← Return to Living with Parkinson's Disease - Meet others & come say hi

Discussion
Comment receiving replies
Profile picture for 139108 @139108

I am new to this forum but was diagnosed about five years ago. My first, regular neurologist as a disaster who gave me no information, expected me to make uninformed decisions, and laughed off PD symptoms--literally! Since then I have seen movement disorder specialists who have been attentive, knowlegable, supportive and great. (Three in all--first one moved, switched sites between second and third due to transportation issues.) They have all been great and I highly recommend that level of care. My progression has been slow and on the whole everything is managable. One thing I have not asked about--I worry that at some point progression will surge. Is there any way to predict that? Is a slower progression likely to stay slow, likely to surge, or who knows?

Jump to this post


Replies to "I am new to this forum but was diagnosed about five years ago. My first, regular..."

@139108
If I'm understanding it correct it seems like everyone with PD has very different problems and responds to treatment on their own levels.

Hello @139108, and welcome to the PD support group! I'm glad to hear that you found some good movement disorder specialists. That is important! I'm not sure about the answer to your question about progression being slow or surging. I can only share my experience, which has been slow without a lot of disability.

I've found that exercise is key to maintaining strength and flexibility. Here is a link to an article about the value of exercise in treating PD from the Parkinson's Foundation website:
https://www.parkinson.org/living-with-parkinsons/treatment/exercise