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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@johnbishop

Hi Chris (@artscaping), I'm fortunate (if you can call it that). I only have numbness and not pain with my neuropathy. I also have polymyalgia rheumatica which does give me a lot of pain in the shoulders, arms and hands. I really notice it gets worse when the weather changes - gets really hot or cold. I'm on my second occurrence of the PMR. It went away for 6 years and then came back last year. My stress reliever is my Canon Powershot SX50 HS with 50x optical zoom. I set it up on a tripod looking out the window next to my computer. Last year a setup a bird feeder about 20 feet from the house so I could take photos. So when I'm daydreaming it's part of my routine to look for interesting shots through the window. It fills in the voids in between customer calls and slow days since I work from home as the local telco Internet help desk.

Beatiful Summer day here in Southern Minnesota - especially if you have a/c and you're inside :-).

John

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Replies to "Hi Chris (@artscaping), I'm fortunate (if you can call it that). I only have numbness and..."

How beautiful. Do you have a page or site for your photos. Yes in one way you are lucky not to have to deal with neuropathy pain. The other thing that happens with the small fiber stuff is dehydration--not enough moisture being carried by those tiny fibers. So dry eyes, mouth, skin, etc. what do you do for that if you experience it? Being in higher humidity in MN helps the eyes. We have a smorgasbord bird feeder, Our hummingbirds follow us around when we have the feeder in our hand. And I am always feeding a chipmunk or two right friom my hand. Interesting at home work you have. I am the Mkt Director for our community center. Also on the design team. A bit too much sometimes. Don't do well at long meetings. Please stay in touch. I will be heading back to MN in September. Currently in the San Jacinto Mts if CA.

San Jacinto Mountains are beautiful. I grew up in San Bernardino. That tram ride up the mountain from outside of Palm Springs (can't remember exactly it's been so long) is awesome - from 100+ degrees at the bottom to the 60s when you get to the top. I took my wife up there after I got out of the Navy to do some sightseeing.

I do have the dry skin on my legs, feet, arms and hands. I've been using O'Keeffe's Working Hands for my hands since it doesn't feel greasy. I have been using Life-flo Magnesium Lotion for my feet and legs. I have issues with my eyes also - seems hard to focus sometimes. I got new glasses this year and got an extra set of fixed distance ones for the computer but still have trouble sometimes. I'm guessing it could related to dry eyes. I did buy some eye drops that didn't have any chemicals in them for a lubricant but I can't really tell if it helps so I just plod along and take more breaks ☺.

I've put a few up on my Instagram account (reala2g2) but I don't use it very much. I've been trying to catch a hummingbird photo but haven't had the camera ready when I've seen them and they don't stick around long enough. I've got hummingbird feeder in my front yard and have occasionally seen one but the camera is always downstairs on the tripod. That's pretty awesome to have them following you around with the feeder in your hands.

John

Good morning John,
Thanks so much for the info about skin moisturizers. I found them on Amazon. I use the Vanicream line of products for shampoo, body lotion, and heavy duty (Vaniply) stuff for face, eyelids and ears. Recommended by my dermatologist. Also found them at the Mayo Clinic store in Rochester. Sometimes I have to use some 1% hydrocortisone to clear up patches. Regarding the eyes.../resting them is good. Preservative free ointments and drops are good. I keep non preservative Refresh vials in the refrigerator....feels very cooling and soothing that way. I also use Restasis twice a day along with the heavy ointment. Takes about 15 minutes to absorb the ointment so that's a rest time. I am now getting yearly Lipiflow treatments to preserve the remaining oil glands under the lower eyelid. Once they dry up you are in big time trouble. And then there are the daily moist heated eye packs for the same purpose...another time to rest. It is quite the battle....but the options, including irreplaceable loss of cells on the eye just aren't attractive. My skin biopsy was .09 when it should be greater than 8.4. So....my tiny fibers are almost totally dried up, so to speak. And since they can't do the job they were designed to do, all they can do is send back pain signals or so my neurologist tells me.

And yes, the new tram is up and running to the top of Tahquitz peak. It holds more people and turns 360 as it rises. Quite the ride. Restaurant at the top isn't bad either. You can actually walk from the tram down into my village. Or at least I could do that years ago before a knee replacement. The mountains are green and beautiful this year with all of the rain last winter. I even have 5 apples on my tree. I have never had more than one for years of drought. The blue jays always got it before I could. I am attaching a pic of a juvenile oriole that became stunned when he hit the window on the deck in MN. We held it and sang to it for over an hour until he was strong enough to lift his wings and fly away.

I don't have an instagram account.....sorry.

Hi Chris, love the photo of the young oriole! I recently bought a big box of the Refresh vials but didn't think to put them in the fridge to cool them down. I'll have to give that a try. We did eat at the restaurant on top of the peak and we both enjoyed the food. The tram didn't turn 360 when we rode it. That would be fun to do again - will have to add it to my bucket list if we ever visit So Cal again.

I think Instagram is the meeting place for the younger generation. I had to try it for a social media class and I've got a few younger co-workers and friends that use it. I rarely use it.

John