Living with colorectal cancer - Meet others & come say hi

Welcome to the Colorectal Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with colorectal cancer or caring for someone with colorectal cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself?

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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@minabird The waiting is the most difficult. I feel for you.
I went through the same 2 yrs ago at age 53. I was completely a mess of a mess the day they told me I had Colon Cancer.

I couldn’t even bear to tell my husband and kids. I waited a week before I said anything…It was on 12/19 I was told. Totally messed up my holidays. I literally thought I was going to die like tomorrow. I never hyperventilated in my life and did for the first time.

After I had a CT Scan they found enlarged Lymph nodes next to my Aorta. Then they did a Pet scan and the only place that lit up was the Lymph nodes in the chest. Then they did a CT guided biopsy of the lymph nodes in the chest. I was diagnosed with 2 primary cancers 2 weeks apart… Stage 1 Cecum Cancer and follicular Lymphoma.. I as well had zero symptoms..

You can’t dwell on this is all I can say. And easier said than done. Do things to keep you busy. Cause all these Diagnosis and tests will make ya crazy.
The colon resection wasn’t that bad. They removed a foot of my colon. I went on a cruise 6 weeks later.
Wish you the best…

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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Hello @minabird and welcome to Mayo Connect.

I am so sorry to hear of your recent diagnosis of colon cancer, especially when you have had no symptoms. I have had 3 surgeries for a rare cancer in the upper digestive tract (neuroendocrine tumor). I also never have had symptoms, each tumor was discovered during an upper endoscopy.

Recently, during an MRI, a lesion was discovered on my liver, the radiologist considered it benign and indolent. After a CT scan of the liver was done, they could find no lesion at all. It really is very hard to understand, but it is not unusual.

I hope that you are able to deal effectively with your anxiety and concerns, all of which are very normal. I would encourage you to find some physical activities that can help with the stress that you are bound to feel. Meditation, walking, yoga, Tai-Chi are all good ways to release the stress that just naturally builds up during this time.

Do you have a strong support group of family, friends or a church group? If so, this is the time to lean on others for support and encouragement. Mayo Connect is a good place to vent your fears and frustrations. We are all patients, just like you, and we are ready to listen and encourage you in this process.

We look forward to getting to know you. Will you keep in touch and let us know how you are doing?

Teresa

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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@travelgirl

Thanks for your encouraging words to @minabird! You speak from experience and that means a lot to someone new to a cancer diagnosis.

Teresa

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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Teresa, thank you so much for responding and sharing your story with me. I am very blessed to have a wonderful family and caring friends. It’s what keeps me moving forward. I will take your advice and keep physically and spiritually active. I truly appreciate your advice. It’s good to talk with others that understand the fears and anxiety of cancer. I will keep in touch 🙂

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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Travel girl,
Your response and understanding are so appreciated. You have certainly been where I am. I also have dreaded causing my husband and daughters worry. It’s so hard to stay normal but it seems easier when I know it helps them too. Posting in this group today was so helpful. Many thanks for taking the time to reach out.

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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@minabird

I’m so glad that Mayo Connect could be of help. I have found that when you need the courage to carry-on, you will find it is there for you!

When will you be having your next appointment and/or medical test?

Teresa

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@minabird Stay off the computer looking up stuff too. I had to stop posting in groups and reading others stories for while. Plus looking up Cecum and Lymphoma cancer online.
Oy Vey.. Cause the more I read, the more I thought, I should put the coroner on speed dial, and let him know to prepare for my body. Seriously. It got to the point, if I read about prostate cancer I swore I had those symptoms, and I don’t even have a prostate.

And trust me I been in about every cancer site one could find online. The Mayo Clinic site is the most uplifting. Stay out of the rest. I actually found this site last. After I tortured myself in some of the other ones. I found myself crying for strangers reading their sad stories. Thus making me more depressed.

And I honestly think today, the medical industry has gotten better at identifying cancerous things earlier. Which is a good thing for us. So try not to worry to much, If you had no symptoms that is a good sign I believe. I didn’t have any either, and I’m feeling fine today.

They just moved my colonoscopies out to every 3yrs now. Cause my last one in September was clean. And my Ct scans to once a year for Lymphoma. I just need to have them check my blood work every 6 months. A good Dr. will check you out a lot at first, and once they see everything is stable then they will spread out your appointments.

Keep us posted on how your doing. I will watch for your posts.
Take Care

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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Hello minabird, miracles can happen to everyone. You have to keep believing in it. There are a lot of cancer survivors. You get to lift up your spirit and follow doctor’s instruction closely. Eating healthy food, doing yoga and meditation can help you in the long run. You have to believe in your faith. You are still young and you can win this battle. Keep positive, be strong and find the right channel for the treatment. You never know this spot on the liver can go away somehow. Stay close with family , love one and good friends.
Praying for you and you are in my thoughts and prayers. My mother is now 80 years and she had a colorectal cancer 2 years ago. She had gone through a critical laparoscopic surgery for 7 hours and another minor 2 hour surger to connect the stoma. Living with an Ostomy was not easy for her. She is one recovering well. I am her daughter and the care giver. I knew well how she has gone through since she did not want the surgery from the beginning. But at the end, all went well. Need a lot of patience, care and kindness to yourself. Best wishes to you.

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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@soul Thanks for adding your encouraging words to this discussion with @minabird.

Teresa

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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@soul
Thank you for your post. I am hoping for a good result from the MRI today. I am feeling more hopeful since I joined this group. Makes you see how many people know just how you’re feeling and have had good outcomes with a
Positive attitude. Will be a long weekend until I get results on Monday but I will stay busy and keep praying!

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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Teresa, I had my MRI on the liver this past Friday. I go to see my surgeon today. Praying for more information and a surgery date. I will let you know how it goes today. Thank you for the supprt!

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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@minabird Thank you for keeping in touch! We will be looking forward to hearing from you after your appointment with the surgeon.
Take courage and peace with you today,

Teresa

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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I received my MRI results on the liver and there was nothing found! I am so relieved to know the cancer has not spread from the colon to the liver. I am now awaiting a surgery date. I will be having a laparoscopic procedure with the surgeons using the DaVinci robot. This is supposed to give the surgeons more accuracy and movement and should be an easier recovery. I’m mentally ready to go as soon as they can get me in!!

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@minabird

Hello. I am a 51 year old woman who has recently been diagnosed (Nov 3) with colon cancer. I have had no symptoms to date. After a routine colonoscopy I have been on a whirlwind of blood tests and scans. My pet scan showed a spot on my liver. I am scheduled for an MRI of the liver. Just as I was mentally prepared for a colon resection I am now facing this new news. I am told many people have a spot show on the liver that turns out to be something other than cancer. The waiting is so difficult.

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Oh, @minabird

I’m so happy for you! That is great news and I know how relieved you must be. I’m glad to hear you say that you are, “mentally ready to go as soon as they can get me in.” Will you keep us posted on your surgery date?

Has the doctor told you what kind of recovery period to expect?

Keep in touch – we want to encourage you in this journey.

Teresa

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