Living with lung cancer - Introduce yourself & come say hi

I am Kate and I have stage 4 nsclc. Diagnosed six years ago but, never ned. I hope to learn from others here and maybe find hope as a stage 4 pt with new growing nodules. Getting pretty down lately, I'm not a candidate for any of the immunotherapy drugs.

I am Kate and I have stage 4 nsclc. Diagnosed six years ago but, never ned. I hope to learn from others here and maybe find hope as a stage 4 pt with new growing nodules. Getting pretty down lately, I'm not a candidate for any of the immunotherapy drugs.

Thanks for reply. I am in province of British Columbia in Canada and am still seeing a doc that will prescribe cbd with thc balance. I look for pain management. Hydro morphine and tramadol not effective and I continue to experience spine pain. Anyone know if keytruda and cbd/thc are compatible?

Thanks for reply. I am in province of British Columbia in Canada and am still seeing a doc that will prescribe cbd with thc balance. I look for pain management. Hydro morphine and tramadol not effective and I continue to experience spine pain. Anyone know if keytruda and cbd/thc are compatible?

Feel for you. Am in Texas and we can only get the pills and oil that don't have the THC in them. I have both and am not sure if they work for me, or not. In your place, I really would campaign for getting prescription. There has to be physician that is open to at least trying you with cbd/thc. I wish you the best. Please keep us informed. I'm sure there are others who have better experience with this than I.

One year history non small cell lung cancer stage 4. Thoracotomy one lung and VATS other lung. Thymus glad removed. Now spine and hip bone positive for cancer. Chemo and radiation not give positive results. Currently start immunotherapy keytruda. Seeking information now of personal experiences using cbd/thc for pain relief/cancer. Oncologist has no opinion as no scientific study to confirm cbd/thc and will not give prescription for medical purchase. All is legal here with prescription but many doctors too sceptical to prescribe. Appreciate any information based on personal experience. Thanks.

Hi @llwortman @burrkay @alicantina1 @merilee @alvinw @shortshot80 @mryzuch @amws @pearlgee @cheris @annette1 @cheris @windwalker @lesbatts @major @bestcare and @sistergoldenhair

I'd like to invite you to the new group dedicated to discussions about lung cancer. It's a space where we can ask questions, share tips and learn from each other. Whether you in treatment or caring for someone with lung cancer, or you're a lung cancer survivor, please join us.

Pull up a chair and tell us a bit about yourself.

Good Morning. One correction, no doctor's visit following this PET/CT scan to discuss results. I have standing orders for 2 more PET/CT scans every 3 months. After that I think we go to every 6 months. Talking with others, that should eventually become every year. I have one friend who is a colon cancer survivor and he just had his last scan after 10 years.

I'll have to share one more story with you. We met with the surgeon before the surgery and he spent some time reviewing what had happened up to that point and why my medical team decided to go forward with the lobectomy. At one point, he turned to my wife and said, "I want to tell you he WILL be depressed after the surgery. For one thing, he's a man and we don't handle these things as well as you women do. For another thing, he's young. And lastly, he's an engineer and they tend to overthink things." At that point I turned to my wife and said, in an overly exaggerated voice, "When have I EVER overthought anything?" and we all had a good laugh.

@flusshund Thank you for your kind note. Yes, you have really helped in knowing what to expect and what pain meds to insist upon. In other swhos till plays for my own pleasure. I have had a couple of prior surguries--an-ankle fusion and hysterectomy for which morphine always worked well for me and will insist upon it this time as well. I am 68 years old, a retired psychotherapist, but basically a classically trained pianist ill plays for her own enjoyment. T o hear a doctor call me "young" for surgery at this age was delightful! It is indeed helpful to learn about what all you went through and endured--the follow up chemo and radiation and the merciful lack of awful side effects for you. I am so glad your PET/CT scan was clear. No followup appointments for you.! Hooray!

. My surgeon does the Robotic assisted surgery as well as VATS, and for whatever reason chose VATS for me. I will leave his decision of what surgery to do up to him as he knows far more about this than I. Anyway, it is a blessing that it won't be the old fashioned kind of operation here the ribs are spread apart and recovery is so much more complicated. I heard yesterday, at the seminar on surgery, that we lung patients would be in ICU overnight, encouraged to walk once we are out of anesthesia , vitals are good, etc Then we will be moved to a private room to move on in recovery. I figure from that all was said , I'll be in the hospital for about as long as you and am determined do all I can do to help the recovery process. I want to go HOME ASAP! Also the nurses said not to be the strong silent type during recovery, and if we were in pain or needed anything to let them know. They are there to help us have a minimal amount of pain and stress while we all recover from the surgery. I promised todo the breathing exercises, walk, eat the hospital food and follow their dictates to the utmost to speed there recovery process

Can see where the effects of chemo and radiation could be so emotionally draining! However, I'm glad that it went as well for you (side effects and all) so well. I guess such things have truly come a long ay from what used to be. Don't know about you, but From he two surgeries Had before, I found myself more tired than usual. It will probably be so withe his one as well. I normally sleep around severn hours and expect to sleep more than normally once at home. I recall the previous times when it seemed like there was NOT REST during the hospital stays.

The surgical team will know if they got everything and if somehow the cancer spread to any lymph nodes, or surrounding tissue.If such is the case, then we will move on to the chemo and/or radiation. I hope to avoid that as do my doctors. By this time next week, I may well be in a private room and awaiting removal of the chest tube. Having gone through the morning pre-op tests and the seminar on what to expect was truly helpful. More hospitals ought to have this sort of meeting for patients who will be having surgeries and recovery from surgery for cancer. Also being around other cancer patients kind of gave us a feeing of beingl f a band of brothers and sisters untied in a fight against this disease. I was in total denial about realization that I do indeed have cancer--lung cancer.--called it anything but what it is/was until yesterday.

I thank you again for taking the time to share your experiences with me and appreciate all that you had to say. I feel much better thanks to you and your information. Am so glad that things are going well for you now I hope we can keep in touch and know I will be thinking of and praying for your continued recover. So glad to have found this group!