Liver transplant - Let's support each other

Hello,
My name is Susan and I have been diagnosed with cirrhosis and HCC. My current question is what is the age limit for a liver transplant at Mayo Clinic in Florida? Current requirements to qualify for a transplant, how distance from the facility affects patients order for transplant, and current exception points/requirements for patients with HCC.

My husband's main drug is Everolimus for antirejection. Have ongoing ascites issue but seems to be slowing. We're still in the 6 month post surgery acute period so patience must be practiced. Quite a journey!

@alliepete I'm happy to hear that your husband's nausea is getting better with zofran. I never had that problem but I have heard a lot of people do lose their appetites. I do know that I was not on Cellcept for too long. Discontinuing that was the first drug change they made I think. Now I am just on sirolimus - tacrolimus was causing potential kidney problems. I will be five years post next week.
JK

It seems to be a Cellcept issue maybe, but he used one compazine suppository last Thursday and it was miraculous...he also started a zofran regimen three times a day before meals, and he's doing great. Has gained 4 pounds. Fingers crossed! They're going to change out the cellcept to something with less stomach side effects. Thank you.

Hi @alliepete, allow me to welcome you. Sorry for the delay. You'll want to also meet @rosemarya @contentandwell @gaylea1 and others here.

Has your husband's nausea improved with increasingly his magnesium levels?

My husband had a liver transplant in May so we are very new, learning of post transplant life is so helpful. He's just recently developed a nausea problem seemingly initially related to low magnesium. Also has post transplant ascites wearing a drain but it does seem to be slowly reducing.

@jennkat73, It has only been a couple of weeks, but I want to check in with you. How are you progressing with your effort to keep your "levels" as normal as possible? Did you finish your evaluation for transplant?

@melody12, I had a hernia procedure after my 1st year after i developed infection and sepsis due to a kink my bile duct connection. After the infection was controlled, I had a simpler surgery than you are facing. I want to tag the following members to meet you and to help you as you prepare for your surgery.
@terry14, @jackie421blfdgurl, @cehunt57, @btwest6, @rfriend50

Here is a discussion where you can learn more about their experiences.
https://connect.mayoclinic.org/discussion/incisional-hernia/

the concern is that I am trying to keep my "levels" as normal as possible so that I do not need to keep repeating tests. (Potassium) is a big one. I am finally eating (smoothies w/protein) some chicken when I can handle it. My concern is the absorption staying in my system.

Disregard, last post. See it is still active. I am 1 yr. post Liver Transplant and now facing another related surgery. It is called a Hernia, for the lack of a better word. I have to have a complete Abdominal Wall Reconstruction. For months my pain was chalked up to nerve damage. Many tests were done and repeated to no avail. Now I look like I am pregnant, but only on my right side. Due to pain and lack of any exercise, I have gained roughly 40 lbs. Now, I have to lose 30lbs for surgery. Hernia Dr., said he can’t perform surgery and referred me to Trauma Surgeon who will operate with a plastic surgeon. Long operation and recovery ahead. Posting to alert others of symptoms and also looking for feedback.