Living Dangerously - Nebulizer Cleaning

Posted by thumperguy @thumperguy, Mar 12, 2021

I marvel at the time consuming, meticulous way many, perhaps the majority, of contributors to this forum clean and sanitize nebulizers. Following the treatment session I soap and hot water “bathe” the mouthpiece then let it air dry until its next use. The tube gets no special attention except being fully disconnected from the compressor. I’ve read of some regimens aimed at sanitizing shower heads; another activity I ignore entirely. I’m closing in on 16 months free of a “flare-up” involving fever, and an antibiotic to defeat.
The lengthening periods of freedom from acute symptoms is something I attribute solely to learning about 7% saline nebulizer solution which I read about on this forum.
My comparatively minimal attention to “sanitation” may catch up with me but so far so good.

I should add that I realize many forum participants are contending with considerably more virulent pathology than I am. Don

Interested in more discussions like this? Go to the MAC & Bronchiectasis group.

@sueinmn

Hello, Yes I had one of those, but I am an impatient sort, and found it slower than my "turtle" (my name for my old faithful green Pari Vios) which only takes 8-12 minutes to dispense 4ml of neb solution. So I trade a little noise for more speedy therapy.
I do take it on trips where space and weight are at a premium.
Sue

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My Innospire only takes me 4-10 minutes and I can walk around with it which is great for me, before I have to sit still for the vest. My pari-trek takes me almost 20 minutes, so If I decide to replace it I will get the one you have. Thank you for all that you do on this site. I have always felt alone with these diseases, and now I have a community. I read daily and have learned a ton. You are a gift to all of us.
Babette

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@megan123

Hi Fdixon63..Colistin is a nebulized drug,similar to Toby..in Toronto they use cipro and levaquin first before IV’s..less harsh..

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Is the Colistin as hard on your body as Toby. I've had Toby twice in the last two years. Seems a lot tougher this time. Coughing and fatigue is rough. Hoping it does the job. Did your Colistin get rid of the Pseudomonas Aroginosa? Thanks.

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Fdixon63…It’s a great drug and for me much more tolerable every other month..it just knocks it back..not sure if I can get rid of it at this point..I live a great life with this drug

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@fdixon63

Thanks for being the trail blazer you are. That's what I like. Tips, tricks and all other bags of info. My MAC has been negative the last two but I can' seem to to shake the Pseudomonas for very long. I'm thinking our municipal water supply is the bad guy. I'll be "again" talking to our water works folks to see if they will do some testing. I don't think they want anyone rattling their cage. Currently I'm inhaling Tobramycin and can't seem to get through the process even after nebbing 30 min. I've tried Neb Doctors and Trek S (portable) compressors. I alternate between AeroEclipse II and regular set up with aerobika. One is not better than the other. I know I need to get the med in me but how long to keep it up. I usually stop after 30 mins. Any ideas? Thanks. Faye

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Faye, you said “can't seem to get through the process.” What interferes? Don

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@fdixon63

Is the Colistin as hard on your body as Toby. I've had Toby twice in the last two years. Seems a lot tougher this time. Coughing and fatigue is rough. Hoping it does the job. Did your Colistin get rid of the Pseudomonas Aroginosa? Thanks.

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Hi Fdixon63…I find it so much easier then Toby, every other month..keeps it at a distance..I’ve tried at the beginning to get rid of it with Toby and cipro, but it didn’t work

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@sueinmn

Hello, Yes I had one of those, but I am an impatient sort, and found it slower than my "turtle" (my name for my old faithful green Pari Vios) which only takes 8-12 minutes to dispense 4ml of neb solution. So I trade a little noise for more speedy therapy.
I do take it on trips where space and weight are at a premium.
Sue

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Sue @sueinmn I also had a green Pari Vios that died a few months ago. I then got a Pari ProNeb Max which is about 2 minutes quicker than the green version and somewhat quieter. It does cost a little more.

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@poodledoc

Sue @sueinmn I also had a green Pari Vios that died a few months ago. I then got a Pari ProNeb Max which is about 2 minutes quicker than the green version and somewhat quieter. It does cost a little more.

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I'll be looking at that for my next neb- planning to leave the turtle in my winter home this fall.
Sue

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@poodledoc

Sue @sueinmn I also had a green Pari Vios that died a few months ago. I then got a Pari ProNeb Max which is about 2 minutes quicker than the green version and somewhat quieter. It does cost a little more.

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I got the green Pari Vios a couple of months ago and it’s a lot faster than my older nebulizer. Any recommendations for a travel nebulizer? Insurance does not cover it. I’m finally going to visit my grand babies!!! I’ll still wear a mask because it was from my grandson two years ago that I ended up sick with pneumonia that started me down this path of bronchiectasis. I’ll be hugging them a lot though!
Thank you!

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@cavlover

I got the green Pari Vios a couple of months ago and it’s a lot faster than my older nebulizer. Any recommendations for a travel nebulizer? Insurance does not cover it. I’m finally going to visit my grand babies!!! I’ll still wear a mask because it was from my grandson two years ago that I ended up sick with pneumonia that started me down this path of bronchiectasis. I’ll be hugging them a lot though!
Thank you!

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For travel I use the PARI TREK S compact compressor. It comes with the newer and faster "Sprint" nebulizer cup. I also use this cup with my Pari Proneb Max.

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@poodledoc

For travel I use the PARI TREK S compact compressor. It comes with the newer and faster "Sprint" nebulizer cup. I also use this cup with my Pari Proneb Max.

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When you got the pari trek S for travel did you buy the rechargable battery pack too? Was looking at this to buy for traveling and wondered if it is a necessary expense. Thanks for your help 🙂

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I did not. All the places we visit has electricity, so for me just an added expense. Bill

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@gej53

When you got the pari trek S for travel did you buy the rechargable battery pack too? Was looking at this to buy for traveling and wondered if it is a necessary expense. Thanks for your help 🙂

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I have the battery one because sometimes I neb on the go.
Sue

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