Living with colorectal cancer - Meet others & come say hi

Welcome to the Colorectal Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with colorectal cancer or caring for someone with colorectal cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself?

@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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Hello minabird, it is a good news indeed. See Miracles happened that the spot on the liver is nothing. Thank you for sharing this with us. Now, you may follow up with the procedure and focus on Laparoscopic procedure. You are in a good hand with the surgeons using Davinci robot. My mother had completed Lapascupic procedure only since there was no robot facilities in Bangkok, Thailand. We heard about surgeons using Davinci robot which is accurate and easier recovery. You are fortunate and it is a blessing that you have all the advanced equipments and support. I keep on praying for you. In the mean time, please be strong, eat well and build up more positive energy to move on. My mother was 78 years when she has laparoscopic surgery. She is now 80 years old and recovering well. Good luck minabird and please keep us posted. Wishing you all the best. Soul

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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Soul,
I have been scheduled for surgery on the 15th of this month. I am so hopeful and ready to do this. I feel I am in very good hands.so glad to hear that your Mom is recovering and doing well! So thankful for all of the supprt from the people in this group. It has made a difference in my life 🙂

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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Hi Minabird,
It has been only a few days since your surgery, so I don’t know if you’ll be checking emails. Just wanted to send a note that we’re thinking about you.

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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Hello Colleen,

Thank you for checking on me! I had a very successful resection surgery on the 15th. I am now at home recovering. They used the DaVinci robotic sssist and removed approx 12in of my colon. I do not have a colostomy bag and am progressing very well. They have sent off the mass (which was approx the size of a quarter) and the lymph nodes for pathology. I am so relieved to have the surgery behind me and am hopeful for good pathology results.

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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So good to hear, Mina. All the more reason to celebrate the holiday season. Were any dietary restrictions recommended to you?

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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Hello @minabird

I’m so glad to hear that your surgery went so well. I’ll also be hoping for good pathology reports for you.

Teresa

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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Dear Minabird, thank you for sharing your good news with us. I am so glad the surgery went well. I haven’t seen this DaVincci Robot yet. How amazing and advance the technology and medical equipments are. Did the surgery take long? You are so fortunate that you did not have a colonstomy bag. Can you walk now? The doctors suggested my Mom to walk 3-4 days after the surgery. My Mom has to be carful with the food. She has constipation time to time. But the doctor did not prescribe any medication. Wishing you a speedy recovery. All the best for the holidays season. Soul

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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I am 2 weeks post surgery and doing very well! My pathology report came back with wonderful results, surrounding tissue and lymph nodes are clear. This was my best Christmas gift!!! I am seeing an oncologist in a few weeks to see what he suggests for treatment if any.

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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I cannot say enough how wonderful the robot assures surgery went for me. It was a 5 hrs surgery and I was walking the next day. I am recovering so well, and have very few dietary restrictions. Plan to return to work on Tuesday, may go half days for a bit. Thanks so much for keeping in contact and hope all had a wonderful holiday!!

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Hi. I'm Ray from Fort Worth, Tx. Diagnosed in Dec 2010 with colorectal cancer. Underwent six weeks of radiation. Doctors said they killed it off. Three month CT and all's well. Six month CT and the camcer is back. Time for surgery and a osotomy! Sep 2011, sixteen hour surgery remove rectum, six inches of colon, and prostrate. Osotomy on left side of bellybutton. Sucks. 13 lymph nodes removed. One showed signs of cancer. MRI showed cancer spread to lungs. Nov 2011 started chemo for metastized colorectal cancer in my lungs. Have been on chemo every other week ever since, less a few "chemo breaks" now and then to let my body rest. Multiple nodules in both lungs. Cancer is rare. Less than 1% get it. Aggressive, rare, and no cure. CT scans every three months. Cancer grows 2 – 3 mm each scan. Luckily it's not spreading, just continues to grow. I'm on the last chemo known to help control it. I'm running out of options… and time. Really infuriating thinking money controls cancer cures. Hopefully I'm wrong, but when your days are numbered you start blaming, even God. I'm a Christian and know it's God's plan for all of us to be going through our ordeals. God loves us and never gives us more than we can handle. WE ARE ALL STRONG WARRIORS IN OUR FIGHT AGAINST CANCER. Maybe there's a purpose we have this disease. Hopefully someday it will reveal itself. I'm just glad it happened to me and not someone I love. I can handle it, just wish doctors could find a cure, or at least a way to stop it's growth. Blessings to you all.

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Welcome new members, @sherriehanna @mri8191 @ronaldrea @brenz and @ajknu, to the Colorectal Cancer group. I look forward to learning more about you and introducing you to other members. I invite you to start by posting a message to tell us a bit about you and what brings you to Mayo Clinic Connect.

Simply click VIEW & REPLY in the email notification and REPLY to this message.

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@rayleemorris

Hi. I'm Ray from Fort Worth, Tx. Diagnosed in Dec 2010 with colorectal cancer. Underwent six weeks of radiation. Doctors said they killed it off. Three month CT and all's well. Six month CT and the camcer is back. Time for surgery and a osotomy! Sep 2011, sixteen hour surgery remove rectum, six inches of colon, and prostrate. Osotomy on left side of bellybutton. Sucks. 13 lymph nodes removed. One showed signs of cancer. MRI showed cancer spread to lungs. Nov 2011 started chemo for metastized colorectal cancer in my lungs. Have been on chemo every other week ever since, less a few "chemo breaks" now and then to let my body rest. Multiple nodules in both lungs. Cancer is rare. Less than 1% get it. Aggressive, rare, and no cure. CT scans every three months. Cancer grows 2 – 3 mm each scan. Luckily it's not spreading, just continues to grow. I'm on the last chemo known to help control it. I'm running out of options… and time. Really infuriating thinking money controls cancer cures. Hopefully I'm wrong, but when your days are numbered you start blaming, even God. I'm a Christian and know it's God's plan for all of us to be going through our ordeals. God loves us and never gives us more than we can handle. WE ARE ALL STRONG WARRIORS IN OUR FIGHT AGAINST CANCER. Maybe there's a purpose we have this disease. Hopefully someday it will reveal itself. I'm just glad it happened to me and not someone I love. I can handle it, just wish doctors could find a cure, or at least a way to stop it's growth. Blessings to you all.

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Welcome @rayleemorris and thanks for sharing a bit of your story. Given you multi-year experience with an ostomy, I hope you'll provide tips and experiences with other ostomates in this discussion:
– Ostomy: Adapting to life after colostomy, ileostomy or urostomy https://connect.mayoclinic.org/discussion/ostomy-adapting-to-life-after-colostomy-ileostomy-or-urostomy/

What chemo "cocktail" are you on? What side effects do you find to be the most prevalent or challenging?

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I am glad to be a part of the group. My husband was diagnosed with stage 4 colon cancer 6 1/2 years ago. We have been fortunate to have great doctors who have been able to assist over these years. We look forward to hearing about the journies of others to hopefully help us and we hope we can help others.

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Hi, I’m new to the discussion group. I was diagnosed almost a year ago with stage 4 colon cancer with metastasis to the liver. I am currently receiving chemo therapy and glad to say, I only have 1treatment to go. Just wondering where do I go from here. My life has surely been different from what it has been, but needing to know how to stay on a good diet once the treatments are done? My appetite is not all that great at times, and l have only been able to eat certain foods. These foods have not been of a very healthy nature, but it’s what I could hold down. I also had breast cancer 5 years ago and underwent 30 rounds of radiation. Thank you in advance for your advice.

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Hi Missmary. My hubby had the same problem during chemo. He seemed to keep sweets down better than other things. He couldn’t eat fish any more during the chemo. He is back to eating it now. Our oncologist told us to eat whatever he liked with lots of water during the chemo week. My husbands next phase after chemo (because he had Mets to liver too) was to have his liver resected-both aides within 6 weeks of each other and the diseased piece of the colon taken out during that time. Hope this helps.

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