Liver transplant - Let's support each other

Hi Parmcat. Thank you for sharing ur joirney. My husband is told to be prepared for liver transplant due to his liver cancer. We didnt yet apply to waiting list. My question now is how often do you have to visit clinic after transplant is done. Is there like mandatory observation, tests u have to do every week, month or some in clinic procedures?! My husband is USA citizen, but we live in a different country. So my concern now do we have to stay in USA all the time or after transplant we can go back.

My bride is pending approval. She was going to get her hair color updated and a friend said not advised as the chemicals in the process can cause problems. Any input

Congratulations. My husband is 9 months from his liver transplant. He started to feel so much better about 2 months after the surgery, then a month or so later started to develop more discomfort and other symptoms, such as itching. Tests do not indicate a major problem but his energy level and discomfort are very difficult. I think perhaps the worry that the problems are due to pending rejection or biliary shutdown only makes thing worse. We are having faith that if we can just struggle through this it will get better.
Tell your mom, and yourself, that you are not alone.

Welcome to our group. I will be celebrating my 3rd transversary on the Canadian Thanksgiving weekend, in 2 weeks. Please let your Mum know that it does get better. Her appetite will return and believe it or not the pain does go away. I still experience some pain. Not all the time but it depends on what I eat and when. I just "push" through it and make sure to walk. I'm not going to say it's a cake walk. I've had a very rough time of it. But it did get better. Now I feel amazing. In the beginning I questioned if I had even done the right thing, was it worth it. Well 3 years later the answer is "ABSOLUTELY" stay strong it will get better. Try prayer it really does work. 🙏😊💞

Low appetite is very common. I went from 180 to 130. Your mom has to think positively, she a very major surgery and now she has to work through a major recovery. My advice is to thankful you are alive and take one day at a time. Tom

Hi, I’m new on here. My mom was given the gift of a liver August 4th and she’s been really going through it. If anyone can help with suggestions I can do to help her. She’s been having bad heartburn/nausea when eating and having abdominal pains. She’s been to the hospital for the pains already but they didn’t see anything worrisome. Her appetite is very low and was wondering if that’s common? Any suggestions can help, thank you in advanced.

gaylea1, you r 💯 on it. It just takes years/times to get your body/mind back after TP. Hang in there🌻🌈💚

Hi Jen!! I am less than 6 months since LTP and I can 't truly answer your question. I will say that physically you should begin getting better daily. The 2 month mark was a time that exercise and sleep becoming a part of my regiment again. However, growing and healing pains also were becoming a part of me.
I feel great most of the time and really would like to be back to normal. However, physical and mental fatigue are a struggle. I can tell you that it is great to have venues like this to vent and to recieve support/encouragement.
Congratulations on your gift of life.

Hi, @jennybouch. Wow! You have certainly jumped into the liver transplant support with a perfectly good question❤️. First of all, I want to extend my virtual handshake or hug in a sincere welcome. My transplant was 14 years ago and I can safely assure you that you are not alone with this question. At 7 weeks you are still in recovery from surgery, and your body needs time to heal and to adjust to medicines. Most of us, myself include, were very ill prior to our transplantation. Plus, there are individual differences with pretransplant health concerns in addition to our failing organ(s).
Jenny, what part of your recovery is most troubling to you? We are here to listen and to share our experiences. You are not alone.

I’m 7 weeks post transplant and I just wonder if I will ever truly feel better and get back to my old self.