1. < Transplants

Liver Transplant for Primary biliary cirrhosis (PBC)

Posted by Kari Ulrich, Alumna Mentor @kariulrich, Aug 26, 2011

Would like to hear from anyone who has been through a liver transplant. Both donor and recipient. Thank you- Kari Ulrich

Interested in more discussions like this? Go to the Transplants Support Group.

athenalee | @athenalee | Dec 10, 2021
In reply to @jackie421blfdgurl "Hello Ms. Awesome! Read your posts..hope all goes well with you and the medical experts that..." + (show)
@jackie421blfdgurl

Hello Ms. Awesome! Read your posts..hope all goes well with you and the medical experts that r part of your life.
Wishing you a very happy holiday and to know we are all miracles... Praying new year is
Our bests. Jackie

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Hey Jackie! Always awesome to hear from you! I’m happy to report that I have new health insurance and get to see a new rheumatologist. This doctor was recommended for people with Sjogren’s Syndrome and he is at the hospital where I had my liver transplant. So, I’m hopeful for a more coordinated treatment plan that might help me.

I trust you’re staying out of the hospital and taking care of yourself.

Be safe 😷and happy holidays! Athena

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1 reply
jackie421blfdgurl | @jackie421blfdgurl | Dec 11, 2021
In reply to @athenalee "Hey Jackie! Always awesome to hear from you! I’m happy to report that I have new..." + (show)
@athenalee

Hey Jackie! Always awesome to hear from you! I’m happy to report that I have new health insurance and get to see a new rheumatologist. This doctor was recommended for people with Sjogren’s Syndrome and he is at the hospital where I had my liver transplant. So, I’m hopeful for a more coordinated treatment plan that might help me.

I trust you’re staying out of the hospital and taking care of yourself.

Be safe 😷and happy holidays! Athena

Jump to this post

Hey Athena ..glad to know now u can be in good hands with the help of your insurance...I sure hope it works out...as we all know finding the best doctor for our needs is a tough one...
Yes I do not want to go back to Mt. Sinai....so doing my best to stay far away . Is it snowing up where u r? Today it was windy and 67 degrees!
Holy cow! 😋U stay well and that's an order!!!

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2 replies
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Dec 12, 2021
In reply to @jackie421blfdgurl "Hey Athena ..glad to know now u can be in good hands with the help of..." + (show)
@jackie421blfdgurl

Hey Athena ..glad to know now u can be in good hands with the help of your insurance...I sure hope it works out...as we all know finding the best doctor for our needs is a tough one...
Yes I do not want to go back to Mt. Sinai....so doing my best to stay far away . Is it snowing up where u r? Today it was windy and 67 degrees!
Holy cow! 😋U stay well and that's an order!!!

Jump to this post

@jackie421blfdgurl, As we sit around a virtual kitchen table chatting, I want to say how delightful it is to hear your voice! You have put a smile on my face and I can almost hear your voice saying the words that you wrote, " I do not want to go back to Mt. Sinai….so doing my best to stay far away." I think that nobody wants to go back to the hospital , especially when it is so near the holidays!
Jackie, What are you doing to stay 'far away' from the hospital? Do you have any holiday plans?

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1 reply
athenalee | @athenalee | Dec 12, 2021
In reply to @jackie421blfdgurl "Hey Athena ..glad to know now u can be in good hands with the help of..." + (show)
@jackie421blfdgurl

Hey Athena ..glad to know now u can be in good hands with the help of your insurance...I sure hope it works out...as we all know finding the best doctor for our needs is a tough one...
Yes I do not want to go back to Mt. Sinai....so doing my best to stay far away . Is it snowing up where u r? Today it was windy and 67 degrees!
Holy cow! 😋U stay well and that's an order!!!

Jump to this post

Thank you Jackie and glad you’re staying out of the hospital! Just a couple inches of snow yuck 🤢 thus far. I’m down with that…let the ski resorts have the snow for the tourists to enjoy! I’ll take sunny and 50 in December anytime!

REPLY
jackie421blfdgurl | @jackie421blfdgurl | Dec 14, 2021
In reply to @rosemarya "@jackie421blfdgurl, As we sit around a virtual kitchen table chatting, I want to say how delightful..." + (show)
@rosemarya

@jackie421blfdgurl, As we sit around a virtual kitchen table chatting, I want to say how delightful it is to hear your voice! You have put a smile on my face and I can almost hear your voice saying the words that you wrote, " I do not want to go back to Mt. Sinai….so doing my best to stay far away." I think that nobody wants to go back to the hospital , especially when it is so near the holidays!
Jackie, What are you doing to stay 'far away' from the hospital? Do you have any holiday plans?

Jump to this post

Hi ya Rosy...glad to always year from you...
Well I am on a gluten free diet per all doctors and bathroom issues resolved,
Yea...yahoo...so I feel better, stronger, more
Energy..like the ever ready bunny!!! Lost a lot more weight but now that I CAN KEEP food down I gained 9 lbs...so glad. Aside from that I just take my meds, don't go in crowds always wear my mask stay 6 ft away from people and wash hands, other than that it is in God's hands.I am a bit of a firecracker and I don't think heaven is
Ready for me..Paris trip cancelled..haha
Kidding just b home for holidays see my friend's..I am a home body at heart. Have a
Fabulous Fabulous holiday healthy new year to u and all...jackie

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