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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@johnbishop

Hi @ashley302, I would like to add my welcome to Connect along with @jimhd and other members. Like Jim I also have idiopathic small fiber peripheral neuropathy and have had it for over 20+ years. I only have the numbness with my neuropathy and agree with Jim that it seems to affect each of us a little different and what works for one may not work for others. I take a protocol of vitamins and minerals which seems to have slowed or stopped my neuropathy progression but only time will tell. I shared what has helped me in my story earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985.

You are here asking questions and that is great. One of the best things you can do to help yourself is to learn as much as you can about your condition. Knowledge is power and will help you when discussing treatment options with doctors. There are some other discussions on Connect that you might find helpful.

> Groups > Neuropathy > Scientific research and scholarly papers on Small Fiber Neuropathy
-- https://connect.mayoclinic.org/discussion/scientific-research-and-scholarly-papers-on-small-fiber-neuropathy/

> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Are you able to share a little more about your symptoms? Do you have numbness along with pain? Is it just in your feet?

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Replies to "Hi @ashley302, I would like to add my welcome to Connect along with @jimhd and other..."

Hi John, Thank you for all your tips. I will take a look at all the information you've provided. I've tried many of things but willing to see if anything else may help.

My symptoms all started in my feet just tingling at first but now I have a lot of the burning pain and it seems like I'm having some discomfort in my lower legs now too. It's been almost 2 years and I don't want symptoms to progress.