Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Profile picture for pb50 @pb50

If it’s helpful I had surgery end of May this year. I am 73 and live alone. I had a lobectomy of my left lower lobe. So more tissue loss than it sounds like you expect. My only initial issue was some drama around unexpected copious drainage from where chest tube had been. I couldn’t easily reach the area to change the bandage, so before I left the hospital, I insisted on a case mgr and a brief period of home health to change the bandage. They dropped by for a few days to do that and otherwise it was fine. I don’t do narcotics and have a high pain threshold so I didn’t need to worry about being unsteady on my feet. Yes it hurts the first few days but I’ve had worse 🙂

Good luck!!

Jump to this post

Really appreciate sharing your story. How many days were you in the hospital? Did you prepare your own meals when you went home? My dr said I would need someone with me after discharge, but I didn’t think to ask how many days. Thought it might have something to do with taking painkillers.

REPLY
Profile picture for jessicamc @jessicamc

I am having surgery in Jan 2024 for a 13 mm typical neuroendocrine tumor. Dr. said will probably remove 10% of left lung. I’m female, 77, walk 30 minutes minimum at the Y on indoor track 5x a week, do another 30 minutes on rowing or elliptical. I was told it will be robotic and probably discharged two days after surgery. I live alone and am considering employing a caregiver. I understand we are all different, but am interested in a guesstimate of how many days I may need someone to stay with me.

Jump to this post

If it’s helpful I had surgery end of May this year. I am 73 and live alone. I had a lobectomy of my left lower lobe. So more tissue loss than it sounds like you expect. My only initial issue was some drama around unexpected copious drainage from where chest tube had been. I couldn’t easily reach the area to change the bandage, so before I left the hospital, I insisted on a case mgr and a brief period of home health to change the bandage. They dropped by for a few days to do that and otherwise it was fine. I don’t do narcotics and have a high pain threshold so I didn’t need to worry about being unsteady on my feet. Yes it hurts the first few days but I’ve had worse 🙂

Good luck!!

REPLY
Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @llwortman @burrkay @alicantina1 @merilee @alvinw @shortshot80 @mryzuch @amws @pearlgee @cheris @annette1 @cheris @windwalker @lesbatts @major @bestcare and @sistergoldenhair

I'd like to invite you to the new group dedicated to discussions about lung cancer. It's a space where we can ask questions, share tips and learn from each other. Whether you in treatment or caring for someone with lung cancer, or you're a lung cancer survivor, please join us.

Pull up a chair and tell us a bit about yourself.

Jump to this post

I am having surgery in Jan 2024 for a 13 mm typical neuroendocrine tumor. Dr. said will probably remove 10% of left lung. I’m female, 77, walk 30 minutes minimum at the Y on indoor track 5x a week, do another 30 minutes on rowing or elliptical. I was told it will be robotic and probably discharged two days after surgery. I live alone and am considering employing a caregiver. I understand we are all different, but am interested in a guesstimate of how many days I may need someone to stay with me.

REPLY

Hi @edieshelton, I agree, if they are in there already, is there a chance that they would do both at the same time? Have you had a chance to discuss this with your surgeon?

REPLY
Profile picture for cmcguire10 @cmcguire10

Hi Theresa, I just hit my 4 week mark after LUL Segmentectomy and a small lingular wedge. Also had both breast implants removed due to encapsulation and calcification. All in the same operation. I too still have the soreness and aches and pains of under the front breast incision(for the lung surgery) and the back and side incisions. My surgeon recommended using those lidocaine patches to help ease those pains. Like Aspercream or Solanpas. She said you could cut them to fit the area but do NOT put them on any incisions. I know Mayo offered a booklet for Pain after surgery and how to deal with it without more medications and it talked about Yoga, Tai chi, meditation, etc. You may be able to go on to their website and find it. The best thing, of course, is to talk with your surgeon about what you are allowed to do at this stage of healing. Good luck to you and I hope you heal well!
Cindy

Jump to this post

How did you do the explants at the same time???

REPLY
Profile picture for M.R. Nootz @mrnootz

How do I join this group?

Jump to this post

@mrnootz. It looks like you have already 'followed' the Lung Cancer group. That's a great start. There are different options to receive notifications when new content is posted. If you click on the silhouette of the person in the upper right, and select Profile & Settings, click the Settings tab, and scroll down to the Notifications and Preferences section. There you'll see various options. The Digest option is a great starting point, as you'll receive an email that includes a summary of recent posts. Take a look at the options, and of course let us know if you have other questions.

REPLY

How do I join this group?

REPLY
Profile picture for confident @confident

You're so right!!! It's never long enough!! We will be married 61 years in June....and they said it wouldn't last 🙂 I'm Stage 4, and as long as I'm on this side of the grass, I'm finding something to be thankful for every day.....especially my guy!

Jump to this post

Congratulations on 61 years❤️ Today, he decided that the trip is really not doable. I had to be patient and let him make that decision. Prayers are with you from this end.

REPLY
Profile picture for millie5737 @millie5737

Thank you so much for sharing as your thoughts, feelings, conflicts are similar to mine. Husband diagnosed in 11/22 with stage 4a NSCLC. Planning…..yes, it’s difficult, especially when it’s a part of your marriage to go, do, travel etc. My husband was admitted 4/13/23 to the hospital because he asked me to take him to the ER because of trouble breathing. He has had chronic inflammation since 8/22 and the cancer was diagnosed 3 months later. The inflammation has been treated with steroids and he is back on them. The hospital stay of 7 days revealed embolisms in R lung and leg. He is home using FT oxygen. We have plane reservations on May 15 that he insists on keeping. We never asked and were never offered time prognoses. We will be married 50 years in 1/24. To young couples, they may think, well you you were lucky to have had each other that long. It’s never long enough……

Jump to this post

You're so right!!! It's never long enough!! We will be married 61 years in June....and they said it wouldn't last 🙂 I'm Stage 4, and as long as I'm on this side of the grass, I'm finding something to be thankful for every day.....especially my guy!

REPLY
Profile picture for Colleen Young, Connect Director @colleenyoung

@fowlair Mary, I just want to let you know that I'm thinking about you, knowing that tomorrow is your anniversary.

Jump to this post

That is so sweet of you! Thank you!

REPLY
Please sign in or register to post a reply.