Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

@rosemarya

@stella25, Awesome that he is ready and able to return to work! Have his co-workers seen him since his transplant? I would bet that he is a changed man with his new liver.
Will he have to be around people? In addition to the current Covis-19 safety precautions, will he be making any other physical adjustments to his work place such as his own physical limitations? Will he be able to work a regular schedule or will he be on reduced hours due to possible energy level?
This is exciting!

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@rosemarya OMG he looked like a boy when he went into the hospital. He was so thin & yellow, just a shadow of himself. Today he looks like the man he was meant to be!! Some of his coworkers had a surprise social-distance gathering for him in their office parking lot just after Christmas. They had a big basket of gifts for him (blanket, socks, sweatshirt, cocoa, popcorn, etc.). It was so sweet of them. They even had gifts for me & my husband just for taking good care of Dan:-) We have been humbled by the kindness of people. Dan works for a company that manufactures medical equipment. They are currently producing Covid-19 testing kits. It's already a sterile environment so that's a huge plus. He is a quality manager so he will be able to do much of his work at a desk for as long as necessary. It's a good company that he has been with for almost 10 years & is well liked & appreciated. They were super accommodating during his struggles with PSC. I have no doubt they will allow him to ease back into his work schedule. It is exciting! I know he is anxious to get outdoors & do some hiking. Hopefully soon:-)

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@athenalee

I had mine at Lahey Hospital and Medical Center. Their team approach is excellent. I was in the hospital for a month and a week due to a reaction to prednisone and had to be sent home on a dreadful feeding tube to get more protein in me.

How is your recovery going? Are you home and able to get around some? Take your drugs as directed! I’ve done lots of research on when and how to take the anti rejection meds and what other meds and herbs, such as echinacea, interfere with the metabolism of our anti rejection meds. Until my disease I had only taken natural supplements and homeopathics, So, it’s been a tough adjustment!

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@athenalee, You are absolutely correct! Take medications as directed. As an experienced 11 year recipient, I might add: Always check with your doctor before introducing any over-the-counter meds, supplements (natural or otherwise), or vitamins. Research is good as long as you use reputable sources. Be wary of sales promotions that claim to be reliable research.

In addition to taking immunosuppressant meds according to directions, it is extremely important to be aware of some of the side effects that can occur. Did you know that certain common foods can interact with immunosuppressant meds?
Here is an article from the Mayo Clinic staff where you can read more - Immunosuppression: Watching For and Managing Side Effects
https://connect.mayoclinic.org/page/transplant/newsfeed-post/immunosuppression-watching-for-and-managing-side-effects/

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@stella25

My son had his transplant 11/22/20. He's doing fantastic. Plans to return to work in 2 weeks.

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@stella25, Awesome that he is ready and able to return to work! Have his co-workers seen him since his transplant? I would bet that he is a changed man with his new liver.
Will he have to be around people? In addition to the current Covis-19 safety precautions, will he be making any other physical adjustments to his work place such as his own physical limitations? Will he be able to work a regular schedule or will he be on reduced hours due to possible energy level?
This is exciting!

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@sue6175

I would like to become acquainted with other liver transplant patients also. Had mine in 2013.

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My son had his transplant 11/22/20. He's doing fantastic. Plans to return to work in 2 weeks.

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@tjgisewhite

@athenalee, I would like to congratulate you too on your recent liver transplant. I had my liver transplant in Dec of 2019 here in Jacksonville. Where did you have yours?

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I had mine at Lahey Hospital and Medical Center. Their team approach is excellent. I was in the hospital for a month and a week due to a reaction to prednisone and had to be sent home on a dreadful feeding tube to get more protein in me.

How is your recovery going? Are you home and able to get around some? Take your drugs as directed! I’ve done lots of research on when and how to take the anti rejection meds and what other meds and herbs, such as echinacea, interfere with the metabolism of our anti rejection meds. Until my disease I had only taken natural supplements and homeopathics, So, it’s been a tough adjustment!

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@rosemarya

@athenalee, I would like to congratulate you on your recent liver transplant. I want to invite you to meet other liver transplant recipients in this liver support group.

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@athenalee, I would like to congratulate you too on your recent liver transplant. I had my liver transplant in Dec of 2019 here in Jacksonville. Where did you have yours?

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I go there every 6 months for follow ups. I'm in stage 4 liver disease and have a tumor on one of my kidneys

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@racing212

I'm going to Rochester Mayo super bowl Sunday for 3 days of tests

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It will be busy....you will be amazed and will learn a lot!

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@sue6175

I would like to become acquainted with other liver transplant patients also. Had mine in 2013.

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I'm going to Rochester Mayo super bowl Sunday for 3 days of tests

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@rosemarya

@athenalee, I would like to congratulate you on your recent liver transplant. I want to invite you to meet other liver transplant recipients in this liver support group.

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I would like to become acquainted with other liver transplant patients also. Had mine in 2013.

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