You’re absolutely right about having to self-advocate. No one knows your body better than you do and when you sense something isn’t right, keep pushing until you find the answers. The self diagnosing…well, I think we’ve all been there. At least it gives us something to do between appointments. 😁

Having a 2nd opinion can be useful in confirming a diagnosis. It may also help you and your husband feel more confident with your current doctor and treatment plan, or point you into another direction. It sounds like you have a good doctor who’s willing to reach out to colleague for his opinion. I’ve always appreciated that collaborative approach that my doctors have taken for a consensus of opinions.

Please me know what you find out. How often do you have labs for follow-up?