1. < Transplants

Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

myfablife | @myfablife | Feb 3, 2023
In reply to @maw90455 "For the past several weeks, I have been very tired, bloated, nauseas, and my hands itch..." + (show)
@maw90455

For the past several weeks, I have been very tired, bloated, nauseas, and my hands itch ( not sure if any of this is related), and irritable.

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It is possible all of those could be, I had horrible itching and of course the other problems I already shared with u.
Keep your Drs. posted on any changes.
Good luck😊💚

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1 reply
scooterbill | @scooterbill | Feb 3, 2023
In reply to @rrichardparker "I am 6 years past my liver transplant Support groups are very good with support. Just..." + (show)
@rrichardparker

I am 6 years past my liver transplant

Support groups are very good with support. Just talking to people in the same boat as you leavens the horror of your situation.

Post transplant too.

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WOW that is awesome!!! My son is very sick now and waiting to even get on a list. If you can share anything with me it would be comforting I am sure.

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1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Feb 3, 2023
In reply to @maw90455 "I haven’t checked in with him for several weeks!" + (show)
@maw90455

I haven’t checked in with him for several weeks!

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I think you should check in today. Remember this is Friday so do it now. It is best to be safe a get his expert opinion. It could be normal for your condition - or - He might want to see you next week.

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maw90455 | @maw90455 | Feb 3, 2023

I haven’t checked in with him for several weeks!

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1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Feb 3, 2023

@maw90455
These symptoms are related to liver disease and advancing cirrhosis. Symptoms can come on gradually over time, or suddenly. Since you have felt an increase in symptoms in the last several weeks , I think you should contact your doctor about it. He might need to see you or do some labs to determine if your condition is worsening at a faster pace.
My symptoms and MELD were at a stable level , then suddenly dropped. That is when I was referred to the Transplant Center.
MAW- Does your doctor know about the increasing symptoms?

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1 reply
maw90455 | @maw90455 | Feb 3, 2023
In reply to @myfablife "Hi, From what my TP team told me to get on the TP list u have..." + (show)
@myfablife

Hi,
From what my TP team told me to get on the TP list u have to meet the criteria of how serious your liver disease is . That’s why they monitor your labs and keep track of your meld scores so closely. If they start seeing changes they will change your labs to every 30 days and so on. R u having any symptoms of liver disease besides the tiredness. I had my LTP 2020.
Good health to u to..💚

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For the past several weeks, I have been very tired, bloated, nauseas, and my hands itch ( not sure if any of this is related), and irritable.

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1 reply
maw90455 | @maw90455 | Feb 3, 2023
In reply to @myfablife "Are they looking to get u on the TP list! Do u have scarring from your..." + (show)
@myfablife

Are they looking to get u on the TP list!
Do u have scarring from your cirrhosis and have they given u a meld score.

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there has not yet been any discussion of the TP list at this point, and I hope they never bring that up-I hope you are staying healthy!

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1 reply
maw90455 | @maw90455 | Feb 3, 2023
In reply to @myfablife "Hi maw, With my TP center u have to have a meld score of 17 or..." + (show)
@myfablife

Hi maw, With my TP center u have to have a meld score of 17 or higher w/other symptoms to be considered for TP. Every TP center has certain criteria. I-had a high meld score, ascites, portal hypertension and hepatic encephalopathy “which was horrible” hospitalized for a while from that. I too was dx. with NASH with cirrhosis. That is why they monitor your labs so closely for any changes. I was put on several meds to help with my symptoms that I had.
I hope u stay well and let us know how u do. It’s a lot to deal with.

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THANK YOU AND I HOPE YOU STAY SAFE AND HEALTHY!

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parrot53 | @parrot53 | Feb 3, 2023
In reply to @maw90455 "Extensive scarring-cirrhosis stage 4-meld score 14" + (show)
@maw90455

Extensive scarring-cirrhosis stage 4-meld score 14

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Hang in there. Your team will monitor you for any further problems. How are you feeling? Sometimes it is hard to wait and see but keep your friends and family close and enjoy each day. I know being in this situation is difficult but it made me reevaluate my priorities and I am so thankful for that. Wishing you the best of luck on your journey.

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