Liver transplant - Let's support each other

@athoub Welcome to Connect. I see that you are a liver transplant recipient. I invite you to say Hi and tell us a little about yourself.
Can you scroll back a page - that is where you can see the most recent posts.

Rosemary, my son said nothing is cast in concrete, it depends on the situation. Since things are surging once again I really hope they will cancel going. The south is not doing well and now CO has crossed over from doing well to not as well. NH has done surprisingly well.

It's interesting that the states like NY that had the worst numbers are doing very well now. Obviously the population there has been diligent following the precautions as they have in MA too. It's so crazy that some people think of wearing a mask as infringing on their rights!
JK

You are awesome! Thank you for sharing. I am comstantly amazed at how much alike and how different we are! And do you know the most wonderful part? We are getting the medical care that we need as we protect our cherished transplanted organs.

@cmael, I thought of you while I was in the waiting room in the Charlton lab! I hope that you will see positive results with your labs and sighs of BK virus. Is there a specific lab for BK virus, or is it minitored thru other kabs? (I think I have noticed a BK lab result in my annual labs, but not really sure)

@racing212, It is nice to be close to the clinic, isn't it. On nice days my husband and I like to walk outside instead of the walkway from our hotel. The weather should be pleasant in the fall.

@jodeej, I'm thinking about you and Tim. Hope the visit is going smoothly. Is this a 2 or 3 day visit? What are you choosing from the Honker menu? My choice is Canadian Walleye, and coconut cake for a splurge!

@contentandwell, you are such a good mom. I know that they care as much about your safety as you about their safety. As transplant recipients, we have to be extra careful. We also have an advantage over the rest of the population because we are accustomed to practicing safe distancing and hand cleaning.

@danab, I am happy that you are learning the routine by going back and forth for tests, but sorry that you have to do during these challenging times. Enjoy your blessings along the way, and a safe return to in-person church when the time is right for you. My church has demonstrated a safe reopening with live broadcast for the at-risk population. I will grab my violin and take my already safe seat in 2 weeks when the music director returns from vacation.

@wildcat, We would love to hear from you. What is going on with your transplant care in Scotland?

@benlam11, Thanks for telling us how good it can be when our local doctor works in coordination with our transplant department! I realize that each of our areas are at different locals on coronavirus activity so you are doing the right think to protect yourself. Are you able to get outside and take a walk?

When you share - You are offering support and hope to someone who will read your story. Life is Good!
and You Look Great in that Mask 😷

You are awesome! Thank you for sharing. I am comstantly amazed at how much alike and how different we are! And do you know the most wonderful part? We are getting the medical care that we need as we protect our cherished transplanted organs.

@cmael, I thought of you while I was in the waiting room in the Charlton lab! I hope that you will see positive results with your labs and sighs of BK virus. Is there a specific lab for BK virus, or is it minitored thru other kabs? (I think I have noticed a BK lab result in my annual labs, but not really sure)

@racing212, It is nice to be close to the clinic, isn't it. On nice days my husband and I like to walk outside instead of the walkway from our hotel. The weather should be pleasant in the fall.

@jodeej, I'm thinking about you and Tim. Hope the visit is going smoothly. Is this a 2 or 3 day visit? What are you choosing from the Honker menu? My choice is Canadian Walleye, and coconut cake for a splurge!

@contentandwell, you are such a good mom. I know that they care as much about your safety as you about their safety. As transplant recipients, we have to be extra careful. We also have an advantage over the rest of the population because we are accustomed to practicing safe distancing and hand cleaning.

@danab, I am happy that you are learning the routine by going back and forth for tests, but sorry that you have to do during these challenging times. Enjoy your blessings along the way, and a safe return to in-person church when the time is right for you. My church has demonstrated a safe reopening with live broadcast for the at-risk population. I will grab my violin and take my already safe seat in 2 weeks when the music director returns from vacation.

@wildcat, We would love to hear from you. What is going on with your transplant care in Scotland?

@benlam11, Thanks for telling us how good it can be when our local doctor works in coordination with our transplant department! I realize that each of our areas are at different locals on coronavirus activity so you are doing the right think to protect yourself. Are you able to get outside and take a walk?

When you share - You are offering support and hope to someone who will read your story. Life is Good!
and You Look Great in that Mask 😷

You are awesome! Thank you for sharing. I am comstantly amazed at how much alike and how different we are! And do you know the most wonderful part? We are getting the medical care that we need as we protect our cherished transplanted organs.

@cmael, I thought of you while I was in the waiting room in the Charlton lab! I hope that you will see positive results with your labs and sighs of BK virus. Is there a specific lab for BK virus, or is it minitored thru other kabs? (I think I have noticed a BK lab result in my annual labs, but not really sure)

@racing212, It is nice to be close to the clinic, isn't it. On nice days my husband and I like to walk outside instead of the walkway from our hotel. The weather should be pleasant in the fall.

@jodeej, I'm thinking about you and Tim. Hope the visit is going smoothly. Is this a 2 or 3 day visit? What are you choosing from the Honker menu? My choice is Canadian Walleye, and coconut cake for a splurge!

@contentandwell, you are such a good mom. I know that they care as much about your safety as you about their safety. As transplant recipients, we have to be extra careful. We also have an advantage over the rest of the population because we are accustomed to practicing safe distancing and hand cleaning.

@danab, I am happy that you are learning the routine by going back and forth for tests, but sorry that you have to do during these challenging times. Enjoy your blessings along the way, and a safe return to in-person church when the time is right for you. My church has demonstrated a safe reopening with live broadcast for the at-risk population. I will grab my violin and take my already safe seat in 2 weeks when the music director returns from vacation.

@wildcat, We would love to hear from you. What is going on with your transplant care in Scotland?

@benlam11, Thanks for telling us how good it can be when our local doctor works in coordination with our transplant department! I realize that each of our areas are at different locals on coronavirus activity so you are doing the right think to protect yourself. Are you able to get outside and take a walk?

When you share - You are offering support and hope to someone who will read your story. Life is Good!
and You Look Great in that Mask 😷

@rosemarya Hi and great to hear everything went well. I actually have been to Mayo Phoenix a few times now for labs and a Drs apt. Plus some testing on a issue im having with my prostate. I saw a little blood just a few drops while urinating but had a zoom visit with that doctor and following up next month in person. But just as you said Mayo is doing well keeping us safe and I did get tested for covid for a Angiogram test and was negative. I decided back when this started not to go to outside labs mainly because the ones near me were usually crowded and I believe at Mayo labs it was safer.
I've had a couple of IVIG treatments also and everyone is masked plus sanitizing so feeling pretty good about the risk of catching it.

I was a little concerned tho on an article from the journal of Medicine that mentioned a study done in England that is showing certain blood types get the virus more severe and mine was at the top Type A and O was the least likely to get a severe case.

Also, it seems my area in Arizona is having a bit of an increase and even in my area there have been some deaths so im staying vigilant not exposing myself like it seems others are
Still attending Church Services online and only getting out during my morning walks. My wife what a trooper is doing most of the other needs like grocery shopping, Mail box checking etc. I am missing all the things I used to love Attending Church, Golf, eating out with friends so im looking forward to a vaccine it seems is the only solution for us transplant folks. We did do a hotel stay for a few days when I had my angiogram so my wife could have somewhere to wait.
I thought the hotel did great on keeping everyone safe. Staff wore masks and room cleaning was between guest stays. If we wanted towel exchange we would put them in a bag and the fresh one's would be given at the door. Well that's about it.
Have a Blessed Day
Dana

Are you keeping up with your routine transplant medical care?

I have safely traveled by car and had my annual checkup for my liver and kidney transplant. My original appointment that was set for late April was rescheduled for June. When it was confirmed that my June appointment was going to happen, I was not sure if I wanted to keep the appointment. Like many of you, I live at a distance from my transplant center. I was afraid of the travel, lodging, eating along the way.
Now, that I have the experience behind me, I am happy that I took advantage of the safe travel guidelines that Mayo has shared. My husband and I made the trip and were able to protect ourselves as we made the 750 mile trip.
The entire staff and patients at Mayo were exceptional in their adherence to safe protocol. I do have to admit, though, that I am happy to be back in my home, safe and secure. I am even happier that I had another thorough checkup for my beautiful transplant!
Safe Travel Tips - https://www.mayoclinic.org/diseases-conditions/coronavirus/in-depth/coronavirus-safety-tips/

-Since we are practicing safe distancing, There is plenty of room for everybody. New Members Welcome.
Welcome back - @michaelswaim, @jerrynord, @tjgisewhite, @autoimmunecirr, @gphetteplace, @frmike, @jacinta, @jsw, @contentandwell, @benlam11, @brantodd1, @xplantsister, @wildcat, @des46893, @msgtrebholtz, @gaylea1, @joanaiken, @rowdyramsey, @stella25, @ca426, @jeanne5009, @jdlogan65, @jacqualin, @jolinda, @beckyy39, @jodeej, @racing212, @manuelhsilva, @brianna, @danab, @khh, @seahorstmayo, @suzeaz, @birdienanie, @biteme, @lisamb, @1bigblacksuv, and anyone that I missed.

How are you keeping up with your routine transplant medical care? Have you kept up with labs? Have you had a virtual visit? Have you had an in-person visit?

@wildcat,i @xplantsister
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