Living with lung cancer - Introduce yourself & come say hi
Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Lung Cancer Support Group.
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@vic83 thanks I did mention to the consultant
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1 Reaction@chubby55 "I do have copd as well " - I too have lung cancer. (four years now). I recently had a needle lung biopsy and I noted the warning for patients with COPD for the test. Be sure your treating physicians are aware of your added lung issue. I have pulmonary fibrosis (restrictive not obstructive like COPD) and it creates a problem for my cancer treatments.
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1 ReactionChubby65
Thank you for your encouraging words
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1 ReactionHi gen25. Don't be scared telling anyone I'm sure they will be shocked but you will have there full support it's a frightening experience. I was diagnosed in June and had op 16th July. Luckily it was early stage adenocarcinoma mucinous and hasn't spread so 6 monthly scans. I do have pain around the operation site as expected but this is controllable with pain meds once that's sorted I'm trying to get my life back on track I do have copd as well so inhalers for that... But really focus on the positives rather than negatives and don't worry I know it's hard but you will get there much. Love. X
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3 ReactionsHi my name is Chris I recently had right lower lobe surgery after scans shored tumour. I had lobectomy I'm 6 months post op recently had scan showing no spread... Histology was Adenocarcinoma Mucinous early stage... I'm still having pain issues like burning sensation stabbing etc all normal apparently... I'm on pre gablin 200mg 2 times day... They stopped the oxcycodene meds due to it been an opiod.... This did help with pain anyone else had this operation and how did you manage the pain
@lls8000
Hi my original transplant was in my right lung due to COPD. The cancer is in my left lung. I have two sisters and told them over Christmas. They are being very supportive and will attend appointments with me. I was thinking that next i want to contact my priest at church for some spiritual comfort.
Thanks for the welcoming message
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2 ReactionsWelcome @gen25, I'm know that the diagnosis feels overwhelming. We have all faced this diagnosis and have found a way to navigate the clinical pieces and the emotions. You will too! Take time to process things, but it may be helpful to have someone to talk to in your close family or friend circle, and helpful to have someone that might be able to go to these initial oncology appointments with you. What was the reason for your lung transplant? And is the current cancer in your original lung?
I am new to this group. I was just diagnosed with lung cancer a week ago. I have my first appointment with the oncologist in January. I still have to tell my family. I am scared to death. I am 75yrs old and had a lung transplant 18yrs ago. On oxygen since I had Covid in 2020. Just looking thru the comments I think this group will give me some calming thoughts.
Thanks
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1 Reaction@lls8000
Hello Lisa, thank you for your thoughtful words. I am sure you know how hard it is to wait for tests to be done and results to be read and interpreted. I was a lab tech/medical assistant for most of my adult life so at least I have background in procedure and how things work in the medical world. Things have changed in that regard from how it was in the beginning of my career and it has been many years since I retired. I am 83 and fortunately I can still drive but hesitate now to tackle the freeway. My husband has Macular Degeneration so he no longer drives. His daughter has a summer home not far from us and is there for Christmas so will take us for the biopsy, some 60 miles away. The rest of the tests are much closer and I can manage those. My daughter lives about 40 miles away and will arrange to help us with any other distant travel that we might need. The oncologist we will be seeing tomorrow, Christmas Eve, for the initial visit is close and I hope that any treatment he advises can be done at that site. Again thanks for your concern. I will update as things go on.
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2 Reactions@blinken, This is hard news to handle, but it's good that you saw a change in your husband and were able to get him into a doctor. It sounds like his medical team is jumping right into action. The appointment with the oncologist will help you to understand what may be next. A biopsy is helpful to identify the type of cancer, which can be matched to specific treatments. The MRI and PET scans will show where the cancer has spread.
Lung cancer treatments have improved in recent years. All treatments come with challenges, some more than others. Many of us with metastatic lung cancer are living longer 'normal' lives. There are many types of lung cancer, and even more treatments or combinations of treatments.
Try to take one day at a time and try not to get ahead things. Focus on what you know, not what might be. Do you have others that may be able to help with the longer drives? You may want to mention the help that you may need with the oncologist's office too. They may have support resources that they can offer.
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