Living with a trach (tracheostomy), need advice.

This is really helpful information- thank you

I myself am also trying to wrap my mind around living with a permanent trach - in February another attempt in surgery not a failure but no hopeful news of improvement, has shifted me to my reality. Thank you for asking the right questions, we can all learn together.

I was blessed to have only a temporary trach for little more than four months. The good news is that you can talk by holding your finger over the cannula hole. You will also be able to do exercise and should cover the trach with a bib like cloth covering to keep out dirt and other pollutants. They also have a special covering for when you take a shower. Unfortunately water sports will be out of the picture and far too dangerous, risk of drowning is extremely high.

Hello All,
To update, I tried the Hood Stoma-Vent, and it was not for me. Here is a link to a photo of the device: https://www.hoodlabs.com/stoma/hood-stoma-stents-pr_10
The two tabs that have to be pushed in very forcefully, caused my inner throat to bleed. It was also extremely uncomfortable, as it made my throat and ears hurt. The mucus tried to come out the small opening, which was uncomfortable. In addition, since there is hardly any "tube," there is no way to fully suction with the suction-machine.
When I told the ENT about my suction-tube filling with blood, he said that was "normal." He also told me it never needed removal--to clean underneath. Well, once, after a forceful sneeze (because a large amount of mucus was trapped) the device popped off. Needless to say, although I had q-tipped underneath in an attempt to clean, it was very icky.
In the end, I welcomed my Trach-tube back with relief!
It is funny--not--how different ENT's will tell you different things. I went to my original ENT and he told me that blood is never normal, plus, it should not have hurt to wear the device. He also told me I should be removing my Trach-tube daily for cleaning, which I now do at least twice a day--sometimes more. I take the tube out, use a trach-cleaning brush, rinse with Hydrogen Peroxide, then water. I boil the brush once-per-day. Also, I never wear an Inner Cannula, and have not for almost one full year. As long as a person can remove their Trach-tube, there should be no problem with blockage.
By the way, I spent a few hundred dollars purchasing two different sized Stoma devices, thinking maybe the first was the wrong size. Unfortunately, this made no difference. Maybe the device works for some people, but it is not for me. All the irritation it caused, made my Lymphedema act up. In my case, that is when fluid builds-up under the chin and neck. It had virtually gone away for months before I tried this new device. Any type of trauma or irritation to the area will cause the Lymphedema to react. Just thought I would post an update for anyone out there considering this new device. Thank-you.

Welcome, @genevievee. I think @jeffk @deborahe @evamarie0077 and @thomason may have some tips for you about doing common activities like Zoom calls, conversations with strangers, exercise etc. with a tracheostomy.

While we wait for others to join in, Genevieve, can you tell me a bit more about you? What led to your needing a tracheostomy? How long have you had it?

I would love to hear from anyone who is living around having a permanent tracheostomy. Can you carry on a conversation with a stranger, or on a Zoom call? Can you exercise, including water aerobics?

Thank you Colleen - I’m going to try to make it

Mindy and @thomason in addition to connecting with members in the Connect online forum, you’re also welcome to join the monthly support groups hosted by Mayo Clinic.

Head & Neck Cancers https://connect.mayoclinic.org/event/head-and-neck-cancer-support-group-6-106/

Esophageal Cancer https://connect.mayoclinic.org/event/esophageal-cancer-support-monthly-meeting-106/

See all Support Groups hosted on Zoom in the Events section here https://connect.mayoclinic.org/events/

You may appreciate doing both.

Thank you …. So so helpful…fabulous

Thank you, thank you … I was going through cancer diagnosis and treatment just ahead of COVID - all the cancer groups shut down and cancelled everything so you guys are now becoming my most valuable life line so to speak…:)