Living with lung cancer - Introduce yourself & come say hi

it is indeed adenocarcinoma, in the non smallcell group. Yes there is debate about how these nodules are dealt with these days, with an emphasis placed on quality of life. I have read the staging and grading that is currently being used to assess treatment or waiting with repeated CT's., mine falls in the 'do nothing for now' range, relying on 7-month CT scans to assess changes and change course if need be. They are low-grade and primarily groundglass at this point. My doc indicates the nodules are too small to be picked up on a PET scan. l am 77, these nodules were first seen 7 years ago, they have doubled since then. I too am active, still working, involved. The docs do not want to change that at this point, so the protocol these days , confirmed by much of my sleuthing is to keep a close eye via CT scans - this is based on size of nodule, quality of nodule (groundglass versus solid, etc), that they are all contained at present and considered small in medical terms - 9mm, 11mm, 13mm.....I have no other chronic conditions. I know this would have been immediate surgery in earlier times, typically removing the entire lobe, not a wedge resection. I am appreciate we have come that far.....I will find the thread that Merry has begun. Thank you for your response and for letting me know about others with these same modules. And adding your knowledge. It is deeply appreciated..

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Hi, my Nme is Debby, and I have stage 2A adenocarcinoma. I had the upper rt lobe removed last August . Genetic testing was done and I have an EGFR mutation, which is orally treatable with 80mg Tagrisso. I started the drug a month ago and am having fatigue and weakness and some brain fog. Otherwise, I have been doing well

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Hello, @sura- How are you this morning? I wanted to check in to see how you are handling this. I am also 77, just! lol. I agree that science has come a long way in the treatment of multifocal adenocarcinoma!

Merry

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good to know others are out there! every little twitch now worries me, it is ridiculous... I am trying to master this, there will be lots of time to worry. Thoracic clinic is confident we do nothing right now, quality of life is fine. Removing the 3 large nodules would not significantly alter breathing and docs believe I would do well with the surgery. But they do not want to do it now, adenocarcinomas are too small, doubled in size over 7 years. They will refer me to a radiation oncologist if I wish, but believe they would advise to do nothing at this point. and a PET scan would not pick up something this small. I believe we will know more with the next CT scan in May - has the tissue changed? Have they grown? So until then I am trying to master being calm, not yet successful. I am sure I should be appreciative we caught this so early and somewhere in there I am, but still worried for the long-haul future, What is your situation?
helpful.

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Oh I have been imagining all this, as the time is closer to each CT scan the anxiety increases. What treatment have you had? When my nodules grow or become otherwise worrisome I am playing to make a trip to Mayo for their opinion and maybe for their treatment as well. They are no longer doing out-of-state consultations, I am in Chicago so it's a 5-6 hour drive to Minnesota Mayo. I have been going alone to my appointments - went to all hospital visits with my husband for 4-l/2 years for his prostate cancer treatments, in clinical trials. He died 3 years ago and I still acutely remember the hospital visits & anxiety....yikes, sometimes life asks so much.

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Good Morning,

Great News!
Adeno lung tumor shrunk. So, Thankful
CT in 4 months

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Yea!!! Merry Christmas!

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