1. < Lung Cancer
Moderator

Living with lung cancer - Introduce yourself & come say hi

Posted by Colleen Young, Connect Director @colleenyoung, Mar 2, 2017

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Apr 26, 2019
In reply to @reibur1951 "I've always been what I thought was a good planner - its "black/white" sorry for the..." + (show)
@reibur1951

I've always been what I thought was a good planner - its "black/white" sorry for the pun - its either there or not there $ and if not you do without... No the sisters/step sister has not really thanked me they are out for what they can get or feel the deserve and they have done little for there parents/grandmother the years i've been here the step-sister in my opinion has always thought she was better than all the rest. the youngest daughter has played the fiddle and made remarks about the other sister/step-sister its almost as if its a "war" between them and I am caught in the middle - below is my rant on all this

Jump to this post

@reibur1951
So sorry that you get no help nor appreciation for all of your noble efforts.

REPLY
1 reply
Merry, Alumni Mentor | @merpreb | Apr 26, 2019
In reply to @margot69 "Hi Merry, Nice of you to think of me. Admittedly, have only scanned the Boards as..." + (show)
@margot69

Hi Merry,
Nice of you to think of me. Admittedly, have only scanned the Boards as little information was being addressed regarding LCNELC. Unfortunately, there are few, good Oncologists hete but I did go to see Dr. Wakelee at Stanford and made an appt to see her again this Monday. She is, technically, not my treating physician, but has been great answering some of my questions. I just finished my 4th round of Chemo (Carbo/Etroposide), followed by 5 days of Granix shots. Treatments seem to be a bit rougher each time. After the first 2 rounds, a PET scan was done which shiwed some shrinkage and no new spots. I have a repeat PET on 4/27. I have been told this Chemo will only help for so long and I started them in January. The Onc here is not good about discussing things so I want to go back to Stanford. Myself, friends and family cannot find many options for treatment. I was told, because she feels I have an underlying immune problem, immunotherapy might be risky for me. Add my age, and I might not qualify for any trials. Truthfully, trying those drugs scares the hell out of me as my body does not to,erate drugs well. Between Chemo treatments, dealing with low WBC and RBC, feeling sick, I think I have maybe one week a month I can try to function. We seldom go anywhere. Just a bit down lately. My cough is wirse and fatigue is catching up with me. Just hoping this Chemo is still holding things at bay. After 3 different diagnosis, I hope they got it right. Thanks again and hope you are doing well!!

Jump to this post

Hi @margot69- I bet that you feel tired! I wish you well tomorrow. Please come back an let me know how it went! Is there anyway that you can get your onc to open up? Can you ask her why she isn't giving you the information that you need and that you have to go to another doctor for explanations?

REPLY
reibur1951 | @reibur1951 | Apr 26, 2019
In reply to @hopeful33250 "@reibur1951 So sorry that you get no help nor appreciation for all of your noble efforts." + (show)
@hopeful33250

@reibur1951
So sorry that you get no help nor appreciation for all of your noble efforts.

Jump to this post

That's okay I did not do it for them - I done it or their mother, father and doing it for their brother. We had not choice for the mother being in nursing home she had Left carotid surgery Nov. 4 2004 - came home and started to have TIA's we took to a local ER handed them the paper work from the dr/hospital with all the #'s on it they refused to contact was told that when she had one to wait 30 minutes to an hour for it to subside - she woke up on Sunday morning as a "Zombie" finally talked her to goign back into ER - they refused to transport her back to Indy Methodist & Her dr. kept her over night for 24 hour observe was going to send her home I went behind their back (this being the 3rd ER visit after the surgery) and called the dr. direct he got orders for the transport out of local hospital but not without a fight on their part finally 6 hours later they did - on way down the ambulance speed past us at 80+ (as that was what my speed-odometer read) in trying to keep up with them... early morning she was transferred to Neuo ICU and spent 2 weeks there - we slept in waiting room on floor or long sofa, or 2 chairs pushed together she came out full right side stroke and speech, thought and comprehension affected went from 150 down to less than 130 pounds none of the daughters came down or would bring son down - we would come home late on Thursday night - to pay bills, get food in house etc. and go back...

I promised both the father and mother I would see this through and I will hell or high water - its that his needs and wants need to be respected and not shipped off to a nursing home, half-way house or whatever where they are absolved of all responsibility and they could of ran off with everything - he was the one who helped care for the grandmother and them along with me they went on with their lives, work and families with out having to be responsible for their care.

REPLY
alamogal635 | @alamogal635 | Apr 26, 2019
In reply to @hopeful33250 "Hello @reibur1951 So good to read your post and update. You continue to be a very..." + (show)
@hopeful33250

Hello @reibur1951

So good to read your post and update. You continue to be a very loyal friend and I pray, as does @alamogal635, that your car and finances hold up for these upcoming May treatments.

You are a good planner and definitely organized. I get the feeling that your friend's family has not thanked you for your help for this cancer survivor so on their behalf, let me say thank-you for your help.

You are providing more than transportation, you are providing hope! We need more people in our world to provide this essential element of hope.

Jump to this post

agree with Teresa--you are doing and have done outstanding work. Blessings.

REPLY
1 reply
reibur1951 | @reibur1951 | Apr 26, 2019
In reply to @alamogal635 "agree with Teresa--you are doing and have done outstanding work. Blessings." + (show)
@alamogal635

agree with Teresa--you are doing and have done outstanding work. Blessings.

Jump to this post

Just trying to do what I promised, whats right and fight for the adage of "Do no harm"; my mother and her sister were nurses so I do have a weird sense of values I guess.

REPLY
1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Apr 26, 2019

@reibur1951 It's not weird at all. It sounds like your family heritage gave you a great sense of values. We could all wish for a friend like you!

REPLY
Merry, Alumni Mentor | @merpreb | Apr 27, 2019
In reply to @reibur1951 "Just trying to do what I promised, whats right and fight for the adage of "Do..." + (show)
@reibur1951

Just trying to do what I promised, whats right and fight for the adage of "Do no harm"; my mother and her sister were nurses so I do have a weird sense of values I guess.

Jump to this post

@reibur1951- Values are what guide us! It's important not to violate your own.

REPLY
1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Apr 27, 2019
In reply to @merpreb "@reibur1951- Values are what guide us! It's important not to violate your own." + (show)
@merpreb

@reibur1951- Values are what guide us! It's important not to violate your own.

Jump to this post

Well said, @merpreb!

REPLY
shortshot80 | @shortshot80 | May 3, 2019
In reply to @hopeful33250 "Hello @reibur1951 So good to read your post and update. You continue to be a very..." + (show)
@hopeful33250

Hello @reibur1951

So good to read your post and update. You continue to be a very loyal friend and I pray, as does @alamogal635, that your car and finances hold up for these upcoming May treatments.

You are a good planner and definitely organized. I get the feeling that your friend's family has not thanked you for your help for this cancer survivor so on their behalf, let me say thank-you for your help.

You are providing more than transportation, you are providing hope! We need more people in our world to provide this essential element of hope.

Jump to this post

(nancy-shortshot) Hi Teresa, It has been quite a while since I have been in here. I hope that Colleen updated you. I'm really glad that she had emailed me. I have been having a tough time for the last 3/4 months. Things are still somewhat unsettled but hopefully will get better with time. Tom morrow will be the anniversary of my husband passing. I'm getting better with the grief and getting better after my fall and breaking my left hip. Time will take care of things. I will get back here more often. Thanks for caring. Nancy

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | May 3, 2019

@shortshot80
Nancy
I'm so sorry to hear of your difficult time over the past few months, but I'm so glad that you are back on Connect and feeling better now. I had been concerned!
Give yourself the time you need to recover.

REPLY
View MoreView Less
Please sign in or register to post a reply.