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Living with MDS (Myelodyplastic Syndromes)

Posted by momz @momz, Sep 4, 2023

I finally got my answer to what I have and trying to wrap my mind around it.
I am an ovarian cancer survivor of 20 years and have MDS for the last 7
Currently on watch and hate to even say wait!! What is the longest someone has had with no treatments? And what was the reason for treatment when it was needed?

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Mentor
Lori, Volunteer Mentor | @loribmt | 20 hours ago
In reply to @jacklyn "I am blessed God put you in my life. You don’t know how much it means..." + (show)
@jacklyn

I am blessed God put you in my life. You don’t know how much it means to me to hear there are people doing well. You are also right about distracting myself. I worry more about my mental health and staying stable and free from anxiety. I lined up a few projects that
need to be done around the house. I live with my son and his 3 kids. Yep boys 5 and 6 and my granddaughter who graduated this year 16 and I was so happy I could attend. It so comforting to know I can reach out to you Lori. I feel now I just might be one of the lucky ones. I will just do my best and trust God. He got me this far.

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Hi Jacklyn. When dealing with my AML adventure 6 years ago I didn’t know a soul who was familiar with the treatment or outcome. I had great medical advice from doctors and my chemo nurses, but it’s not like being able to speak with someone who has actually walked the walk.
It’s so much easier to walk along an unfamiliar path if we have someone to help navigate or talk with as we face obstacles. So that’s why I’m here! I want others to know there is hope and will do my best to help make the journey easier. ☺️ I’m here for you anytime!

You have a great attitude with knowing it’s important to keep busy to help avoid anxiety and stress. Sounds like you have a lot of lively activity around you all the time and an awesome live-in support system. Kids will help keep you focused on what’s important, right? ☺️

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