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Liver transplant - Let's support each other

Transplants | Last Active: 8 hours ago | Replies (1573)

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@xplantsister

Hello Group. Did anyone have infection complications after a liver transplant, e.g., staph bacteria or cytomegalovirus? If so, would you be willing to share (either publicly on the forum or message me) your experience and the time line for recovery from such infection(s) once treatment was initiated? Thank you!

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Replies to "Hello Group. Did anyone have infection complications after a liver transplant, e.g., staph bacteria or cytomegalovirus?..."

Xplantsister- I contracted CMV (cytomegalovirus) 2 months after my liver transplant in 2016. I told people at that time that the disease was like having mono on steroids. My treatment consisted of having a PICC line inserted for in home infusions of 450 mg of Ganciclovir In a 100ml bag. Each session lasted an hour and had to take place every 12 hours. Was also put on Prednisone and Prograf at the same time. Hope this information was somewhat helpful.

@xplantsister Hi I welcome you to connect and I did contract CMV from my donor. Mine was not a liver but a heart so I may not know all treatment plans for that virus. As you may know following transplant we are put on Bactrium to help with fighting this type of virus. In my case shortly after the initial 6 months I was not detected but when they took me off is when it presented itself. So they put me back on Bactrium but a higher dose. It was double what I took just after transplant for 2 weeks. For me I guess I was lucky since I did not have any symptoms of CMV so I was on the bacterium , but it went away and I get tested every month but so far it has not returned. So I hope you too will have a speedy recovery with minor symptoms.
Have a blessed Day
Dana