. He feels his tremors are getting worse and is considering focused ultrasound. His speech has gotten soft and he can’t stand for long and can’t walk very far. I’m happy to be part of this group.
Pat
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3 ReactionsHello @morgan50 and welcome to the Parkinson's Support Group on Mayo Connect. I am glad that you found this group and I'm looking forward to getting to know you.
As this is your first post, share if you would something about your current treatment for PD. For example, have medications been prescribed, have you been involved in physical therapy or another exercise program?
I am looking forward to being with this group. I am 74 and diagnosed this past year with Parkinson's. I have leg and hand tremors, soft speech and difficult movement. I am married and my husband is very helpful. Will be keeping in touch. Thanks
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4 ReactionsOf the three tests
Mentioned my best suggestion to you is to get the DAT scan. And maybe even in a brain MRI that will tell you whether you have any dementia or anything going on. Perhaps that’s why the doctor wants to do the EEG and the CT scan I don’t know, but I would suggest getting that scan. The DAT scan telsl you which side of your brain is affected by Parkinson’s as well show how much dopamine your brain has left
I went to the Neurologist for the first time last week to discuss my symptoms. The doctor wants me to submit to a series of tests: EEG, CT Scan and a Datscan (which seems really long and invasive, and in any case is expensive). My question is: What is the point?? Isn't the treatment for a new Parkinson's patient somewhat standard? I would rather be treated than tested.
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1 ReactionDo you know the possible adverse effects of focused ultrasound treatment on vision?
Hola lagiaconda decaimiento quiere decit cansado, falta de energia, sentirse debil me siento asi despues que tomo la carvidopa levodopa espero te vaya bien con tu tratamiento. Gracias
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Buenos días, Evita.
Hablo español pero me falta mucho vocabulario. ¿Qué quieres decir con "decaimiento"? No sé si la traducción al inglés es correcta aquí "decay". A mí me detectaron Parkinson's al principio de marzo 2024. Estoy navegando, manejando e investigando la enfermedad. Gracias.
Tiene ammantadine con carvidopa levodopa?. o rasageline?