Living with colorectal cancer - Meet others & come say hi

Welcome to the Colorectal Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with colorectal cancer or caring for someone with colorectal cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself?

@kanaazpereira

Hi @michelle74,

It doesn’t sound silly at all! When coping with any health setback, we tend to forget that it takes a toll not only on the body, but also our emotions and state of mind – and more often than not, the way we feel mentally, can play a huge role in the recovery process. I came across this great Mayo Clinic page about "Cancer survivors: Managing your emotions after cancer treatment” https://www.mayoclinic.org/diseases-conditions/cancer/in-depth/cancer-survivor/art-20047129
Take a look, I’d really like to hear back from you.

Jump to this post

thank you. wow, yes that sums up what's going on in my head right now.

REPLY
@travelgirl

@michelle74 To help with my stress I started going to the gym. Which i have taken off from doing the last 2 months UGH.. I need to get dressed right now and go.
Now is the Livestrong program offered in Canada? They offer a lot things for people with or who have had cancer. Like 12 weeks free exercise course with special cancer trained exercise Trainers. That really helped me last year..

That really helped rebuild my confidence and lowered my stress.

Here is there website..
https://www.livestrong.org/

Now everything I have read typically cecum cancer, is normally found in people in their 70 and 80's .

I never been tested for allergies but my kids have. My youngest son had problems with constipation as a child. But I was bad when I was young raising kids. The only time I would see the Dr is when I was put on a gurney. I despise going to the dr with a deep and utter passion. So I never went for anything. Now I took my kids all the time to see Dr's.. LOL.. But I seldom went. My kids were always sick so taking care of them more than I could handle at time. Between allergies, learning disabilities, broken bones, lacerated livers and numerous wipe outs on their bikes. There was no time for me.
Plus I ran my own store front company and took care of my Mom and Grandma.. Well let's just say my Stress had stress and that stress had stress and that stress had stress.

I was told a huge contributing factor in both my cancers was the combination of stress and something in my environment. I do not have lynch syndrome either.

Even with my Mom dying at 59 from Endometriosis cancer and one my Grandfather's from bladder cancer and the other from liver cancer.
Cancer does run in my family. But not that they can find as genetic mutation.

I think you are just going to be fine and don't have to worry I am just over 3 yrs and feel great.. Now if I could just loose the 15 pounds I gained through all of this stressing , I will be back to my old self. 🙂
Keep in touch..
Jackie

Jump to this post

I don't know about livestrong but i'm going to contact the canadian cancer society to find out! thanks for that!

REPLY

My name is Brett and I have Stage IV colon cancer. I am 34 years old. I was diagnosed 16 months ago. I’ve had over 25 rounds of chemo. I’m still working full time. Luckily. Living with cancer is tough. I’m lucky enough to have amazing wife/caregiver by my side. We are expecting our first child in June. When I was at my lowest of lows she was there to pick me up. I guess what I’m trying to say is I’m here fighting my ass off and I’m thankful for everyday. Everyday is truly a blessing. No matter how sick I am I find that guiding light. May you all continue to fight! Be strong!

REPLY

Hi Brett, I love your attitude! I also have stage 4 colon cancer. I was diagnosed as stage 2 in 2015 and had it spread to stage 4 in 2017. Luckily, I am currently NED and have been for about a year. Living with this disease is tough. I am 57 years olds though… I can’t imagine dealing with this at your age. Congrats on welcoming a little one to your life soon. We have to move on amd live life! There are so many success stories now for people with this disease.

REPLY
@brettb83

My name is Brett and I have Stage IV colon cancer. I am 34 years old. I was diagnosed 16 months ago. I’ve had over 25 rounds of chemo. I’m still working full time. Luckily. Living with cancer is tough. I’m lucky enough to have amazing wife/caregiver by my side. We are expecting our first child in June. When I was at my lowest of lows she was there to pick me up. I guess what I’m trying to say is I’m here fighting my ass off and I’m thankful for everyday. Everyday is truly a blessing. No matter how sick I am I find that guiding light. May you all continue to fight! Be strong!

Jump to this post

Hi Brett! You are amazing. Everyone needs this strong spirit. We got to fight. Be strong brave with positive. Praying for you and family. So glad to know that your wife is a great care giver. There are a lot of cancer survivors. My Mom is one of them. It is truly blessings. We are here to support everyone. keep fighting. Best wishes, Soul

REPLY

Hi. My name is David and I have stage 4 colon cancer

REPLY
@dgaravaglia

Hi. My name is David and I have stage 4 colon cancer

Jump to this post

Hi Dave! Welcome to the group! I just joined not long ago.. and I found the people on here very kind and helpful. I wish you all the best. I'm Michelle Ceacum Cancer Stage 2 T3. No chemo needed just surgery… I was very lucky. Have a great day.

REPLY

Hi im james im 47 yr old. Had colon cancer like7yrs. And would not go get checked.tell 3 yrs ago.cause did not want no bag on me. Was losing blood in stoll for yrs.as soon as eat always had to go to restroom. Finally got to were i was down to 95 lbs. And my red blood cell count went so low. Couldnt stay awake and had to have blood transfussion .with in 6 months had all my large intistine taking out.and stuck with bag for rest of my life. I did heating ac refrigeration all my life.cant do now. Cause of dehydration.and bending now. Dont wait to get checked. Time can save you from all problems i have. .was told my surgery was only going to be about 4 yrs and would be walking same day. And be hooked back up in 6 months to yr. My surgery was 12 hrs.didnt wake up to next day. Didnt walk for 2 wks and in hospital almost 2 months.. People dont wait. Testing can save you so much.yes wearing bag suxs. Wearing them for rest of your life is even worse. Going through depression and so so much more. And getting used to myself took so much. I didnt want to be around myself much less than around other people. Sleeping by my self. And feeling useless . after last 2 yrs. Figuring how to live has been something. To say the least .

REPLY

Hi james sockwell 48 yrs old

REPLY

@sockwelljames– Welcome to Mayo Connect cancer recurrence group. I'm sorry that you are having such a tough time with your bowel resections. I can't imagine the degree of patience you have to have to learn to live with this type of cancer and its indignities. I'm glad that you are on your way to better times.
You might be interested in the Colorectal Group and the Depression Group
> https://connect.mayoclinic.org/group/colorectal-cancer/
> https://connect.mayoclinic.org/group/depression-anxiety/

REPLY
@sockwelljames

Hi im james im 47 yr old. Had colon cancer like7yrs. And would not go get checked.tell 3 yrs ago.cause did not want no bag on me. Was losing blood in stoll for yrs.as soon as eat always had to go to restroom. Finally got to were i was down to 95 lbs. And my red blood cell count went so low. Couldnt stay awake and had to have blood transfussion .with in 6 months had all my large intistine taking out.and stuck with bag for rest of my life. I did heating ac refrigeration all my life.cant do now. Cause of dehydration.and bending now. Dont wait to get checked. Time can save you from all problems i have. .was told my surgery was only going to be about 4 yrs and would be walking same day. And be hooked back up in 6 months to yr. My surgery was 12 hrs.didnt wake up to next day. Didnt walk for 2 wks and in hospital almost 2 months.. People dont wait. Testing can save you so much.yes wearing bag suxs. Wearing them for rest of your life is even worse. Going through depression and so so much more. And getting used to myself took so much. I didnt want to be around myself much less than around other people. Sleeping by my self. And feeling useless . after last 2 yrs. Figuring how to live has been something. To say the least .

Jump to this post

I hope you are finally finding some peace and joy back in your life? I had rectal Cancer and suffering with LARS. everyday. I understand what you are going through. I hope you have a good support system in your life. I just found a Facebook site that is full of live, support,and knowledge. Best if luck to you!!

REPLY

Hi James, be strong, be positive and be patience. Please follow up with Mayo community and support for necessary action. You can get help and support connecting Mayo community. Best of luck. Take care
Best, Soul

REPLY

@brettb83 @sockwelljames @shilo @michelle74 @dgaravaglia @merpreb
Having been diagnosed with 2 cancers myself within 2 weeks time span. I completely understand the toll it takes on us mentally.
It takes some time to get through the initial SHOCK . I know I went into shock. I couldn't believe what I was being told. Especially since I had zero symptoms. It took a while o go through the Shock stage.
Then I went through the How could this happen stage? I went searching for answers. Thinking about everything I did in life, and everything I put in my mouth. Trying to figure out, what the hell, could I have done to cause me to get 2 cancers. I became obsessed searching for answers. I think I wore myself out doing this? I still have no answers just possible causes.
Then I went to the acceptance stage.Now what would be my best course, to keep these cancers under my control? Do I change my eating habits? Do I work out more? What can I change in my lifestyle to keep me non systematic?
This is the hardest stage for me. Cause I think about how I was before cancer ? I only had 2 bad habits Coffee, and an on and off smoker. I was always watching what I ate before cancer. I worked out 4 days a week. Lifted weights. I was not a junk food eater.
Going through these stages drains you mentally.
It has been slow going getting back to normal, Talking to others like me on Mayo Connect has helped me a lot to calm down. I think also time has helped me to realize I'm going to be Ok.
I try and do things that make me happy. .
Worrying and Stressing over the fact that I have Cancer is draining..
You need get involved go out be around people. Try and take walks and enjoy the little things in life.
I know I find myself doing things I never dreamed of.
Mayo Clinic describes what it takes to cure people.
It is called FAITH, AND HOPE WHICH EQUALS HEALING..
Without Faith there is No Hope and without Hope there are NO Cures to heal.
We all need to Keep Faith which give us Hope, and Hope will Heal us .
This will give us the ability to be Cancer Warriors, of which we already are.. 🙂
God Bless you All…
Jackie

REPLY
@travelgirl

@brettb83 @sockwelljames @shilo @michelle74 @dgaravaglia @merpreb
Having been diagnosed with 2 cancers myself within 2 weeks time span. I completely understand the toll it takes on us mentally.
It takes some time to get through the initial SHOCK . I know I went into shock. I couldn't believe what I was being told. Especially since I had zero symptoms. It took a while o go through the Shock stage.
Then I went through the How could this happen stage? I went searching for answers. Thinking about everything I did in life, and everything I put in my mouth. Trying to figure out, what the hell, could I have done to cause me to get 2 cancers. I became obsessed searching for answers. I think I wore myself out doing this? I still have no answers just possible causes.
Then I went to the acceptance stage.Now what would be my best course, to keep these cancers under my control? Do I change my eating habits? Do I work out more? What can I change in my lifestyle to keep me non systematic?
This is the hardest stage for me. Cause I think about how I was before cancer ? I only had 2 bad habits Coffee, and an on and off smoker. I was always watching what I ate before cancer. I worked out 4 days a week. Lifted weights. I was not a junk food eater.
Going through these stages drains you mentally.
It has been slow going getting back to normal, Talking to others like me on Mayo Connect has helped me a lot to calm down. I think also time has helped me to realize I'm going to be Ok.
I try and do things that make me happy. .
Worrying and Stressing over the fact that I have Cancer is draining..
You need get involved go out be around people. Try and take walks and enjoy the little things in life.
I know I find myself doing things I never dreamed of.
Mayo Clinic describes what it takes to cure people.
It is called FAITH, AND HOPE WHICH EQUALS HEALING..
Without Faith there is No Hope and without Hope there are NO Cures to heal.
We all need to Keep Faith which give us Hope, and Hope will Heal us .
This will give us the ability to be Cancer Warriors, of which we already are.. 🙂
God Bless you All…
Jackie

Jump to this post

Hi. I just try to live a normal life while dealing with chemo. I hate it and sometimes which that my cancer would take me . but I also know or pray that a cure or an easier way to deal with my cancer is reachable sometime soon. I pray that everyone could be helped and cancer as we know it would go away.

REPLY

Hi. Wonder if anyone know where someone could find out if a clinical trial is working and chances that it get expanded to multiple sites. Or when the fda would approve the treatment for everyone

REPLY
Please login or register to post a reply.