Living Dangerously - Nebulizer Cleaning

Posted by thumperguy @thumperguy, Mar 12, 2021

I marvel at the time consuming, meticulous way many, perhaps the majority, of contributors to this forum clean and sanitize nebulizers. Following the treatment session I soap and hot water “bathe” the mouthpiece then let it air dry until its next use. The tube gets no special attention except being fully disconnected from the compressor. I’ve read of some regimens aimed at sanitizing shower heads; another activity I ignore entirely. I’m closing in on 16 months free of a “flare-up” involving fever, and an antibiotic to defeat.
The lengthening periods of freedom from acute symptoms is something I attribute solely to learning about 7% saline nebulizer solution which I read about on this forum.
My comparatively minimal attention to “sanitation” may catch up with me but so far so good.

I should add that I realize many forum participants are contending with considerably more virulent pathology than I am. Don

Interested in more discussions like this? Go to the MAC & Bronchiectasis group.

@thumperguy

Faye, Exciting time, a spanking new percussion vest. Hey, just think, you may become known as “Thumperchik.”
This probably doesn’t rise to the level of a tip, but I have occasionally, while wearing the vest, machine running, extended both arms simultaneously above my head with fingers interlaced (kinda like a Yoga pose). It intuitively fosters the feeling that it’s doing all kinds of good. Don

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Lets hold off on the new title. I'm exhausted just using the vest twice. Guess we do what gets us through–real or imagined. I may try the arms up move and who knows what else. Thanks.

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@swang18

Who is your doctor, I am in NJ and would like to see a good doctor in NJ. Thanks!

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Swang, I’m in Dallas, Texas. Surely there’s a good Doc a bit closer to you.😉

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@thumperguy

Sue, your post(s) mention mention masks. It’s unclear to me what you’re referring to since my routine doesn’t include a “mask.”

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Each complete "new kit" I get with tubing, cup, mouthpiece, etc contains a mask for those who cannot use the mouthpiece, it goes over nose and mouth – I only use the tubing, neb cup and mouthpiece and the masks pile up, even after giving several to my daughter and niece for the "littles" to use
Sue

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@sueinmn

Each complete "new kit" I get with tubing, cup, mouthpiece, etc contains a mask for those who cannot use the mouthpiece, it goes over nose and mouth – I only use the tubing, neb cup and mouthpiece and the masks pile up, even after giving several to my daughter and niece for the "littles" to use
Sue

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I had a lot of pari nebulizer cups and tubing accumulated over the 10+ years I have been using saline but I only have one set left. For the first time I am going to have to purchase a set. Where do you get your nebulizing cup and tubing sets? Thank you.

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@swang18

Who is your doctor, I am in NJ and would like to see a good doctor in NJ. Thanks!

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I saw Dr Huitt but they are all good there.

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@pop55

I saw Dr Huitt but they are all good there.

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I saw Dr. Huitt as well, she will retire next year, do you know who you will see next year?

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@rits

I had a lot of pari nebulizer cups and tubing accumulated over the 10+ years I have been using saline but I only have one set left. For the first time I am going to have to purchase a set. Where do you get your nebulizing cup and tubing sets? Thank you.

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I buy them where convenient, but I learned one thing – all are not created equal. Now I stick to Pari or Respironics replacements (interchangeable) because the hard plastic mouth pieces on the cheaper ones are uncomfortable, and they don't always dispense evenly. I just looked at a couple of my sources and see they have both stopped putting masks into their kits automatically. Usually I use justnebulizers.com, directhomemedical.com, or whoever is cheaper on any given day. I see they have a new "enhanced" version with a valve that closes when you exhale to avoid wasting the meds – will try that next time.

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@sueinmn

I buy them where convenient, but I learned one thing – all are not created equal. Now I stick to Pari or Respironics replacements (interchangeable) because the hard plastic mouth pieces on the cheaper ones are uncomfortable, and they don't always dispense evenly. I just looked at a couple of my sources and see they have both stopped putting masks into their kits automatically. Usually I use justnebulizers.com, directhomemedical.com, or whoever is cheaper on any given day. I see they have a new "enhanced" version with a valve that closes when you exhale to avoid wasting the meds – will try that next time.

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Thank you.

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@swang18

I saw Dr. Huitt as well, she will retire next year, do you know who you will see next year?

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No, I am scheduled to go back this summer to see her but not sure if I will or just wait till 2022. I am going to send a culture next month so I will decide when I see those results. Last culture showed it almost gone, only 10 colonies. I live in NC and also see Dr Mary Leigh Ann Daniels.

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I have been using the Innospire Go for a couple of years. I recharge it about once a month. I find it so much easier to use especially when I travel. I do t know anyone else that uses it??

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@fdixon63

Hi Jennifer. Not familiar with Coilstin. Is it inhaled? How long have you been using it? I was told my pseudo would respond to Levoflaxin–after checking sputum. he did not say about Toby.he said this regime or PICC line again. I had that back in fall of 2019. Thanks much.

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Hi Fdixon63..Colistin is a nebulized drug,similar to Toby..in Toronto they use cipro and levaquin first before IV’s..less harsh..

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@bnthorson

I have been using the Innospire Go for a couple of years. I recharge it about once a month. I find it so much easier to use especially when I travel. I do t know anyone else that uses it??

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Hello, Yes I had one of those, but I am an impatient sort, and found it slower than my "turtle" (my name for my old faithful green Pari Vios) which only takes 8-12 minutes to dispense 4ml of neb solution. So I trade a little noise for more speedy therapy.
I do take it on trips where space and weight are at a premium.
Sue

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