Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

Rosemary, Volunteer Mentor | @rosemarya | Nov 16, 2022

In reply to @arqui02000 "rosemary do you know anyone has received a SECOND TRANSPLANT?" + (show)

@arqui02000 - Is a second liver transplant in your future?
I want to invite @btg to this conversation. I believe that he has received a 2nd liver transplant.

arqui02000 | @arqui02000 | Nov 16, 2022

In reply to @rosemarya "Flu Season is here - and - In case you overlooked this New Transplant Blog post......" + (show)

rosemary do you know anyone has received a SECOND TRANSPLANT?

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racing212 | @racing212 | Nov 15, 2022

In reply to @colleenyoung "@racing212, how are you doing?" + (show)

I'm doing ok, was at mayo in September and they said my liver is getting worse and I go back in January

Colleen Young, Connect Director | @colleenyoung | Nov 15, 2022

In reply to @racing212 "Thanks, I'll be going back in the fall for More tests" + (show)

@racing212, how are you doing?

Lori, Volunteer Mentor | @loribmt | Nov 3, 2022

In reply to @rosemarya "Flu Season is here - and - In case you overlooked this New Transplant Blog post......" + (show)

Got my flu shot vaccine yesterday! ☺️

Rosemary, Volunteer Mentor | @rosemarya | Nov 3, 2022

Flu Season is here - and - In case you overlooked this New Transplant Blog post... Here is Information for you and for your family and friends:

A Challenging Flu Season Ahead: https://connect.mayoclinic.org/blog/transplant/newsfeed-post/a-challenging-flu-season-ahead/

Have you gotten your flu vaccine yet?

arqui02000 | @arqui02000 | Oct 7, 2022

In reply to @btg "Thanks, Rosemary. I do exercise six days a week, usually 1.5 to 2 hour walks as..." + (show)

Bryan keep doing exercise that really help me and still helping me after 30 month of liver transplant

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Rosemary, Volunteer Mentor | @rosemarya | Oct 6, 2022

@arqui02000, I want to invite you to this discussion group where I have located a conversation among several members about TIPS procedure. You will need to scroll backwards or go to page 91 (see the order and page listings at top of this page) where where @marinab introduced questions about TIPS on Jan. 28, 2022.
Members may or may not be on-line, but you can read about what they have experienced.

marinab | @marinab | Oct 5, 2022

My husband is finally starting to settle down 4 months after TIPs procedure. His ascites has reduced greatly although not completely. He did have accute Edema in his whole leg area but that is also under control now after diuretics. His amonia level has gone up though and I was wondering besides lactulose 3 times a day and Xifaxan is there anything else I can give him to control this as the last couple of days he is not quite present and his co-ordination is a bit off, especially at night. Are there any natural food he should take like citrus or coconut water? Are these effective for TIPs patients?