Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

Rosemary, Volunteer Mentor | @rosemarya | Feb 16, 2021

In reply to @racing212 "Thanks. I'm doing ok just wasn't expecting to hear that. I'm not sure how that affects..." + (show)

@racing212, I'm going to be thinking of you as you move forward. Sorry to learn of this barrier in front of you.
I see that you are connecting with others in the Kidney groups that Colleen shared with you.

Are there any extra labs, or tests, or follow-up monitoring that will be done locally between now and your next Mayo appointment?
Hang i there, racing212.

Colleen Young, Connect Director | @colleenyoung | Feb 14, 2021

In reply to @racing212 "Send me to the message board for kidney cancer" + (show)

@racing212, you will find people talking about kidney or renal cancer in the Cancer group: https://connect.mayoclinic.org/group/cancer/
Here are some specific discussions:
- Re: My Scan Results for followup of Renal Cell Carcinoma https://connect.mayoclinic.org/discussion/re-scans/
- Sutent for renal cell carcinoma: What are the side effects? https://connect.mayoclinic.org/discussion/sutent/
- Staging Renal Cell Carcinoma https://connect.mayoclinic.org/discussion/renal-cell-carcinoma-1/

racing212 | @racing212 | Feb 14, 2021

In reply to @racing212 "Thanks. I'm doing ok just wasn't expecting to hear that. I'm not sure how that affects..." + (show)

Send me to the message board for kidney cancer

racing212 | @racing212 | Feb 14, 2021

Thanks. I'm doing ok just wasn't expecting to hear that. I'm not sure how that affects the liver wait time

Colleen Young, Connect Director | @colleenyoung | Feb 14, 2021

In reply to @racing212 "I was at Mayo MN over the week and my meld score went up and I..." + (show)

@racing212, I'm sorry to hear the news about their finding kidney cancer. How does this affect the waiting for a liver transplant?

Let me know if you'd like to connect with others who have kidney cancer.

racing212 | @racing212 | Feb 13, 2021

In reply to @rosemarya "@jackie421blfdgurl, I am in Kentucky and my transplant Center in in Minnesota (750 miles). I can..." + (show)

I was at Mayo MN over the week and my meld score went up and I also was told that I have kidney cancer

Colleen Young, Connect Director | @colleenyoung | Feb 10, 2021

In reply to @tgm512500 "This was very helpful Thanks" + (show)

Hi @tgm512500, welcome. Are you a liver transplant recipient? I would like to learn more about you and your transplant story.

jackie421blfdgurl | @jackie421blfdgurl | Feb 5, 2021

In reply to @jackie421blfdgurl "Yes MRI was complicated yesterday my doctor already has report but now needs the disk. Don’t..." + (show)

I picked up the report and disc
From radiologist. I read report
Apparently there is a collection
Of fluid that builds up under skin after surgery it's composed of blood
plasma that seeps out of ruptured bld
Vessels...if this is my denarii
Draining maybe !! I see doctor
Monday...thanks for asking

jackie421blfdgurl | @jackie421blfdgurl | Feb 4, 2021

In reply to @rosemarya "@jackie421blfdgurl, I hope that you get satisfactory results from your MRI. Is it this week? I..." + (show)

Yes MRI was complicated yesterday my doctor already has report but now needs the disk. Don’t know anything. But I will get her the disk we have an appointment nx
Thursday. Thanks for asking. I am praying a pill will solve this.