Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

The start of my concern only came up during pre-op blood tests for another situation- I have never been a drinker or drug user.

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@colleenyoung

Welcome @maw90455, several members have or have had liver conditions such as cirrhosis, NASH and NAFLD and awating transplant. To help you connect easily with other members living with liver conditions and awaiting transplant and those who have received a liver transplant, I moved your post to this discussion:
- Liver transplant - Let's support each other https://connect.mayoclinic.org/discussion/liver-support-group/

Maw, can you share a bit more about yourself so @rosemarya can help connect you with members and discussion topics relevant to you? Are you on a transplant list? How are you doing?

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I am not yet on a transplant list-I am going for scans and blood tests every 60 days.-I am always exhausted, and never concerned about eating-not sure what else you want me to say about my situation-not sure if related, but my BP seems to be like a roller coaster every other day-and on daily BP medications.

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@maw90455

WONDERING WHETHER ANYBODY ELSE HAS THESE ISSUES, FOR HOW LONG, ANY SYMPTOMS, AND HOW WAS IT DIAGNOSED-- AND WHAT IS YOUR PROGNOSIS-HAS THERE BEEN TRANSPLANT DISCUSSION? MELD SCORE IS 14-DIAGNOSED WITH BLOOD TESTS, ULTRASOUND, AND BIOPSY 5 MONTHS AGO-TO ANYBODY AND EVERYBODY... STAY HEALTHY

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Hi, @maw90455, and Welcome. By way of introduction I am a liver/kidney recipient, and I would like to thank you for your "Stay Healthy" message to everyone! I hope that thru your conversations and participation that you will learn along with other who are so generous to share their experiences.

Many patients with liver disease and transplants have a common bond thru our common connections with cirrhosis and multiple tests and scans.

I am eager to help you connect with others. Are you being considered for a transplant? Have you been diagnosed with NASH of NAFLD?

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@maw90455

WONDERING WHETHER ANYBODY ELSE HAS THESE ISSUES, FOR HOW LONG, ANY SYMPTOMS, AND HOW WAS IT DIAGNOSED-- AND WHAT IS YOUR PROGNOSIS-HAS THERE BEEN TRANSPLANT DISCUSSION? MELD SCORE IS 14-DIAGNOSED WITH BLOOD TESTS, ULTRASOUND, AND BIOPSY 5 MONTHS AGO-TO ANYBODY AND EVERYBODY... STAY HEALTHY

Jump to this post

Welcome @maw90455, several members have or have had liver conditions such as cirrhosis, NASH and NAFLD and awating transplant. To help you connect easily with other members living with liver conditions and awaiting transplant and those who have received a liver transplant, I moved your post to this discussion:
- Liver transplant - Let's support each other https://connect.mayoclinic.org/discussion/liver-support-group/

Maw, can you share a bit more about yourself so @rosemarya can help connect you with members and discussion topics relevant to you? Are you on a transplant list? How are you doing?

REPLY

WONDERING WHETHER ANYBODY ELSE HAS THESE ISSUES, FOR HOW LONG, ANY SYMPTOMS, AND HOW WAS IT DIAGNOSED-- AND WHAT IS YOUR PROGNOSIS-HAS THERE BEEN TRANSPLANT DISCUSSION? MELD SCORE IS 14-DIAGNOSED WITH BLOOD TESTS, ULTRASOUND, AND BIOPSY 5 MONTHS AGO-TO ANYBODY AND EVERYBODY... STAY HEALTHY

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@rosemarya

@silvergirl36, I see that you have recently joined Mayo Connect, and I want to Welcome you. I am a liver and kidney transplant recipient and I love your online name! Do you have silver hair?
I notice that you have reached out to a member about sharing a transplant story. Here is a link to a discussion group where many members have already shared their stories.
https://connect.mayoclinic.org/discussion/organ-donation-and-transplant-what-is-your-story/
Silvergirl, What brings you to Connect?

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Thank you! My last name is Silver. 😉

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@silvergirl36

Can you tell us your story after receiving your transplant?
What were some of the things you experienced and how did you deal with them?

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@silvergirl36, I see that you have recently joined Mayo Connect, and I want to Welcome you. I am a liver and kidney transplant recipient and I love your online name! Do you have silver hair?
I notice that you have reached out to a member about sharing a transplant story. Here is a link to a discussion group where many members have already shared their stories.
https://connect.mayoclinic.org/discussion/organ-donation-and-transplant-what-is-your-story/
Silvergirl, What brings you to Connect?

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@parmcat

Awesome!!! I am so happy for you!!!!!!!

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Can you tell us your story after receiving your transplant?
What were some of the things you experienced and how did you deal with them?

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@sarah82, I want to invite you to this transplant discussion group.

Connect is a community of patients, and we do not interpret test results. Since you have recently been diagnosed with cirrhosis, this is a good place to meet others who have experienced a new diagnosis and can share experiences.
What is your diagnosis? What do you want to ask here?

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Yes it is, direct admit to hospital 11/22 I had my monthly labs drawn the week b/f and my numbers were high. I am on high dose prednisone and they have increased my prograf and myfortic also.. what they want to do is a liver biopsy but I 🙏🏻 the increased meds r going to get me back on track.
Last labs numbers are still high so I will do another reck next week. I am not feeling as well as I was so I kinda knew something was up.
Thank u for checking on me💚❤️😊
I am staying positive all will be good.

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