Living with lung cancer - Introduce yourself & come say hi
Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Lung Cancer Support Group.
@meka, this is the perfect place to vent and yes, your message remains posted. This is exactly what Connect is for. Cancer sucks and sometimes we just have to say it. It is also a place to get and give support, find hope and take small steps to cope better. I love the advice you got from @sakota and @merpreb. I can see that you have held on to their virtual hands and gathered strength from them. One day at a time.
@meka good for you! Taking positive steps! you can have someone else make the referral? What about telling your senator this?
Merry, going to my Senator's office today, will sign release, and share story. Yesterday, Oncologist at VA said we could just radiate it. Asked for second opinion outside of our area. Said he can't refer me to Mayo, because they seem to think a second opinion locally, but would see about a referral to Minneapolis VA, which I know is not a cancer treatment VA. Trying not to be crazy, thanks!!!
@carrington- Hopefully they will call soon.
Thank you for the feed back and the link. I am waiting for them to call me for the date of the CT Scan. I am assuming it will probably be after Christmas.
@carrington- Welcome to Mayo Connect. Pulmonary Carcinoid cancer is a different kind of lung cancer and more unusual than carcinomas and multifocal adenos. The levels of markers in your blood that you mention have risen and I am very glad that your have a CT scan rescheduled for an earlier time.
It's very very difficult not to worry when we have an unexpected test result. No one can tell you not to be concerned or worried. But what I see is your doctors responding very timely for you so that they can respond as quickly as needed. when is your new CT scan scheduled for?
https://www.cancer.org/cancer/lung-carcinoid-tumor/about/what-is-lung-carcinoid-tumor.html. They tend to show up in more than one place in your body too.
Rather timid here. First time to post. July 9 I had the lower lobe of my left lung removed due to a pulmonary carcinoid (stage 3) followed in August by removal of lymph nodes. All except the two nodes taken with the first surgery were clear. In September my Chromogranin A, Serum was 929 ng/ml (normal is 93 ng/ml or lower). December's blood test indicated that it had risen to 1614 ng/ml. A new CT Scan is to be done sooner than the one originally planned. I am trying not to be concerned. Any advice or comments?
oops posted in wrong place
@meka- How did you make out?
Not sure what is going to happen today. I'm going to ask if I could record whatever it is. You may, are there any VA medical centers that are cancer centers, or affiliated?
I do have a friend that goes with me, so some support. Will head straight to Senators office today, if I need too.
Good note, we are having one of those mid December warm-ups and have spent much time out with my dog, Summitt and to the dog park yesterday. He always makes me laugh 😂!!!
No I am very asymptomatic, yes I didsmoke and have mild COPD.
Always been active physically, it's served as an outlet all my life!
Again, thanks for you all being so willing to support and listen. Looked for a group locally, not. Anyway out to get my vitamin d before I go. !!