Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Yes. We are not crazy!!!! Pressure matters. What about altitude? I live half the time in the mountains at 6000 feet and the rest if my time at 0 feet on the Mississippi River. Beautiful locales but sea level seems less hospitable. And the plane ride leaves me really pain pooped. Takes a day or so to get my body and all it's tissues, membranes and fibers adjusted. Any one else have effects from altitude change?

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Hi Chris (@artscaping), I'm fortunate (if you can call it that). I only have numbness and not pain with my neuropathy. I also have polymyalgia rheumatica which does give me a lot of pain in the shoulders, arms and hands. I really notice it gets worse when the weather changes - gets really hot or cold. I'm on my second occurrence of the PMR. It went away for 6 years and then came back last year. My stress reliever is my Canon Powershot SX50 HS with 50x optical zoom. I set it up on a tripod looking out the window next to my computer. Last year a setup a bird feeder about 20 feet from the house so I could take photos. So when I'm daydreaming it's part of my routine to look for interesting shots through the window. It fills in the voids in between customer calls and slow days since I work from home as the local telco Internet help desk.

Beatiful Summer day here in Southern Minnesota - especially if you have a/c and you're inside :-).

John

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@johnbishop

Hi Chris (@artscaping), I'm fortunate (if you can call it that). I only have numbness and not pain with my neuropathy. I also have polymyalgia rheumatica which does give me a lot of pain in the shoulders, arms and hands. I really notice it gets worse when the weather changes - gets really hot or cold. I'm on my second occurrence of the PMR. It went away for 6 years and then came back last year. My stress reliever is my Canon Powershot SX50 HS with 50x optical zoom. I set it up on a tripod looking out the window next to my computer. Last year a setup a bird feeder about 20 feet from the house so I could take photos. So when I'm daydreaming it's part of my routine to look for interesting shots through the window. It fills in the voids in between customer calls and slow days since I work from home as the local telco Internet help desk.

Beatiful Summer day here in Southern Minnesota - especially if you have a/c and you're inside :-).

John

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How beautiful. Do you have a page or site for your photos. Yes in one way you are lucky not to have to deal with neuropathy pain. The other thing that happens with the small fiber stuff is dehydration--not enough moisture being carried by those tiny fibers. So dry eyes, mouth, skin, etc. what do you do for that if you experience it? Being in higher humidity in MN helps the eyes. We have a smorgasbord bird feeder, Our hummingbirds follow us around when we have the feeder in our hand. And I am always feeding a chipmunk or two right friom my hand. Interesting at home work you have. I am the Mkt Director for our community center. Also on the design team. A bit too much sometimes. Don't do well at long meetings. Please stay in touch. I will be heading back to MN in September. Currently in the San Jacinto Mts if CA.

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@artscaping Barometric pressure has become a beastly burden...Doppler is always behind. Back to escaping into my art.

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@johnbishop Beware those House Finches as they are voracious and greedy. Great shot of a young Cardinal. Off topic again...name this delightful backyard bird.

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@johnbishop

Hi Chris (@artscaping), I'm fortunate (if you can call it that). I only have numbness and not pain with my neuropathy. I also have polymyalgia rheumatica which does give me a lot of pain in the shoulders, arms and hands. I really notice it gets worse when the weather changes - gets really hot or cold. I'm on my second occurrence of the PMR. It went away for 6 years and then came back last year. My stress reliever is my Canon Powershot SX50 HS with 50x optical zoom. I set it up on a tripod looking out the window next to my computer. Last year a setup a bird feeder about 20 feet from the house so I could take photos. So when I'm daydreaming it's part of my routine to look for interesting shots through the window. It fills in the voids in between customer calls and slow days since I work from home as the local telco Internet help desk.

Beatiful Summer day here in Southern Minnesota - especially if you have a/c and you're inside :-).

John

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San Jacinto Mountains are beautiful. I grew up in San Bernardino. That tram ride up the mountain from outside of Palm Springs (can't remember exactly it's been so long) is awesome - from 100+ degrees at the bottom to the 60s when you get to the top. I took my wife up there after I got out of the Navy to do some sightseeing.

I do have the dry skin on my legs, feet, arms and hands. I've been using O'Keeffe's Working Hands for my hands since it doesn't feel greasy. I have been using Life-flo Magnesium Lotion for my feet and legs. I have issues with my eyes also - seems hard to focus sometimes. I got new glasses this year and got an extra set of fixed distance ones for the computer but still have trouble sometimes. I'm guessing it could related to dry eyes. I did buy some eye drops that didn't have any chemicals in them for a lubricant but I can't really tell if it helps so I just plod along and take more breaks ☺.

I've put a few up on my Instagram account (reala2g2) but I don't use it very much. I've been trying to catch a hummingbird photo but haven't had the camera ready when I've seen them and they don't stick around long enough. I've got hummingbird feeder in my front yard and have occasionally seen one but the camera is always downstairs on the tripod. That's pretty awesome to have them following you around with the feeder in your hands.

John

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@artscaping "Pain pooped"-delightful pictorial. Thanks for the chuckle. Back to the paintbrushes woman!!

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@parus

@johnbishop Beware those House Finches as they are voracious and greedy. Great shot of a young Cardinal. Off topic again...name this delightful backyard bird.

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Nice photo @parus ! - Looks like a Downey Woodpecker.

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@mfobrien36 Ha-Ha...I so enjoy folks w/ a sense of humor...it would go viral!!!!

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@penadr We ought to all get together and obliterate Doppler Radar...a thought from a living, breathing barometer that would that I could on those wearisome, painful days defy gravity.

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