Living Dangerously - Nebulizer Cleaning
I marvel at the time consuming, meticulous way many, perhaps the majority, of contributors to this forum clean and sanitize nebulizers. Following the treatment session I soap and hot water “bathe” the mouthpiece then let it air dry until its next use. The tube gets no special attention except being fully disconnected from the compressor. I’ve read of some regimens aimed at sanitizing shower heads; another activity I ignore entirely. I’m closing in on 16 months free of a “flare-up” involving fever, and an antibiotic to defeat.
The lengthening periods of freedom from acute symptoms is something I attribute solely to learning about 7% saline nebulizer solution which I read about on this forum.
My comparatively minimal attention to “sanitation” may catch up with me but so far so good.
I should add that I realize many forum participants are contending with considerably more virulent pathology than I am. Don
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I buy them where convenient, but I learned one thing – all are not created equal. Now I stick to Pari or Respironics replacements (interchangeable) because the hard plastic mouth pieces on the cheaper ones are uncomfortable, and they don't always dispense evenly. I just looked at a couple of my sources and see they have both stopped putting masks into their kits automatically. Usually I use justnebulizers.com, directhomemedical.com, or whoever is cheaper on any given day. I see they have a new "enhanced" version with a valve that closes when you exhale to avoid wasting the meds – will try that next time.
No, I am scheduled to go back this summer to see her but not sure if I will or just wait till 2022. I am going to send a culture next month so I will decide when I see those results. Last culture showed it almost gone, only 10 colonies. I live in NC and also see Dr Mary Leigh Ann Daniels.
I have been using the Innospire Go for a couple of years. I recharge it about once a month. I find it so much easier to use especially when I travel. I do t know anyone else that uses it??
Hi Fdixon63..Colistin is a nebulized drug,similar to Toby..in Toronto they use cipro and levaquin first before IV’s..less harsh..
Hello, Yes I had one of those, but I am an impatient sort, and found it slower than my "turtle" (my name for my old faithful green Pari Vios) which only takes 8-12 minutes to dispense 4ml of neb solution. So I trade a little noise for more speedy therapy.
I do take it on trips where space and weight are at a premium.
My Innospire only takes me 4-10 minutes and I can walk around with it which is great for me, before I have to sit still for the vest. My pari-trek takes me almost 20 minutes, so If I decide to replace it I will get the one you have. Thank you for all that you do on this site. I have always felt alone with these diseases, and now I have a community. I read daily and have learned a ton. You are a gift to all of us.
Is the Colistin as hard on your body as Toby. I've had Toby twice in the last two years. Seems a lot tougher this time. Coughing and fatigue is rough. Hoping it does the job. Did your Colistin get rid of the Pseudomonas Aroginosa? Thanks.
Fdixon63…It’s a great drug and for me much more tolerable every other month..it just knocks it back..not sure if I can get rid of it at this point..I live a great life with this drug
Faye, you said “can't seem to get through the process.” What interferes? Don