Liver transplant - Let's support each other

I was told by the transplant doctors to only use Tylenol, nothing else.

I can't say that it has happened to me. I've been incredibly lucky so far and have had a very close relationship with my post-transplant nurse practitionerat Mayo, so the one time I had a temperature, she was right on top of it. Her advice, I trust implicitly.

Tylenol and over the counter medicines for transplant recipients is something that many of my nontransplant friends do not understand. Although they have the best intentions, they have occasionally given me unsolicited advice. Has that ever happened to you? I am extremely thankful for this Mayo Connect online Community where we can openly share, support, learn together while always adhering to the advice of our own transplant team.

@marilynwhitlock, I am so glad that you brought up the question about Tylenol to the attention of this group! I don't know how long ago you had your transplant, but you are absolutely correct to ask questions when there is any doubt or uncertainty.

I had a recent experience that I want to share because it relates to this topic. 2 weeks ago, on a Sunday morning I went to my local ER due to a quickly rising temperature and intense shivering. . Since I was a transplant recipient, I was immediately tended to (I had called in advance, and surprisingly the ER was not busy at 6AM) I was given IV Tylenol to bring down 103 fever, and had all kinds of lab tests that all came back negative according to the doctor. When the discharge nurse removing the IV and getting me ready for discharge, she told me that I could continue to take Tylenol, or - Motrim (for some leg soreness from previous day yardwork). She acted surprised when I said no to the Motrim, I did not consider her to be qualified to tell me that, plus I did not need it.
@kathycaudle, @jerrynord, @silverwoman,@marilynwhitlock @ronromo - Has anything like that ever happened to you when being seen by a nontransplant health provider? How did you respond?

I was told only Tylenol and up to 2000 mg./day.

I agree with Rosemary. I was told only Tylenol. How often you can take it per day I don't remember.

Yes, Thank you!

Hi...I received my liver transplant 11/10/19 and was told to take tylenol only...hope this helps🤗

@marilynwhitlock, Hi Marilyn and welcome to Connect.
My post transplant takehome notebook says that we, transplant recipients can take Tylenol.
It also says that we should NOT take aspirin or other pain relivers (Advil, Aleve, Ibuprofen, Motrim, Excedrine, etc) - UNLESS your transplant physician ordered it.

Remember to read and observe the allowed dosage on the package. Don't exceed the maximum.
I hope this helps.
Is this a sudden or a chronic pain?

I cant remember, for liver transplant patients, which is better to take when need for back pain? Ibuprofen or Tylenol ?

@alliepete, I want to take this opportunity to extend my welcome to Mayo Connect. I have been taking cellcept and tacrolimus for my liver/kidney transplant for 12 years. I am unfamiliar with Everolimus except by name recognition, and I read that your husband is taking it. At 6 months post transplant, he can expect medication and/or dosage adjustments until his body responds well to one. He will need to be taking it for the rest of is life, so patience, as you say must be practiced.
What kind of progress is he having with reduction of ascites?