Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

To make a reply to me. You can just click on the reply button and type in the box that opens. No name needed. I will get it.

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Thank you for responding to me. James is covered by ins. that is what we were waiting for. UK will give us all the testing info. The med.s info everything UC would need or want. My question is who do I need or how do I need to get an appointment to get things started. I am sorry for going about it this way 15 yrs ago I had a brain aneurysm in the center of my brain sometimes it just doesn't allow me to do what I need to do I'm not quite so elegant as I had been before. Not an excuse I just need help time to time. My Brother don't understand how he can go from a working man to nothing. He wants to go to work an is unable. He has applied for disability an we are waiting to hear. Thank you for your time and help Kim

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@nanaking

Thank you for responding to me. James is covered by ins. that is what we were waiting for. UK will give us all the testing info. The med.s info everything UC would need or want. My question is who do I need or how do I need to get an appointment to get things started. I am sorry for going about it this way 15 yrs ago I had a brain aneurysm in the center of my brain sometimes it just doesn't allow me to do what I need to do I'm not quite so elegant as I had been before. Not an excuse I just need help time to time. My Brother don't understand how he can go from a working man to nothing. He wants to go to work an is unable. He has applied for disability an we are waiting to hear. Thank you for your time and help Kim

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Kim, I have found this information about contacting UC's transplant center. (It is a confusing site)

-In top right you will find a phone number for liver transplant department and an online contact form.

- If you scroll to bottom you will come to a link to schedule a consult.

Is there any reason that UK did not do this already? They should be able to make contact and referral for him.

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@nanaking

Thank you for responding to me. James is covered by ins. that is what we were waiting for. UK will give us all the testing info. The med.s info everything UC would need or want. My question is who do I need or how do I need to get an appointment to get things started. I am sorry for going about it this way 15 yrs ago I had a brain aneurysm in the center of my brain sometimes it just doesn't allow me to do what I need to do I'm not quite so elegant as I had been before. Not an excuse I just need help time to time. My Brother don't understand how he can go from a working man to nothing. He wants to go to work an is unable. He has applied for disability an we are waiting to hear. Thank you for your time and help Kim

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Kim,
Is your brother getting any medical care during this interval between UK and now? Sometimes the symptoms of liver disease and liver failure can cause mental changes and need to be monitored and treated by liver doctor or gastroenterologist (GI).
My health changed over a period of months, and it is frightening. I imagine that your brother is frustrated by the changes happening.
I did not apply for disability because I had already retired. I hope he hears from them soon.

Here is some information about Liver Disease he might want to look at.
https://www.mayoclinic.org/diseases-conditions/liver-problems/symptoms-causes/syc-20374502

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@nanaking

He was getting care at UK an I moved him up to OH They have him on meds. But he is getting defiant with me. I don't know how to get him taken care of. We do have a referral through UK My name is Kimalene King. I should have said that first. He was on the transplant list an he told them he didn't have family. He thought we would have to pay. Can you please set me in the right direction.
Thank you for your help

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Hi @nanaking, you'll notice that I removed your phone number and your brother's full name. Connect is a public forum, so we recommend not sharing personal identifying information of others or personal contact information. I'm glad you've connected with others here.

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@nanaking

Thank you for responding to me. James is covered by ins. that is what we were waiting for. UK will give us all the testing info. The med.s info everything UC would need or want. My question is who do I need or how do I need to get an appointment to get things started. I am sorry for going about it this way 15 yrs ago I had a brain aneurysm in the center of my brain sometimes it just doesn't allow me to do what I need to do I'm not quite so elegant as I had been before. Not an excuse I just need help time to time. My Brother don't understand how he can go from a working man to nothing. He wants to go to work an is unable. He has applied for disability an we are waiting to hear. Thank you for your time and help Kim

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@nanaking It sounds as if you heading in the right direction, and @rosemarya is such a great help. I am sure if you follow her suggestions you will be on the right track.
I hope your brother will be cooperative, and his defiance will not stand in the way of getting him the help he needs.
JK

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@nanaking

Yes he is being treated

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Kim, He is very fortunate to have a sister like you to take on a caregiving role and get the connections and details arranged for him. I imagine that right now he is overwhelmed with worry and not feeling good, either.
Was the contact information helpful for you?

Please tell me what I can do to lend support for you or for him. I try to check my messages regularly and be available.

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@rosemarya

Kim, He is very fortunate to have a sister like you to take on a caregiving role and get the connections and details arranged for him. I imagine that right now he is overwhelmed with worry and not feeling good, either.
Was the contact information helpful for you?

Please tell me what I can do to lend support for you or for him. I try to check my messages regularly and be available.

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@nanaking @rosemarya Rosemary is a big step ahead of me on this, but I too will do whatever I can to help you and to lend support. I too have been through a liver transplant due to NASH cirrhosis so I know how overwhelming everything can be.
JK

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I suggest you have military retirees n veterans section
We have vet care which is not worthy in my opinion but some give vets choice to go civil care
Retirees have tricare n tricare for life
But I’ve waited 6 years for care
The va treatetme for diabetes when it was liver failure
Now it may be too late

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