Liver transplant - Let's support each other

Hello Group. Did anyone have infection complications after a liver transplant, e.g., staph bacteria or cytomegalovirus? If so, would you be willing to share (either publicly on the forum or message me) your experience and the time line for recovery from such infection(s) once treatment was initiated? Thank you!

Hi @michaelswaim I too welcome you to Connect. Congratulations on your transplant. I am 3.5 years post-transplant (liver). I also never had noticeable problems with my medications. Initially, they were adjusted a number of times but they have been stable for a very long time now. The only problem I did have was that tacrolimus caused my creatinine number to be high so after trying to bring it down by drinking 80-100 ounces of water a day, which helped but not enough, they switched me to sirolimus.
It sounds as if you are doing great, I hope you continue to feel well. These times are trying for everyone, but most particularly with us on immunosuppressants. We are being as careful as humanly possible I think.
JK

@michaelswaim,, Hi, Michael and welcome to Mayo Connect. As fellow transplant recipient, I am thrilled to meet you. Congratulations on your transplant. I read on your profile that you are a liver and kidney recipient; so am I. I transplanted at Mayo Rochester in 2009, and my donor was an anonymous deceased donor. I had PSC (Primary Sclerosing Cholangitis).

Michael, Would you tell us about your experience? How is your first year going?
- Please remember that this is a public forum, so it is okay to share only what you are comfortable to share.

Hi everyone. I'm new, not even a year post transplant

It was not with tacrolimus but with specialty injections to boost my white blood cell count. It was so frustrating they will be my last option.

A local CVS in Beaufort NC They called other CVS stores and said they could not get any. I found a supply at an independent pharmacy but Medicare would not pay for it and would be out of my pocket even though my doctor called it in.

@jerrynord Hi I also use mail-order cvs caremark and have had no issues getting my Tacrolimus so I'm a bit surprised you are having issues. Are you getting it from a local CVS store or by mail-order?
Have a blessed day
Dana

I was finally notified by CVS yesterday that they are unable to obtain my Tacrolimus and have contacted by doctor at Mayo for a substitute.
This week my Mayo coordinator said he put an order into Caremart and I should get it by thursday. I have enough until then. CVS asked me to look around also.
Keeping fingers crossed for next week delivery.

@benlam That's terrible that you have had problems with the CVS Specialty pharmacy. I have nothing but praise for the one in Boston. They call me in advance of shipping my prescription and most of the time I have them ship it to my local CVS so I don't have to be home to sign for it. Now, since I am home all of the time anyway, they are shipping it to my home. They know I want the same generic all of the time and have always abided by that. One time they did ship a different generic and when I called they rushed the correct one up here.
I have never used any other than the one in Boston, they have not passed me to other CVS pharmacies.
JK

Also try Osteen's here in Jacksonville. They are a local pharmacy and they also do home delivery. They are who does all the initial deliveries of medications to Mayo for transplant patients. They are sure to have it.