Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself?

Hi @testlady,

You may notice that I moved your message to this discussion on living with lung cancer I did this because I thought it would be beneficial for you to connect with the members in this discussion, and I hope they will join in with more insight or information that might help.

@testlady, do you know what type of colitis you may have?

REPLY
@testlady

I am so despondent. My Opdivo infusions have been very successful; however, I have developed colitus and my infusions have been postponed until it is resolved. I have fear and anxiety because of the lack of treatment opportunities that directly affect my lung cancer. All the healthful eating I have done must cease because it affects colitus. The lectures about this is just a bump in the road are not helping. I don't know how to handle this setback.

Jump to this post

I feel for you! One thing you might try to keep in mind is that there is no one universal 'healthful eating' program. So now you are doing healthful eating for your colitus and it is still putting good nutritious food into your body to help you to be strong and healthy. I hope it will be under control soon so that you can begin your infusions again.

REPLY

Thanks to John for my invitation to join.
I was invited to join a Mayo program for smokers that had quit smoking (almost 6 years)
It was one of the chest x-rays that the cancer was found. Thank you Mayo Clinic!
They took a small pie wedge from my lower left lobe and I thing all is good.
I was only in the hospital for 1 1/2 days and went back to work after 3 days (Amazing)
Thanks again MAYO

REPLY

Welcome.That is how my first lung cancer was found. I had to have an Xray for an injury. Thank goodness. it was a very early, but virulent type of adenocarcinoma. Make sure you have follow-up CT scans at least once a year!

REPLY
@testlady

I am so despondent. My Opdivo infusions have been very successful; however, I have developed colitus and my infusions have been postponed until it is resolved. I have fear and anxiety because of the lack of treatment opportunities that directly affect my lung cancer. All the healthful eating I have done must cease because it affects colitus. The lectures about this is just a bump in the road are not helping. I don't know how to handle this setback.

Jump to this post

Thank you. Your such means a great deal.

REPLY
@kanaazpereira

Hi @testlady,

You may notice that I moved your message to this discussion on living with lung cancer I did this because I thought it would be beneficial for you to connect with the members in this discussion, and I hope they will join in with more insight or information that might help.

@testlady, do you know what type of colitis you may have?

Jump to this post

My blood work showed no infection. My stool cults showed no bacteria. I do not have Cdif. I have been told this is a result of the Opdivo. My PET scan report stated "wall thickening of the colon w submucosal edema and stranding in the adjacent fat suspicious for pancolitis."

REPLY
@colleenyoung

Hi @llwortman @burrkay @alicantina1 @merilee @alvinw @shortshot80 @mryzuch @amws @pearlgee @cheris @annette1 @cheris @windwalker @lesbatts @major @bestcare and @sistergoldenhair

I’d like to invite you to the new group dedicated to discussions about lung cancer. It’s a space where we can ask questions, share tips and learn from each other. Whether you in treatment or caring for someone with lung cancer, or you’re a lung cancer survivor, please join us.

Pull up a chair and tell us a bit about yourself.

Jump to this post

Hi I am Rita, my husband has been diagnosed with lung cancer, we don't know what stage yet. He has a very large mass on his right lung, looks like way over half of his lung.they have already done a biopsy. We are waiting for him to get approved by the VA before they can do the tests to stage it. He needs an MRI and a pet scan. Everything is tied up with the VA right now and the waiting is so hard. I am so scared. He has trouble breathing, coughing hard and coughing up blood. Pain in his chest, tired and weak. He just turned 63. I lost my first husband of 24 year's to a car accident, was alone for 12 years then met Blake my second chance at life. We were married 7/11/15

REPLY

My husband has been diagnosed with lung cancer. We are waiting for approval from the VA before they can even talk treatment. The waiting is so hard

REPLY

I'm so sorry that you have had to wait to start your journey. The VA works on a different level than any other health care provider. Perhaps counseling to help you through this waiting time. I have found waiting is the fertilizer for our fears. Anticipation is definitely not a friend. Keep us up dated!

REPLY

I have heard that sugar is very bad for cancer is that true?

REPLY
@eott6913

I have heard that sugar is very bad for cancer is that true?

Jump to this post

Research shows that cancer thrives in an environment that is high in sugar. Almost every anti-cancer diet will suggest limiting sugar in your diet. If you study it you'll find that sugar is bad for pretty much everything. There are hidden sugars that we don't even know we're eating in so many processed foods, even healthy things like yogurt. I've been on an anti-cancer diet for two years and that includes limiting sugar and all of my blood tests show improvement just from that one change….watching out for that sugar.

REPLY
@testlady

I am so despondent. My Opdivo infusions have been very successful; however, I have developed colitus and my infusions have been postponed until it is resolved. I have fear and anxiety because of the lack of treatment opportunities that directly affect my lung cancer. All the healthful eating I have done must cease because it affects colitus. The lectures about this is just a bump in the road are not helping. I don't know how to handle this setback.

Jump to this post

Welcome to Connect :
I have been following your lung cancer journey. It’s undescribable how the diagnosis can affect us.
I understand somewhat because I am a 10 year lung cancer survivor.
It’s remarkable how much research has advanced since my diagnosis ! As if this year there are more than 1100 therapies
for lung cancer! WoW.
Do not give Up! You are in the best place with your Mayo Team!
One important part of my healing was when I met Dr Amit Sood and was introduced to his Paced Breathing Research Study! By learning how to change my brain, with a meditation program for cancer patients, with practice and a workbook and support from an oncology nurse calling me every week I soon learned how to rethink
a lot of things! You can Google Dr Amit Sood’s TED X Talk and watch his great insights.
This helped me save my life. Supportfrom one person is huge!
I have kept active and I feel this this has greatly improved my quality of lifr.

Let’s stay connected! All my rst!

hugs
linda wortmans

REPLY
@eott6913

I have heard that sugar is very bad for cancer is that true?

Jump to this post

Please check any rumors with your physician. I have had cancer for 20 years and there are no special diets. Now if you have other ailments along with cancer that might be a different story. People love to give advice and opinions when they find out that you have cancer. You have to silence them some how.

REPLY
@eott6913

I have heard that sugar is very bad for cancer is that true?

Jump to this post

Cindy- Check where the study was done and by whom. Check this out. There is a lot of controversy about it. https://www.oncologynutrition.org/erfc/healthy-nutrition-now/sugar-and-cancer/

Liked by cindylb

REPLY
@eott6913

I have heard that sugar is very bad for cancer is that true?

Jump to this post

Regarding diet and cancer all of my doctors have suggested a diet low in sugar, lots of vegetables (especially cruciferous ….oh my don't know that spelling), fruits, easy on red meat, etc. Guidelines to give your body the best chance of being healthy and non toxic (by avoiding pesticides and other carcinogens in food). It certainly can't hurt you. The changes I made to my diet have improved my health and well being a great deal and that makes it easier to withstand side effects from treatment and make my body stronger to fight cancer. No sense giving cancer a 'leg up' as it were. Since medical science doesn't actually have a clear picture on why some people get cancer and others don't, I think it's wise to give your body every chance to be as strong as possible.

REPLY
Please login or register to post a reply.