Liver transplant - Let's support each other

@livertrex I had serious sleep problems pre-transplant. Nothing worked...I tried organic and medical methods. I learned that sleep would come to me when needed. I couldn't force it no matter what I took or tried. I realized that sleep would come when my body was ready. So...I watched Netflix and read a ton of books. I found on line (You tube) lots of calming and sleep inducing music. I slept during the day if I could and if not just rested a lot. I still listen to calming music to help me sleep. It's a rough ride but hang in there...it really does get better..

I tried just about everything. I received mixed response. I know melition doesn't work. I even was so desperate that I took ambiance.

@livertrex Are you taking any prescription pain relievers such as oxycodone, OxyContin, hydrocodone, dilaudid, or tramadol? When I take any of those I lie awake staring at the ceiling for hours. I generally fall asleep at around 5 or 6 in the morning so then I have to sleep all morning. I have to be totally desperate to take anything these days.
JK

@livertrex, I wish I could say Good Morning, but it sounds like you had little sleep. I know that sleepless nights can be a real bother. My own experience was sleepless miserable nights before transplant. And after my transplant things improved over time.

Livertex, It would be helpful if you share whether you have had a liver transplant yet? Or are you on a waiting list?

@livertrex Are you taking any prescription pain relievers such as oxycodone, OxyContin, hydrocodone, dilaudid, or tramadol? When I take any of those I lie awake staring at the ceiling for hours. I generally fall asleep at around 5 or 6 in the morning so then I have to sleep all morning. I have to be totally desperate to take anything these days.
JK

@livertrex, I wish I could say Good Morning, but it sounds like you had little sleep. I know that sleepless nights can be a real bother. My own experience was sleepless miserable nights before transplant. And after my transplant things improved over time.

Livertex, It would be helpful if you share whether you have had a liver transplant yet? Or are you on a waiting list?

My don't seem to be happy. I feel like I am on speed I can't sleep . I spent the night rewiring the house in the middle of the night my mind will not shut down. Must be addressing. I blew out the lights and started out the window all night waiting for morning. mind will not shut.OFf

My don't seem to be happy. I feel like I am on speed I can't sleep . I spent the night rewiring the house in the middle of the night my mind will not shut down. Must be addressing. I blew out the lights and started out the window all night waiting for morning. mind will not shut.OFf

My husband and I like to say that if my transplanted organs are happy, then everybody's happy 😊

@luckonetj If your transplant center is happy with your numbers that's what matters I think. We have to trust them to know best. Mine initially said they would consider 1.40 to be my norm but then for some reason they lowered that. Now it is generally less than 1.10. I do have days when I don't manage to get all of that water down, especially if traveling.
JK